Daughter is allergic or intolerant to everything

You need to repair the gut. I make my own sauerkraut and Kombuchi tea which have the probiotics the gut needs. Have you looked at probiotics? You can buy the probiotics in the store. Best to stay away from sugar since it feeds the bad bacteria. You have to repair the gut to get the health back. We are all different so you will have to figure out the best diet for your daughter by trial and error. Google information for "repairing a leaky gut" and try different things until you find what works.

http://blog.paleohacks.com/the-best-way-to-restore-your-gut-flora/

What sort of doctor ordered this test? What I can find online looks like it's one of those where you send some blood or a swab and may not be licensed in some states. My allergist doesn't send samples to these kinds of labs.

Are you being seen by a real allergist?

Even reliable, certified, blood tests are only 80% or so accurate. I tested allergic to peanuts, but I eat peanut butter all the time with no problem.

The real test is do you get a reaction to the food. That's where the food journal comes in. For foods that can't be tested by the skin prick test, there is, besides the diary, "challenge testing" which must be done in the allergist's office for safety.

I couldn't possibly eat the paleo diet or any of the other newer diets that have popped up. I react badly to fermented foods or drinks. People ask me what do I eat when I list my allergen-containing foods. But there's plenty of food! My trigger is mainly the preservative and bleaching agent that contaminates perfectly good food that is processed. Mine may not be the same as yours, so I'll let you figure out your own. There's no one-size-fits-all in allergies.

I can't eat anything made from corn, but I am not allergic/sensitive to corn itself. Does your daughter actually have a reaction to plain corn? My reaction starts out as gastric reflux, but can go on to tachycardia if I've eaten enough to trigger it. Quantity is important unless one has a severe allergy like peanuts.

I don't go with the many lists of foods that contain my allergen. Many foods on published lists only contain a trace of it. It works in medicines too. Not an allergy, but morphine to me is like water, but the morphones work well. I have to read the lists of "excipients" too. That's why I can't have flu shots.

What kinds of fruits, and were they found from eating them or from testing? How are they related?

I'm pleased to hear that you really do know what you're talking about and have researched and are seeing the doctor. So many people jump to the forums first or go to alternative medicine instead of the educated professionals who have high level training and experience.

It's entirely possible to develop new allergies, and get rid of old ones at any age. I recently started having trouble with grass. Thank goodness my milk problem is only lactose.

Getting a biopsy for celiac is not really a big deal, even for a child. I would recommend getting that done. It might not show the problem though if she's been off gluten for a long time, so the sooner the better. The blood test could be done first if you are fearful of her sleeping for a few minutes. Getting a look at the inside of her GI system might show if there is or is not a visible physical problem.

"Testing foods" can be hazardous outside the allergist's office if there is a severe reaction. That's why doctors are now required to do challenge testing in the office. I did my own challenges at home originally, but the one I had last year I had to do in the office. Do you have a couple of Epi-Pens in case of emergency? One is not enough because they don't work long enough to get to help. I posted how to do challenge testing, according to what my allergist told me, a few years ago. You can probably find it if you put the words in the search box at the top of the page.

A lot of people are now doing the food diary. It was a big deal way back when my allergist first had me do it. It takes a while to figure out which ingredients of a meal caused a reaction, but it's easy and free. It's good you are doing it!

Thinking of you and the daughter.

I have a problem with food, or lack of it lol!!

I have Multiple Chemical Sensitivity and I am Gluten, Dairy and Sulfite intolerant and I have recently discovered some new food allergies after my recent skin prick test, whilst visiting my allergist..but really, the best way and most accurate way for me is to carefully keep and monitor a food diary, as skin prick tests aren't always correct, for example I think I have a problem with Walnuts, which came up fine on the recent skin prick test!! and so it just goes to show you cannot count on these tests totally. Through carefully writing down everything in my food diary (which is kept open on the kitchen table) I have recently discovered I cannot take extra virgin olive oil, which I was using two or three times a day, and just that simple discovery has meant I am now sleeping much better. This is something that the allergist couldnt possibly have picked up, and thats why a food diary is really the only way to know for sure what your daughter can safely eat.

Food is a challenge, more so at the moment, and I am eating carefully, as I usually get a reaction within an hour, and I then know to avoid that particular food in future, I wonder how quickly your daughter knows when something does not work for her...

At the moment my staple foods are Rice (the allergist initially told me I had a problem with this and I asked to be retested and it came up fine) Sweet Potatoes, Potatoes (all organic) and Quinoa. I then stick with chicken, salmon, mince, beef, all organic, and I eat a lot of organic fruit and vegetables.. Drinks are a problem at the moment and so I tend to stick with boring old water for now, but that is hardly going to be exciting for your daughter, so maybe you can make some healthy drinks for her. I think most over the counter drinks are probably going to be bad for her.

If you look on Amazon, under the brand name "Enjoy Life" you will find that they have some really good snacks which are handy to have in the house as special "treats" for your daughter.

When was the last time she was tested for celiac disease? You said that she was not IGA deficient, but it sounded like she did not receive the full celiac panel. Young kids often test negative to the TTG Tests and need the DGP tests.

I wish you and your daughter well!

I know my insurance will only allow a GI to run a full celiac panel. A PCP or internist is not even authorized to run a full panel. I found this out when I went to my new provider (changed insurance after my CD diagnosis). I had to get a referral to a GI which I needed anyway. I need the full panel because I test negative on the TTG tests and positive on only only the DGP iga. If you google this it usually studies indicate this kind of result is for kids (and I'm in my 50's!). )

Here's the the full panel:

Tissue Transglutaminase (tTG) IgA and (tTG) IgG
Deamidated Gliadin Peptide (DGP) IgA and (DGP) (IgG
EMA IGA
Total Serum IgA and IgG (control test)
AGA IgG and IgA is an older test and is replaced by the new DGP which are just as good as the TTG.

Finally endoscopy with six biopsy samples

Doctors often run just the TTG and the IGA (control test and checks for IGA defciency) because 1) it is a screening test and 2) it is cheaper. It does catch about 95% of celiacs in adults. Kids are a bit tricker!

Her ped can try to order them or a Ped GI. Celiac disease should at least be completely ruled out. You can be symptom free. Because it is genetic with enviormental triggers, first-degree relatives should be tested. My kids is and will always be tested every two years or sooner if she develops symptoms. My only symptom was anemia.

She must be eating gluten 8 to 12 weeks prior to the blood test. Four weeks prior to the endoscopy. Going off gluten as a test and then going back on is awful. The reaction or flare-up is awful! I had my first glutening this summer. Two months and I am still not back to normal. I was normal after being gluten free for two years. Good news is that kids heal much faster!

Check out the University of Chicago's celiac website. They are one of the leading researchers in the country and the website is very informative. There are over 300 known symptoms of CD. Oh....same genes for Hashi's......do the research!

Autoimmune Thyroid disorders are often connected to Celiac. See theglutenfile.com for more info.

Those with Lyme should ideally avoid pro-inflammatory proteins found in gluten and dairy. Nightshades may also need to be avoided.

Consider also the possibility of parasites (the most common co-infection with Lyme, but can occur in the absence of Lyme as well), and Candida overgrowth.