Hello all, I received my MRE report today (haven’t from my doctor yet). It stated “Indication: Crohn’s disease”. It said about 14 cm of inflammation in the terminal ileum. I am on Stelara, which has...
So out of 7 colonoscopies within the last 20+ years, no doctor has been able to get access to the terminal ileum. My new GI doctor was able to. Since I have more constipation, she had me to do a 2...
Yes that’s exactly what a prior GI doctor called it Crohn’s colitis. He said a lot of doctors don’t accept that you can have it in the colon. I still have a lot of nausea and smelly gas is still a...
Hello all, I had my colonoscopy and right before Christmas got a call that all of my biopsies were clear but that I had inflammation in the ileum. Not sure what that means. I have an appointment soon...
I have crohns per biospy but the Dr said it looks like UC. I’ve been on Stelara for over a year now I believe. It was helping but now the levels are going up. I do work from home 3 days a week. I...
Hello all, I am interested to know if anyone has had issues with very unpleasant body odor. I was told by a nutritionist that I have leaky gut (paid a couple thousands because she didn’t accept...
I’m praying that it’s an easy fix. I just have not been able to find any medicine that can calm my nerves and not knock me out or make me feel down or out of it. It’s too hard to function on the job...
Thanks again for responding. I have tried all of the OTC meds and none seem to help me. Do you or anyone know of a good medicine for anxiety as it relates to the gut? I am starting to feel that it’s...
Thanks for responding. I’ve been on Stelara for over a year with a break in treatment last year (got Covid 3 weeks after starting it so I stayed off of it for a few months). My test at the time was...
Hello all, So I just had my 2nd calprotectin test in 6 weeks and it went up, even after being in Stelara. I am having lots of bloating and pain issues. Is this normally a sign that the Stelara is not...
Thanks for responding. It’s a medium size company in several states. They do seem to be understanding but perhaps I should wait until the 90 day period is up. Thanks again!...
I just started a new job. I did not let HR know about my health issues. I work remotely a couple days a week, which helps. Just wondering if anyone ever had experience with letting HR in on private...
Thanks for all of the responses. I do think that I need to go back super strict with my diet. That does mean no onions or garlic, not any of the vegetables that I like. I even think that most carbs...
Thanks. I did see a dietician who did a blood spot test that showed issues with gluten, casein (milk protein) and wheat. I already knew that I was badly lactose intolerant so I try to stay away from...
Hello, I was wondering if anyone has ever had issues with uncontrollable gas. I have the worse bloating and then uncomfortable gas. It has created the most humiliating situations for me. I just do...
Thanks for responding. I’m just getting around to having enough time to sit down and read (crazy stressful job…can’t even get off for necessary Dr appointments). Anyway, I have left a message for my...
Hello All, Just checking to see how long would any of you who take Stelara wait to restart after having a sinus infection and taking antibiotics? I was off Stelara for 6 months and was approved to...
Thanks I will definitely check out that website! Hidradenitis suppurativa (an inflammatory skin issue). It goes with PG. Thankfully the hospital we took him to had a great team of dermatologist who...
Hello All, I wanted to know if anyone deals with PG of the skin. My son just got dx’d with it after having it flare 3 times in the past and the doctors treating it like MRSA. He was on Humira in the...
I start the process with the dietitian tomorrow. She wants me to do an elimination diet. I’m pretty much in pain constantly now. The pain in my shin area on my legs is baffling me the most. I’m...
Thanks for the responses. Yes, the Prometheus test is to check for antibodies. I think they prescribed steroids because I mentioned that I was advised not to take anti inflammatory drugs due to the...
Hello, It’s been a while since I posted. I’m in training on my job and sitting for very long periods. Anyway, I ended up with pain so bad in my buttocks area that ran down to my leg on one side. I...
My joint pain is mostly with the wrist, arm and elbow. I have had back pain and after X-rays was told that there is some moderate degeneration with the hip/SI joint. I was taking Aleve and Motrin for...
Oh thanks for sharing. I did experience lots of bruising with Tunmeric. When I stopped the bruising stopped. Maybe I should stay on the Stelara. The Rheumatologist confirmed that I have Sjogren’s...
That’s why I’m reluctant to continue with Stelara if it’s not going to help with the joint pain, especially if there are other drugs that can help the colon and the joints. I don’t have...
Hello All, Just wanted to see if anyone has issues with taking Tumeric if taking Stelara or with having IBD. My GI said it’s not advisable, but it helps the joint pain caused by the IBD. She also...
I'll get a pic of the report, but it was above the line. I had one Dr tell me that the hashimoto and vitamin deficiency can cause it to be lower....
Thanks for responding. The GI hasn't really called it anything except for IBD. The nurse said crohns. The Dr just said it was caught early. I guess because it took such a long time for the symptoms...
Hello all, I finally was able to get the report from my last colonoscopy: FINAL DIAGNOSIS: A. ASCENDING COLON BIOPSY Patchy chronic colitis, moderate activity. B. TRANSVERSE COLON BIOPSY Patchy...
The main issue I have with UC is constipation, gas and mucus (no blood) and there is no change in anything except no mucus. I'm waiting on the stool test results. The cyst is painful so the pcp wants...
Hello, I'm scheduled for my 1st Stelara injection after my infusion 8 weeks ago. I was wondering if anyone has ever had to take an antibiotic while on Stelara. I'm going to see my pcp next week for a...
Hello All, I have my 2nd Stelara treatment (after the infusion) scheduled in the morning. I have been taking some baby aspirin and now I'm wondering if I should reschedule my injection. I'm also...
Hello, I've posted a few times. I was initially thought to have UC, but then the Dr started saying Crohns. The last biopsy stated indeterminant I believe (still haven't seen a report, but I see the...
Hello All, Update-6 weeks post Stelara infusion: It's been almost 6 weeks since I had my first Stelara infusion. I weaned myself off of the prednisone, because it seemed to be affecting me (besides...
Hello All, I was wondering do any of you have issues with eating mix salad kits, especially the ones with purple cabbage. For about 3-4 days straight I had been eating one meal a day and that one...
Thanks so much for sharing your experience. Night sweats is not an issue for me. I know having a good scope is very important. My calprotectin was mid 300's, so I'm assuming she will check that too....
Hello, So I had my first Stelara infusion on this past Saturday. I'm starting to taper down on the prednisone again (going from 10mg to 7mg right now). So far, I haven't felt any pain (tailbone pain...
Thank you! Yes I agree they did not know what was causing my uncontrollable flatulence. Back then, that was my main concern because that is what caused me pure humiliation and a couple of job losses....
Hello All, Just wanted to give an update. I had my first Stelara Infusion today. I was very nervous. But, I'm thankful to report that everything went very well. It lasted about an hour and they...
@HaleyA Unfortunately, I have not been retested. My doctor wanted to wait for 4 weeks to retest. But, I can definitely tell a difference in my energy level and how I feel. I've had iron infusions...
Congrats. I just had iron infusions and they do make you feel better. My ferritin was at 5 also. Congrats on the wedding!!!...
Thanks for the encouragement. I greatly appreciate it! I'm just going to pray about it and get it, I do believe. I'm scheduled to go to an infusion center instead of a hospital. So, I guess if I have...
Has anyone experienced major stomach cramps when weaning down on prednisone? I experienced really bad cramping and nausea today, but I'm not sick. Just major cramping all around the stomach and even...
Thanks! Yes I'm weaning down to 5 mg now. I've gained over 13 lbs and I'm thinking my glucose could be higher. So I should be off in a few days. The only my thing is the elbow pain is back. :(...
Hello All, I'm fairly new to this board. I'm still trying to decide if I should take the Stelara that has been offered/approved for me. The GI suggested Stelara due to less side effects she said. My...
I did have a negative SBIO test back in 2015. I have had a LOT of test after the main symptoms first started. One thing I do recall is being put on several different antibiotics back in 2012, shortly...
The post nasal drip was so bad last year u til I went to an ENT. He scoped my nose and looked at my throat and said it was acid reflux. He gave me a skin allergy test and I'm only allergic to a few...
I've been taking Linzess for IBS-C for the last 6 plus years. It's the only thing that helps, although it's very unpredictable. I do take Metamucil gummies but I haven't noticed a difference. Mylanta...
Thank you for your response. Yes, I want off of prednisone. I have only been on it for 9 weeks exactly and I have put on 17.5 lbs. I have been so hungry but trying to stick to one meal and a snack...
I'll be starting Stelara in a couple of weeks. Just wondering if anyone with constipation as the main issue has good results with Stelara. Also, I'm taking prednisone now for joint pain and last...