anyone have any clue on this timing issue? Sorry to bump. Thanks much....
Hello again, I am having Labcorp do another CD57 test just to see how it measures up with the Quest results but running into a problem. As I understand it, Labcorp in NC or TX needs to have the blood...
I think so too, ktp812. I just asked her for another test just to compare since the results are so different. It was the low CD57 that made her ears perk up but I think you're right. To many weird...
An update. My doc is so great. I just emailed her to see why the difference and shouldn't we just double check by doing another test at Labcorp and she is calling in the order. I will let you all...
I wonder if somehow giving your medical records to any "extra" people would come back to bit you. Anything involving lawyers and insurance companies can't turn out well....
+Lyme, not a clue. The Labcorp was last summer and Quest last month. I certainly have no idea why the difference and it didn't even occur to me to ask her. I will try and remember to ask next time we...
Another update from my lawyer friend. She says: medical insurance providers are not allowed to report these issues to the state boards (that would be a conflict of interest). Malpractice insurance...
I just heard back from a friend who is a lawyer. I asked her. Keep in mind she is not a malpractice attorney and we are not in California but maybe this will give you a snippet of info. Not sure if...
Thanks for the explanation. I had no idea but it sure makes sense, that it's all about the insurance company. You know, IH8Ticks makes total sense. Why are they asking you for your medical records....
One more quick question, ktp812. Did you have all your CD57 done at Labcorp or did your doctor use Quest. My first test where I had 38 was Labcorp. The last one where my results were 207 was Quest. I...
I have a question for you though. Why would you want to give them ammunition to go after your doctor? You won't educate these people. They aren't interested in being educated or doing what's right....
Thanks ktp812. I have to say, just because you felt worse on Valcyte doesn't mean you don't have EBV. That is a very hard drug and unless you have high titers and high HHV6 titers, Valcyte isn't...
Thank you Razzle. All the best to you!...
I just wanted to give those that are interested a little update on these Immunoglobulin levels. I only had very elevated IgG and IgG subclasses. Apparently higher than anyone my doctor has seen. So,...
Since you have all been so helpful and welcoming I wanted to give you an update and to thank you all for all your help and kindness. I just spoke to the doc who thought maybe Lyme was my problem...
Kim - I have not yet talked to her specifically about my EBV test but she did tell me she has tried people on Valtrex and Valcyte but that a lot of people got worse or add side effects that they...
I asked this in another thread but think it probably better to start a new thread. Has anyone had these tested and if so what were your results and as far as you know what do they indicate. I know...
Thanks nasalady. How would one know if they have a damaged immune system? Has anyone had immunglobulines tested and if so what would indicate an immune system problem, high or low numbers?...
Thanks very much for the info. I got results from EBV panel and sure enough I have a nice (well not actually nice) case of reactivated EBV. It will be interesting to see what my doc says now....
ktp812, thanks for that info. Very interesting. I think mine is viral also but we'll see. I've taken antibiotics in the past (regular dosage/time) and never felt anything one way or the other....
Thanks much IH8Ticks. I appreciate that pdf....
Thanks for that info. Does anyone know if the Immuno tests are relevant to the Lyme discussion? In other words, did any of your doctors say, oh this puts it over the edge in the direction of Lyme?...
You've all done a brilliant job and I certainly wasn't expecting anyone to diagnose me. I know you have to say that because you're not doctors but I'm very comfortable in the online support world....
Thanks +Lyme. I'll have to give them a call. Maybe something is missing. From what I've read Labcorp is the only lab to go through but appears from what you told me about your doc and what my doc...
Thanks much. My head is spinning. I guess a LLMD is in order. I'm just not convinced. On the CD57 there is no other number on the Quest results. On the LabCorp there are 2 numbers. The percentage...
I have some more testing (just in) from Quest. Any thoughts would be appreciated. IGG - 41 - reactive 66 - reactive (They only tested the following bands 18,23,28,30,39,41,58,66,93) IGM - 41 -...
Thank you so much everyone, for all the replies. I like to check these things with people who really know (the people who have this illness). I have no respect left for doctors after having to...
No, I have not tried antibiotics. What other tests could I get? Doc will probably order anything I ask for. Thanks so much for all your help. I do think she will send me on to a LLMD. It's a doc that...
Thanks much for your opinions. One more question, if I may. If this is the first to appear how could that be 14 years after the fact. Would that be something at the beginning of any infection?...
I forgot to mention. I had the Igenex co-infection panel and there was nothing....
Thank you so much for responding. IGG - band 41 - IND IGM - band 41 - + Do you need the bands that have the ** in front of them? My doc got a little more concerned because I was born and raised (to...
Thanks much for the reply. I have been sick for 14 years and when I first got sick I did have EBV. The last test about 3 years ago showed some antibodies but not horrible. I have a feeling you are...
My new doctor says my CD57 of 38 is a significant sign in the direction of Lyme even though I only have one band on Igenex. I just don't know. I have many other hormone problems that could be causing...
Hi folks, You seem to know so much so thought I'd see what you all thought. Old doc didn't think it was anything but I doubt he had a clue. New doc seems to think there is something here. We are...