An update... turns out I'm very allergic to Azythromycin. Within ten minutes of taking it I was having difficulty breathing and severe wheezing. I was able to stop anaphylaxis fortunately. Now it's...
Thank you so much everyone for kindly giving me your thoughts. So comforting to see so many have taken this combo with no issues. :)...
They will be doing an EKG one month in when it reaches therapeutic levels. It is a rare side effect but a scary one. Fluroquinolones left me in ICU so I think I just have to bite the bullet. It is...
Hi Girlie, was on Doxy and made moderate gains. It took me far but I plateaud. Specialist believes that this combo is the next phase to get me to the next level of meaningful recovery....
Yes I read extensively on it and the results are very promising. I just couldn't find anything on what people experienced symptom wise and if they had any heart irregularities. This Infectious...
Thank you RedLabel and acarined that is very hopeful to hear!! My pharmacist says my risk is low it's just scary to start something that has chemotherapeutic symptoms and such scary listed side...
Yes that's exactly the risk that concerns me. My heart will be closely monitored but the risk of cardiac death is worrisome to me....
I have just been prescribed a Rifampin, Azithromycin, Plaquenil Regimen for Lyme and Bartonella. This combination reads like it could have potentially serious to fatal side effects. Anyone on this...
As a child I had Guillain Barre syndrome caused by the Epstein Barr virus. Unfortunately I also have apoptosis dysfunction causing issues with my T Lymphocytes. I can have severe infections and be...
Hi, Thanks for the info. As for cancellation lists my specialist does not have one. The good news is the other ID doc who specializes in Bartonella and Lyme has an opening January 11th. This doc is...
Yes, it's a nine month wait. I am sceptical of the efficacy of supplements but willing to research. What would you suggest? Thank you. :)...
Update: Me and my meat suit have been accepted to the Lyme treatment clinic. The wait is none months but medical professionals are acknowledging how sick I Am. That feels good. Now it's trying to...
I definitely will!! :)...
Thank you for your support everyone. I had been reading through these forums a lot before joining. I agree I likely still have Bart, the rash is pretty unmistakable. Hopefully this test will give the...
I am still waiting for my treatment plan...hopefully I will hear back soon. My Bart treatment was based off of consultation with an infectious disease doc. I've had 5 specialists and a team...
Thank you for the double welcome! I am fortunate that my specialist is lyme and co infection literate. I'm awaiting his triage decision on when I begin treatment. He believes Lyme is the underlying...
My journey started in November 2015 after getting diagnosed with Bartonella due to a cat scratch. I have always had severe autoimmune issues so this immediately affected my thyroid, liver, heart, and...