Hello, the links you posted don't seem to be clickable so I fixed that for you. In future, if you want a link to be clickable, make sure to surround it with these tags the latter tag, should have a /...
For the sake of your esophagus, and your head, don't lie down for at least an hour after taking doxycycline. It increases intracranial blood pressure and it can affect your esophagus too and cause...
If you could take your wife with you, that would help your case. If you have her vouching for you and essentially "corroborating" your data, the doctor may be more inclined to take some kind of...
Nitroxoline has been used by several people in the facebook groups who reported it's efficacy, particularly for bartonella. It's possible to buy it, in fact I think I may have ordered some a while...
On a cursory search, it seems that new evidence has come to light questioning the efficacy of the vaccine schedule. It's only really given to pregnant women these days. It doesn't make sense for...
Hey Scott I think he'll be a bit more open to lyme disease. I used to speak to a gentleman that attended the London clinic for numerous lyme related treatments. Dr Berkowitz used to be the doctor he...
Hi there Scott. Are you in Europe? If you are there's a few good resources, like the "Lymedisease UK" facebook group. Lots of people there to discuss things. Also, a global facebook group, is "Lyme...
No worries, just trying to add something useful to the conversation. (:...
Iva, this post is from 2012. I'm not sure this person still frequents the forum. They were last active in 2012. That's 12 years ago. I doubt they will respond sadly....
It's probably out of reach with the fatigue etc you have now, but swimming is phenomenal for moving the lymph system as well, as well as exercise in general. Which is well, often out of reach for us...
interesting to see things all marked out like this. :)...
Hi Violet The above quotes from other members lines up with my experience as well. They hate the idea of losing their jobs due to accountability. They're not allowed to think outside of the box - or...
Seconded, astroman! Here's a little bump. Though I have concluded my dealings with lyme disease, this forum has been invaluable on my journey with chronic illness. I have learned so much that I might...
Thanks Jamistarr :) No, however I have gone undiagnosed for a long time and I am in the process of ruling out one of two syndromes. Then, sadly I think I'll be having surgery which is something I...
I thought I was imagining things but yes, this has happened. On the For Michelejc thread that I made, I made a post, after her last post several days ago that disappeared. It outlined that, companies...
No harm, no foul lol :)...
Apart from saying "clowning around" I didn't say anything else. I'm not one for insults if I'm honest. I did ridicule some pretty spurious statements though. I've said my piece and said sorry. EDIT:...
Hey Jamistar, Please don't worry about what they're saying. There's a lot of despair all over the place and quora is known to be a bit of a terrible place for advice. I'd steer clear of it if I were...
I am sorry then. I must have been mistaken. I apologise for saying you were clowning around as well....
That's hard and understandable. Please don't worry about it. I gathered from the way you were typing there was some kind of issue going on. I know that these withdrawals can cause seriously intense...
how familiar are you with computers? It's possible you could upload the results to a website like drop box and someone could view them from there? What is WDS is it, Worster Drought syndrome? I had...
Hey Jamistarr, I'm not very useful these days but I'll try. For the nerve pain, there are drugs like gabapentin and lyrica. You could ask your doctor about those. EDIT: I just saw you're withdrawing...
You're right Bailey. It should be a place where all of that stigma is irrelevant. I know I've been one of those people making threads here in absolutely dire straits - getting support that doesn't...
The Dude Abides made some very balanced points. However I beg to differ. You are being disingenuous. I posted the rules and it emphatically states "THREATS" not, "I feel down and depressed and wonder...
It's okay to be wrong and say sorry. I'll say that much. How would you feel, if you talked about your existential angst. Went away to fix things for a few days and saw a potential lifeline was...
Hey there. I just thought I'd remind you rule number one. 1. No discussion of any illegal activity or threats of violence (ie. threats of suicide, self-harm, or physical harm). Discussion of medical...
I just remembered that it's also becoming common, that Candida is becoming resistant to fluconazole as well as ketoconazole and the other azoles too. So this will hopefully be a solution to people...
Hey Destiny, That's tough to hear. Chronic illness, not just lyme is really, really a lonely and often harrowing place to be. I'm actually the same age as you. I'm still battling stuff - I don't know...
If you're taking it, you should take it some time after or before the antibiotics. Some people recommend taking them 2-3 hours apart from each dose of antibiotics, to prevent them from being wiped...
Palermo. I'm no longer a part of these groups, more so because I lost access to my old account than anyhting. However, it was used by several people I briefly spoke to in the Babesia Buddies group....
That's wild dude. I hope you recover swiftly. It's kinda whacky that something like this has cost as a dictating factor as to whether or not you have a better/more comfortable recovery. A chap...
You're welcome I think I may have seen Nauclea mentioned once or twice before. Brucea smells like chocolate - which is really nice but oh my word it's one of the most bitter herbs I've ever tasted....
Buhner recommends these in his books and they've proved successful for people in the facebook groups. They're noted in an offhand way as he hadn't had first hand experience with them. I think that...
Neem is also used in SIBO treatment just as a headsup. I think it can be used in Methane or Hydrogen SIBO but don't quote me on that. I have some from my round of treatment last year. I don't think I...
I guess I feel a bit odd posting here as I've concluded that I don't have lyme so I feel like I'm not of much use. However, your frustrations are understandable. This life comes with so many...
Thanks guys for the input and stuff :D Just giving things a little bump....
Hello guys. I don't post regularly, but I thought I'd post a useful resource here. Given that it's been a bit precarious with the Healingwell situation, a new forum has been made, named after our old...
Medication doesn't work and the symptoms are disabling. As I said, I can't walk around, without being short of breath, which could be the MALS or the constipation, I am unsure and it's incredibly...
Hi Emma, that's the diagnosis I have. Slow Transit/Colonic inertia, they're the same thing. I'm currently taking prucalopride but it's not doing all that much if I'm honest. I have linaclotide but I...
Howdy Girlie, how have you been are you still working in the kitchen? I hope things were stable/improved for you! :) Hey Andreas, I'm pretty gluten free right now in fact and it doesn't seem to help...
This is a very salient point you make. Too often, it feels like there's a power imbalance, brought about maybe, by the limited time that doctors are now given with patients - in the UK at least. 15...
Thanks astroman. You're absolutely right. Sometimes it's good to be able to take a step back and look at the bigger picture and explore other possibilities. I guess in that respect, it could be a...
Hey Garz you're right and I wish I had put this caveat in there as well. It's true they're not mutually exclusive! A very important point. It being a diagnosis of exclusion, I guess s the problem....
Sorry about the relative. That's rather sad. You make great points! I think a lot of the LLMDs do it from a place of wanting to help, same for fellow chronic illness sufferers with Lyme as well....
Hey folks it's been a while since I last posted here. I've still got a lot going on and I feel pretty ghastly most of the time. I thought I'd pop back in here just to let people know how I'm doing....
Hey Trav, it's been a long time! I sent you an email. I hope you and the goats are okay. I haven't been on healingwell in a long time and I changed my name lol. Would be nice to hear from you!...
Ocra powder is also a good binder if you're concerned about detoxing. It's nearly as affective as colestyramine. Bartonella babe on youtube is also a good resource for MCAS and other such issues....
I'm really sorry to hear of your circumstances. I myself am currently struggling to deal with my own health issues now, which are of uncertain origin so I am not sure how much I can help but I will...
Nope it has been a chronic problem since I worsened 4 years ago. I don't take licorice and I do have a penchant for licorice tea but I have abstained from it and all hot drinks for some time. (This...
Thanks From my bloods, my cortisol is normal but of course it has loads of variability throughout the day and I don't know the bigger picture.. I guess ashwagandha will do no harm I suppose. Hawthorn...