Update.... been on drugs since May 10..... been getting a little better every week since..... about 80% better..... 😀 Definitely was Lyme - No question about it........
Hi: Now have another persons Lyme test results.... this one is more fuzzy.... Persons only interesting Symptom was numb feet and lower legs, same on both legs... started 5 years ago - stopped 2 years...
Hi Big Update: In April, friend booked the earliest available appointment with my Lyme doctor.... a week later the IGenex Test 489 came back positive for Lyme. So had to wait till May 9th for doctors...
One question - Family doctor bloodwork last week - showed Thyroid function right on the line - right at the low end for Hormone production ( sTSH was high limit and Free T4 was at the low limit).......
Yes - Test ordered last night - should have results by Friday......for anyone else, it is good to check the box for test 489 and write beside it “do if the IgG results call for it”..... If you don’t...
Friend got the following IGeneX Test Results today......and been Fatigued for a couple of years...but it has become Extreme Fatigue lately - Often seems to be in a Brain Fog or a Daze 1/4 of the...
Hi All: I am all better......... My last symptom is gone... Last problem was my left knee..... had a MRI in Oct. and it was good....no long term damage and all swelling was gone. But my knee was...
Hi All: (Update) Have not been here for a while.... Been off all drugs since late spring.... and things are going good.... Only symptom that was left in the late spring was my left knee, which was...
Been off everything for a month - but still taking Celebrex for my left knee..... Have a good summer job and a boyfriend.... Life is pretty well back to normal... Think my left knee is a combination...
Will be on a 6 month drug ramp down....first drug to go is Malarone. So not actually starting the ramp down on the many antibiotics for a while.... will look at my program on the ramp down....will...
Hi: Long overdue Update....last new drug added was Minocycline added in Sept. 2017. Been taking the whole basket since then and slowly getting better.... Doctor said I am doing good and started slow...
Hi All: After 13 days, my rough time is coming to an end.... my swollen knee has almost disappeared and am feeling much better.... So looks like it was a Herx.... Now I am wondering when I should...
And what are the best "over the counter" anti-imflamatory to take for knee pain.. ?...
Hi: Forgot to mention one symptom from Sat. and Sunday - both legs felt like they were made of Lead. Not on any Detox... just antibiotics......
My worst knee just flared up BAD :( Last doctors Appointment was May 1st… Then took the last step on the drug program the next day on May 2nd. This was to double the Clarithomycin. The next day the...
Things are going good..... added Clarithromycin (Biaxin) a couple weeks ago to replace the Generic Azithromycin that I had a very bad skin reaction to........ had a Herx for weekend and a...
And Clarithomycin also ! Will be a 10 week rampup - one change a week. So either add a new drug at a half dose, or double an old drug dose or double the dose of the recently added half dose drug......
Hi: Appointment went well... Azithromycin is replaced by Clarithomycin and Bactrim... and also it was time to double the Amox to 4,000 mg a day and double the Malarone...on the question of Doxy,...
Well off to my Lyme doctor tomorrow for my second appointment.... See what he replaces the azithromycin - that I had a reaction to - with for a new antibiotic..... Doing pretty good... the knee that...
I have been on a good upward direction for 6 weeks..... Some minor dips along the way....but been trending generally upwards.....will take the bad with the good though.....life is back to normal...
Well - I was dancing around the kitchen yesterday.... and.... ....Played some lite basketball the past couple of nights..... and.... I feel NORMAL (I know this may just be the best time of the ups...
Hi: Amox. Dose is 500mg with breakfast and another 500mg with supper....then doubling in 2 weeks to 1,000mg with breakfast and 1,000mg with supper.... I only weigh 126 pounds....so it is a lot of...
Well cut Celebrex dose to half 2.5 weeks ago.... and then last week stopped taking Celebrex completely. Lyme doctor wanted me off Celebrex as soon as I felt good enough. Knee swelling is much...
Hi Girlie: Lyme doctor did not add Doxy. yet.... was wondering if I should ask him to add it.... .. since it looks like Azithromycin is out for me.......
Hi: Took last 500 mg dose of Azihromcin on Thursday morning, due to a red itchy rash, which became EXTREMELY PAINFUL last Thursday morning.......So just taking Plauenil now.. Red and itchy spots have...
Been on Azithromycin for 11 days now... 250 mg for the first 7 days and increased to 500 mg this past Sunday morning. (and also Plaquenil for 3.5 weeks) Lower legs get extremely itchy and a bit...
Update on treatment: ** been taking Hydroxychloroquine (Plaquenil) for 3.5 weeks and Azithromycin for 1.5 weeks ** Joints are doing much better....walked 2 km on a tread mill today and going to...
Hi: Yah - in Eastern Canada - NB...just a little more than an hour to the border.... I got out of the Maine lyme doctors office @ 9 PM....and all the pharmacies were closed in Bangor and we had to...
Yes - if my otherwise wonderful family doctor, does not help - I will find a Lyme "friendly" doctor up here - that will re-issue a US Lyme literate doctor prescription......as it is against the law...
Babesia - Yes - He is thinking of co-infections - So I assume this is the Malaria type drug that I am on now....then add first Antibotic at the start of week 3, then another Malaria type, then...
Hi - Got to Doctor on the 19th.....now on a 10 week ramp up of probiotic, some vitamins, Hydroxychlorquine, Azith, Malarone and Amox.... was on Celebrex before - so doctor also added Pantaprozole to...
Update :turn: POSITIVE :turn: 31kDa Epitope from IGenex today (Test 489) Any more comments....? Anyway - feel I am getting someplace....... Lyme doctor in 13 days...... (hope it is Lyme - I am 18 -...
Well. That is interesting..... Was all over Germany, for a week, about a month before symptoms started.... in both cities and countryside from the North (Berlin) and down to the south, almost to...
Well Cancellation worked....appointment is now Dec. 19th - instead of Jan 26th :) So thanks - yes it was a good idea..... Also - had a band 58 with a single +.... forgot to put that down on my first...
Just made an appointment for a Lyme Literate Doctor - but can't get in before the last week of Jan.... this is for Maine.... at least something to look forward to........
Igenex stills has my blood sample - so ordered the 489 test last night - to firm up the Indeterminate 189 test that had the 31 + and 41 + bands. Will post the results in a week or two when they come...
Hi: Bad joint pain started this June.... Test Results just back from Igenix on Test 188 and Test 189: IgG - called Indeterminate (31 +) (34 I) (39 I) (41 ++) IgM - called Negative (41 I) Igenix says...