Thanks Beave, I’ll keep you posted. Thanks again for your help!...
Thanks that makes sense. Also if I did develop antibodies previously and they upped my dose as a result, would it be possible that down the road I could lower the dose and my antibodies would be okay...
Thank you so much Beave for the detailed response I really appreciate it and it’s given me a bit of reassurance! I think personally there’s been a lot on in my life the past 2/3 years so I’m really...
Just checked my notes they upped my dose to 10mg in April 2022! Must of been from the high stool sample...
Hi Beave, Honestly I’m not sure on that I’m going to ask my GI at my next appointment. I was pregnant when I first went on it and wasn’t sure on a lot, I had a tough pregnancy so just went along with...
Thanks all I appreciate all of your responses! Maybe I could be one of the lucky ones that this may disappear down the road for me- I suppose all I can do is wait and see. Probably an obvious and...
Hi Beave, thank you so much for your reply and your well wishes on my pregnancy 😊 Thank you for the info re the other meds I was not aware, had a Quick Look at Entyvio was not aware that this mainly...
Hi Quincy, yes using that at the moment it definitely does help but it’s like it won’t fully clear or if it does it comes back! It seems relentless it’s is really bringing me down! Not sure what my...
Hi StrayDog, yes it’s our second baby we’re so thrilled. Thank you so much! I’ve been on Infliximab since December 2021. Haven’t had any issues since about January this year. It’s really frustrating...
Hello All, Hoping you guys can help me or give me some insight into what to do. The last year I’ve been having a lot of skin issues mainly on my face around my mouth & lips! Have been having rosacea...
Hi Clo, thanks for the feedback! So they’ve never came up with an actual diagnosis on your lips? I seem to run to the doc to get antibiotics quick because within days it does seem to turn into...
Hi Old Hat, it’s so difficult to know. I feel my doctor is just throwing antibiotics at me. I currently have the cornflake like crust on my outer lip. They think it could be perioral dermatitis on my...
Thank you all so much for your feedback! I will let you know. I spoke with a nurse on my Gastro team and she said all my levels look great but am waiting on my calprotectin levels to come back. @clo...
Hello All, Hoping someone can help me here!! I’ve been getting strange lip sores on & off the past few months. There tiny tiny little bumps but more so there quite inflamed, red, sore and burning!...
Thanks susie! I’m currently on probiotics the last while so maybe it’s more stress/ anxiety related I’m really hoping my UC is okay- feeling fine just very loose stool 1/2 a day!!...
FYI I was on about 3 rounds of Fluxacillian antibiotic and it kept coming back and it was on my face- I am so conscious of cleaning etc also. My husband and little boy thankfully didn’t catch it...
Hello All, Hoping you guys might help a bit as you’ve been so helpful in the past. Bit of background. I’m currently on Infliximab infusions every 6 weeks- all going well. Had a lap surgery for...
Hi All, No like Beave mentioned it’s the Infliximab injection think it was approved a few months back. Assumed a lot more would be on it. Haven’t heard much on it. Definitely more convenient, finding...
Hello All, I’m currently on Infliximab infusions every 6 weeks they seem to be working well enough. Even though lately I feel my skin (on my face) is extremely dry, sore and itchy. Not sure if that’s...
Thank you both so much! @Qunicy interesting read, mine sounds like cheilitis!! This is all coming back to me as I’ve googled this before, this has happened a few times throughout the years well since...
Hello All, Just wondering if any of you with UC have experienced painful sore/burning like lips? I seem to be in the start of a flare unfortunately and my lips seem to be very sore- I’ve actually...
Thanks all! As if we didn’t have enough to deal with IBD! I’m really hoping we can be lucky enough to have one more baby, that’s my main concern! I’m pretty sure I have stage 4 endo though so I’m...
Hi All, Anyone have UC and endometriosis? Was recently diagnosed and am wondering is there any link between the two? Feeling a bit disheartened, any success stories with conceiving greatly...
It’s such an unusual one! Interest to hear so many of your replies! I did go to the GP a while back and they prescribed a cream called Canesten (Clotrimazole 1% and Hydrocortisone 1%) I only put it...
Thank you all for your replies! I really hope they heal and I can re-pierce them! I miss earrings so much and the clip on variety just doesn’t cut it! Funny I had a section about a year ago and that...
Hello All, Hoping you might help me on this one! I’ve had UC since 2020, currently in remission while on Saloflak granules and 6 weekly infusions of Infliximab. I’ve had my ears pierced for 15+...
No I haven’t gave them a break at all, thanks guys! Will let you know of my updates 😊...
Thanks FlowersGal will keep you guys posted. It’s such a strange one I actually feel since going on Pred and continuing with the nightly enemas or foam I’m a lot worse. I only used Pred once before...
Thanks for the reply FlowersGal unfortunately the Pred doesn’t seem to be working this time round, crazy as it sounds I feel like my symptoms have got worse. Anyway my GI is doing a flex scope on me...
Hi Guys, I’m on Pred the past week and the enemas at night not seeing huge improvement if I’m being honest but it may be slow. Just wondering can I include the Budenoflak foam during the day for even...
Really? Your symptoms improved when you went off the enemas? I had a very mild flare early on but it was kept under control with the mesalamine enemas for a few weeks then at around 21 weeks, it...
Hi Hmmisme, Sorry your going through the same it is so frustrating isn’t it! Thanks so much for the message nice to know we’re not alone! Isn’t many with a flare mid pregnancy…I was feeling great...
Thanks Quincy. Finding it hard to enjoy the pregnancy with this ongoing. No haven’t had the second stool sample back yet, what do I get them to check apart from Calprotectin, for infection is it? The...
Hi Guys, So I started Pred on Tuesday 7th of Dec 40mg tapering down for 8 weeks, I haven’t seen any improvement yet unfortunately. Have urgency/bleeding (quite a bit red blood) and loose stool...
Thanks Quincy I will. Having a bad weekend of it unfortunately have mainly D and bleeding going 6/7 times. So hard to get this under control, still taking all my meds. Speak soon...
Hi Quincy, As far as I know it was just a calprotectin test but I’m not sure I must check. I really do think it is a UC flare, I went three times today mainly watery and blood and a lot of rumbling....
Hello All, Quick update- Still taking the steroid foam at night and suppositories during the day. Decided to give the enema a break as I felt I wanted to get more out of the steroid foam at night ie....
Hi Quincy, I take the probiotics at night time. I’m going to try the enema tonight and see what it’s like for the next 2/3 days, used the foam this morning and feel good after it. My second BM would...
No funnily enough they only check certain bloods since I’ve been pregnant and B isn’t one of them, I’ve no idea why!! I did have it checked a few months ago and they were in line. I know I’m torn...
I could ask, are they an oral steroid like Pred? This morning I went again and it was watery with mucus & blood! It’s like two steps forward ten steps back! It’s so hard to shake this flare!! Should...
And I’m just after realising I ate baked beans for lunch & dinner yesterday!!! That explains the wind, silly move on my part!!!...
Hello All, Hope your all keeping well. Current update 10 days in using Budenoflak. Definitely has improved things, I will say on a side note I stopped the nightly Saloflak enemas and switched to the...
Thanks Quincy I was thinking the same taking the two after each other didn’t sound right. Just took my second foam and so far so good. I took the enema last night as normal around 9pm & had no issues...
Thanks so much for the advice FlowersGal, will take note of that for next time. Took the foam today around 2pm (after I picked it up) so far so good. It did feel a bit cold like a shot of cold air...
Hi Quincy, Yes it was hard to squeeze out and then totally splashed out all over the place! That never really happens to me, maybe I went too fast or maybe I didn’t have it in right, probably an...
Sorry to bother you all one last time guys. I just did the enema tonight and I found it quite hard to get the liquid in the rectum if that makes sense? The liquid kept spilling out and I had it put...
Thanks Quincy for the reply, I do agree that the vaccines must of had some bearing on the flare as I got a fright this morning it was THAT bad! I’ve been used to seeing loose stools, some blood etc...
Thank you so much Flowers Gal for the reply. So you found them helpful? I’m really hoping to try and get into some sort of remission as when baby comes this will be 100 times more difficult....
Hi Quincy, Unfortunately my flare has got worse! This morning I had ALOT of blood and mucus while doing my stool sample! And the urgency was extreme. Unusual as I felt I had been keeping it mild the...
Thanks Quincy I will keep you updated once I know more on my results. Thanks for your help!...