Thanks for all the food for thought. I am definitely way past the expectation of a magic bullet phase…I think that was 2008. At the same time, hope for cure has not left me. I think my last inner...
I had the same issue with Cefdinir. Pricey and not covered. Had to pay out of pocket and did not really experiment much with it. Seemed to clear me up fairly well but still going…...
The idea is that the persisters come out of their low metabolic state when u go off the drug. Then u hit them again until your herx subsides. Stop and wait for them to come back and hit them again....
Props from here to Garzie too. I don’t come often but, whenever I visit, usually Garzie has put together thoughful and helpful posts. Def a pillar of this site....
Anyone tried this, as Dr. Joseph Burrascanno and Pamela Weintraub did? I also see Dr Marty Ross is trying a 5 on and 2 off pulsed therapy with Cefuroxime…unsure of his success or lack of. In have...
My thoughts are to skip those guidelines. Reason being that the more BS we post, the more that real information gets diluted. Plus, to a real patient, reading that is somewhere on the annoying...
I agree Jim Admin is not a person. And definitely no person who actually has, or has had, a Lyme infection would describe a Herxheimer like that. Claude, Chat, Gemini...one of those....
I used to take Ceftriaxone 2gm IM shots. I would reconstitute it with a bit less water because it was a lot of shots and a lot of volume. I would have taken IV but it is hard to put an IV in...
I saw him for a few years way back in like 2010 era. He had a lot of battles at that time with cancer of his wife and then daughter as well…and it was taking a toll. He was still helping people...
I am not yet cured or in remission but might as well share because I have tried a lot of stuff over the years… Closest I came to remission was symptom free for about a month. I had been cycling...
I am at about 4 years of similar symptoms. Metronidazole and Disulfiram both caused neuropathy with me and it only partially improved with cessation of the medication....
Amoxicillin is a strong killer of Lyme. Especially if u haven’t used it for a long time. Plus, u said u haven’t been on abx for months, so could be a big hit. When I haven’t used Amoxicillin for a...
Garzie, prior to Dr J’s protocols, I had a bit of neuropathy in my R fingers and foot, from using Flagyl for three weeks straight. It never completely resolved. I would get an uptick in my neuropathy...
He used the same protocols for me about 9 til 7 years ago. Actually I learned a lot from him…well worth the trips and calls. It started 3 weeks on/one off. Next is 2 weeks on/2 off. Then one on/three...
U can also cross the border to Mexico or South or Central America. Or a lot of European countries also don’t need a script. The big chain pharmacies in Mx might ask for a script. Smaller ones don’t...
Amoxicillin, Pen-V, Bicillin, etc all make me feel better within hours… Excellent drugs for Lyme. Amoxicillin hard on the guts but works....
If u want doctors and nurses to give u their attention and take u seriously, u cannot mention Lyme Disease. Maybe a GP that u have gotten to know is different, but definitely not an ER doc. If they...
Definitely could be. If u haven't used it in a while, or any other abx for a while, it can definitely cause die-off. I have used it in the past and it was definitely active against my infection,...
Ceftin/Cefuroxime is a great Lyme drug…possibly the best I have found. Two drugs have kept my life together for several years, and the first one is Ceftin. Unfortunately, I have years of trial and...
It is safe to presume that Kim Lewis is a very intelligent man, who is well aware of the benefits and limitations of the drugs and the bugs he is working with. He is not going to go into the weeds of...
Careful not to spend too much money on that. It sounds untested and unscientific....
Girlie that is awesome…I didn’t realize u had been off that long! Are u just getting by without abx or are u cured? Or at least completely symptom free for now? If u ever need abx again, the usgobuy...
Girlie, I just edited my post. Yeah u could probably use UPS but they are more expensive. I just used the US Postal Service. U can track it and they will hold it for a certain amount of time. U can...
U can ship meds to the usps office in Port Angeles. Ship it to the address and General Delivery. U don’t need a prescription to walk it back onto the Coho or any crossing. Just leas than three month...
Yes Benzathine Penicillin. Bicillin LA was or is a Pfizer brand name but lots of companies make it. It has been years since I bought it but some of the companies say Benzylpenicillin on the box and...
I would disagree. I would vote that u just have a Lyme infection that u cannot seem to get rid of. It is not always Bartonella…it is often just an infection that, for some of us, is VERY difficult to...
I should note that it was a good drug and rested my guts but did not cure me at high doses for an extended period. 2.4 mu every 2nd day for about 2 months. Crazy die-off…I was dizzy all the time with...
Just one thing of note here, in case anyone lives near Mexican border or travels there. I used to buy it in Mexico for anywhere from $1 to $5, depending on the Pharmacy. Some of them will ask for a...
I agree it is just a brand name. I have never noticed a difference with a few other Sacc. Boulardi. I buy the 10B from Renew Life lately and it works great....
RIP to a real life hero and the kind of guy we wish there were more of....
Great news just to remind us there is hope for those that cannot use Disulfiram. It is a drag that this drug seems years away, if at all, but at least we have some really great people working on this...
isitlyme you are an “anti-vaxer”. Like my crazy anti-vaxer in-law, you are forcing in a discussion on vaccines where it doesn’t belong. This is actually a discussion forum for Lyme Disease. Lyme...
I have tried Modafinil, Dexedrine, Piracetam, Phenylpiracetam, Adderall, and those are all I recall. Piracetam doesn’t do much but the rest all hit pretty good unless u are herxing. I have not found...
Great story. Nice to hear the real and full success stories. Thanks...
Interesting to read but I am also cautious about following the lead of Dr Horowitz. I would like to see stats on how many of his patients get C-Dif. Too many oral antibiotics. Plus all the...
That is great. Is sparkling Dsf the same as “liposomal” that I keep reading about? I had to stop again due to neuropathy. The enteric coating seemed to make no difference....
MartinK good to hear. I am in a similar boat. I am only at about 2 weeks of 50mg every second day but I am having days where I feel strangely normal. A couple of die-off days where I was rugged but...
That is a good story MOM...so far. I would have truly had a hell of a time dealing with my Lyme infection at a young age. A young teenager is not resourceful enough to get meds from Mexico and/or to...
I second potsnpans last post. Can’t recall all the previous arguing but that is a sensible post....
Cignet. Glad to see u back here. I agree that this will all be very different soon. Rajadas has changed the game and others are changing things greatly as well. I can feel the hopeful shift and the...
RainyCloud I am sure u won’t get evicted because the landlord thinks u were drunk. Just tell her u took a prescribed medication and had a crazy side effect and now u are better. Don’t quit the forum...
Jesus RainyCloud. Time to take a few days off the meds. Just lie on the couch and watch the Star Wars series again and don’t answer the phone. Just go for walks to get milk and cereal. The silver...
Rainycloud any updates? U might be laid out feeling the world is black right now but update us when you can function a little....
Nice one RainyCloud. Pretty aggressive schedule. Will cross my fingers for u!...
Just catching up here. Jovalyme hope u are getting some relief. I was pretty down when neuropathy hit me and I saw my hope for cure slipping away. Not over yet...even if Zinc and enteric capsules...
project - The symptoms u describe are classic peripheral neuropathy and not Bartonella. U need to stop taking the Disulfiram if that is truly happening to u. Tell your doctor as well...although he...
$16,000 is way too much. She can see an LLMD in the States and get Amoxicillin or Doxycycline for almost free with a Walgreens membership. Or cheaper to just fly to Mexico and have a vacation and...
Hi RainyCloud. No word yet from the site u recommended. I am not sure how u establish all these contacts so well and I get silence? I emailed u. I am wondering if u have ever used any of these sites...
Roger that Rainycloud aka panda. Actually I was so busy yesterday and hadn’t email the new contact yet. I didn’t screenshot it or anything because I didn’t realize it would be removed by mean...
That sounds great pandasmile. I will definitely mail her tomorrow. A little pricier for sure but 250gms should last about a month. I have IV supplies here or saline and syringes here, so I would be...