When I test, which is about once a year now, I always do so with Igenex. After reading so much, I came to believe the immunoblot is about as sensitive and specific as I could hope for with Borellia...
That's interesting, saraeli. Good information from experience. The nano-particles are why my LLMD had me use Argentyn-23. As Garzie pointed out, don't really know why they are considered safer as...
Thanks, Garzie. That's why I posted about it. There is a lot of conflicting information, like so much of Lyme treatment, out there. In the past, I have read so much written about how silver helped...
There used to be a lot of conversations about Argentyn 23 and other forms of silver on this site. It has been a while since I have seen anything about it, or maybe I missed it. Argentyn 23 played a...
Also heard back from The Dude. Like so many, and as astroman mentioned, sometimes you need to drop and just get through. I can relate to that, as can so many on this forum. Good news is he is out...
By chance, I sent Dude an email yesterday then came across this today. Hopefully will get something back in next few days or so....
I should have mentioned saraeli, who has answered so many questions and helped so many. My apologies but she is appreciated. ....
Garzie’s information, research, posts in general, have been invaluable for so many. While I don’t post much anymore due to frustration with situation, I still read and see how much information he...
MedHelp. Wow! That's the first site I was on for Lyme 11-12 years ago, and there was good conversations, ideas, experiences and thoughts. Over the years, I noticed it became worse and worse. Had no...
My stomach has been a problem for years, even when not taking antibiotics or treating in any way. GERD is close to constant. It does get worse when treating, despite taking probiotics. As far as your...
Hey Garzie - The doctor that ordered the tests were my primary care doctor, who is more familiar with the "Lyme world" than most any other primary care. When I saw the LLMD I see about 5 months or so...
My doctor had me take another round of Lyme, Bart and Babesia tests in October since it had been a year since last tests. All three were positive again (Borrelia, Immunoblot IgM positive -...
Your theory on all makes sense. Some of it I had considered and some of it was a new thought. Thanks. The lack of a controlled study was one of the things I had not considered or the people who may...
Garzie - Very interesting information is contained in those links you posted. Thanks for doing so. One of the items that surprised me was the "non-responders" being at 41%. I'm surprised it was that...
I’ve seen 3 neurologists, including one at Vanderbilt U. Medical Center. After I have mentioned Lyme to them, none have even reacted to what I said. Like I never said it. I’ve tested positive for...
That’s good. Rules out kidneys....
Have you had a comprehensive panel test? Based on your symptoms, it would make sense....
Thanks for the answer, Garzie. So much is going on, I am trying to put what might be causing what together to figure out a total treatment plan, post no help stem cells....
Question is all in topic....
I tried Botox for migraines and tightness in shoulders and right side of neck. Did nothing....
I feel some internal, but my hands shake some when I lift something or even hold a oximeter on the end of my finger. If I lift a gallon of tea and hold it out a little, they really shake. Also weak...
As mentioned, Lyme and company can cause autoimmune type symptoms or, as in my case, indirectly led to autoimmune because of Epstein Barr being reactivated a number of years ago. At least that is the...
Thanks, WalkingbyFaith, for the suggestions. Seems while the stem cells didn't do anything to help, the tremors started before I had stem cell therapy. They have been growing in strength, it seems....
I use dumbbells also. In addition, push ups are a large part of my workout for strength, though I had to stop them for a while and other weights after the stem cell therapy. Every step you take...
Thanks, Rampage. Three weeks now with no change. Maybe it will surprise me. But your words are appreciated. Interesting you worked in a place that did stem cells....
Garzie - That’s great you have improved so much. Are you staying at lower weight with higher reps? It has to feel good to be able to workout more. Great stress reliever and sign you are moving in a...
Legs feel heavy but not weak. Blood sugar is 82-85. Sometimes I'll feel like my insides are tremoring, like an anxiety....
I've noticed the tremors I have had seem to be a bit worse as of late. It's not like a Parkinsons' which usually occurs when one is at rest. If I lift something heavy with my arm and hold it out,...
Garzie's thought on the Bactrim seems most logical to me, not to say others' thoughts aren't valid. I've learned most anything in the antibiotic realm can cause a reaction with me and Lyme....
I had read that before and still wonder if that is what makes me feel "off" and more symptoms when I take Claritin (10 mg). This has happened when I've been treating Lyme and also when I haven't....
I may have been mistaken when I mentioned haematopoietic. All I knew was it was from umbilical cord and could have confused the terms. What I do believe now, unfortunately, is they don't seem to have...
dcd -Thanks for your response on this and the information. I believe it was mesenchymal but will ask. Felt horrendous the first week, which could be expected. The man who runs the clinic had told me...
Garzie - Your words of wisdom are good. As always, and as we all do, will just keep looking for answers. ANd I hope good ones come your way....
Thanks, again, for your responses. My biggest concern is something that can happen that was never mentioned. It's called GVHD (graft versus host disease), which can cause all the symptoms I am...
Like always, thanks to you all for your helpful words and support. Hope I return it every chance I get. Patience is needed with this, but that is something I ran out of a long time ago with all the...
I can, almost relate to astro's "If I stack them all in one place, it would be 1.5 feet thick." I have a paper fol;der that is about a foot in depth. Some of the tests go back to 2012. Also have...
Rampage - Thanks for that information. Hoping the stem cells are causing an uptick in symptoms before improving things. Can honestly say this is as about as bad as I've ever felt or close to worst....
The one who runs the clinic that did it said it could take a few days to feel any better and even feel worse as the initial reaction is the procedure causes more inflammation. That would loski's herx...
I have not been online because of having the stem cell therapy last week. It may be early, but at this point, I'm not able to function much and so tired. Migraines are beyond anything I've...
I see you did not receive any answers, so this should bump it up in case someone might have an answer. Unfortunately, I don't....
I found when I was taking sida acuta, it seemed my hair loss got a bit worse. But at the time, I was also taking cordyceps and houttuynia. Looking back, I should have stopped one at a time to see...
astroman - Do you ever get migraines with or without the brain fog?...
I appreciate your words, pinkblossom. I decided to go with the full stem cell therapy with exosomes because of so much happening between autoimmune, Lyme and company, peripheral neuropathy,...
I'm glad you posted it was from 2019, Saraeli, because I didn't notice the date and was confused, since I know you are doing better. Detoxing has always been something that throws me because of...
All your positive words are appreciated. Nervous about it, yet after researching for about 7 years and how I feel, figure it's now or never. Dude - I'll explain more in an email response to yours....
Will do. I’m going into this with no expectations. Have become that way. But I wouldn’t be trying it if I didn’t think it might work. The science makes sense. Let’s find out how good science is....
I didn’t ask about that because I read the actual letter from the FDA to Vitti. It seems like it was more of a technical use of terminology and intended use of umbilical cord stem cells. Wasn’t a...
Girlie- Your story is spot on, and I’m so glad it worked for you. Anything is a financial risk, but remaining sick with no hope is a bigger risk. It’s like the money I spent on the Biologix Center....
Very kind of you, Garzie. Have played ping pong with this for years now. All I can do is try. Even a 15-20% improvement would make life more livable as I'm concerned about my legs weakening and the...