Thanks garzie!!! Just looked up Iberogast, that is interesting so i will definitely be lookng into this more, seems to help w/ motility, thank you!...
Hi Mike, I'd just like to add to this. I have an autoimmune arthritis called enthesiits which affects the tendons around the joints. I'm not suggesting you have that, only using this for illustrative...
Yea its weird. No change in my autoimmune issues on larazotide. In fact, it flares my enthesitis (autoimmune tendonitis). My enthesitis is weird, if I put the wrong substance in my body, it flies...
Read thru your posts, super interesting. This makes total sense, thank you for sharing! Explains a lot. I’ve just now realized the acne and white bumps I’ve had on my forehead all these years that...
Good discussion there Garzie. I’ve tried extended fasting and I naturally IF, I’ll often have only one meal a day, or just breakfast and lunch, w little to no snacking. It’s just how I eat. I do not...
Great discussion guys Appreciate all the feedback. Garzie - The link you provided was interesting and definitely helped me understand better how MMC dysfunction keeps archaea out of the SI. It's...
Very good points on low carb diets being fine for the healthy, but maybe the less healthy have a more difficult time re-adapting to normal food. Makes sense and makes me feel a bit better. I spent...
Hi all. I got a lot of responses with some great information! Some of the things I had tried, and a few of the ideas were new to me. I will be looking into each of them. Unfortunately given the...
No, tachycardia + neuropathy = dysautonomia (often hyperandrenergic POTs). It’s not a problem with your heart, it’s a problem with the autonomic nerves that control it, which are the same type of...
Hi guys, been a while. Have been dealing with severe abdominal pain and constipation since May 2024. It appears I have IBS-C with a positive methane breath test. My neuropathy is already extremely...
np garzie. This is the only brand i have experience with https://www.amazon.com/gp/product/B09H8MR1ZM/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 ...
Garzie, if you dont want to try a peptide, which i understand, the two things which I found that actually do help my tendon inflammation are boswelia serrata and MSM. Both had a noticeable impact. I...
I would look into TB4/TB500. It’s really an incredible little peptide and I’ve never heard of a negative result with it. I’m pretty risk averse and feel very comfortable with it. It’s a naturally...
Hey man, sorry to hear about the flare. That's a lot of antimicrobials so I'm not surprised you flared. I'm similar to you, anything that kills bacteria sends me into a tailspin. Very frustrating and...
How's the cyclosporine working? neuropathy still materially better?...
Burning skin is called small fiber neuropathy. It is immune-mediated. I have it. IVIG is the only thing which has helped. Ketamine does not cause herxheimer. I found temporary relief with it,...
I'm in the same boat as you Geralto, whenever I try to treat w/ antimicrobials, be they antibiotics or herbals, my neuropathy goes nuts. The only explanation I have found is that the release of LPS...
Sorry to hear this RW. Did you get cord blood? Or mesenchymal stem cells? Most stem cells products are mesenchymal, I’d be surprised if they gave you hematapoietic stem cells (blood product)....
I have psoriatic arthritis which causes wide spread tendonitis basically everywhere. The medical term for it is enthesitis . I’d be surprised if yours wasn’t from some form of spondyloarthopathy...
Funny I just started the Primal Trust! I hope it helps you (and me) Mestinon really helps my POTs. Its the only thing keeping me functional and has very few side effects and is cheap. It increases...
Yes. Sent me a direct email you can see my email on my profile...
Can you describe your pain when it started? What did it feel like and where was it? Is it predominantly in your knees or does it migrate to other places? Is your lower back affected? Does it ever...
I dont want to say whether you have lyme or not. I do not know. I'm also sorry if I upset anyone on here because they've been gaslit enough. But the sad truth is that it's very difficult to know...
Hey Eric H. Long time nerve sufferer here. I can confirm that everything you are experiencing is tied back to neuropathy. A few points: 1.) You need an EMG and a nerve biopsy to confirm what type of...
I am prescribed mestinon, which increases acetylcholine, for my POTs (which causes bad brain fog). It definitely helps quite a bit w/ a POTs flare....
Small fiber neuropathy. Go on IVIG for sure. Nerves can heal quite a bit. 100% in some cases is hard but you can recover most of it....
sure do you have reddit? dm me at jkuhn89...
I have psoriatic arthritis which manifests as severe tendon and muscle pain. In a bad flare it could feel like my muslces were being ripped off the bone. There are probably some old posts on here of...
I second Runningwild's suggestion. Sjogrens is seronegative in about 50% of cases. The only dispositive way to confirm it is by lip biopsy. I estimate about 50-60% of people respond. It is a miracle...
I havent tried it yet, I keep meaning to, but some people w/ mitocondria issues are reporting benefits w/ SS-31 peptide. You can buy it from China. I havent done a deep dive on it but it seems to...
Peroneal nerve injury means you injured that specific nerve, which is a type of peripheral neuropathy. The peroneal nerve is a large fiber sensory-motor nerve that affects both pain sensation/feeling...
It means you have large fiber nerve damage. It won’t tell you the cause, although sometimes they can tell if it’s inflammatory/autoimmune. Unless it was caused by a known injury or some sort of...
I just checked out the integrative peptides product, I’m very skeptical. Oral capsule, highly doubt it’s bioavailable that way. Sounds gimmicky. You need IM injection. If you order from one of the...
I don’t see why there would be any contraindications. Completely different mechanisms...
I just ordered cerebrolysin and cortexin. Hoping it makes it past customs. May I ask where you ordered yours from? Curious about the best sources These are two great peptides for neuroinflammation....
Hi RW, and everyone. It's been a while. Garzie hello my friend, saw where you asked how I'm doing. RW, I think the shortness of breath is likely autonomic. I too have developed this, quite severely....
Hey all, long time but happened to see this post. I have used TB500 extensively. It is one of the safest peptides out there. It's the analog of TB4 which is naturally occuring in the body. It is...
I'm sorry youre dealing with this Astro. How low exactly are your IgGs? Sorry to ask and you dont have to answer, but do you have insurance? Reason I ask is IgG deficiency is something insurance...
Hey rainy, ah yes your message did go into spam lol! Just seeing it now. Thank you for the response! I did buy the mots-c but i have yet to try it, maybe will experiment with it soon. Will keep ya...
Hey rainy! Good to hear from you. I’m not sure I’m following, maybe our wires are crossed. But I’ll clarify what I meant. As you probably know, IVIG is literally other people’s antibodies. They pool...
Actually the IVIG antibodies do not, to my knowledge, cause any kind of thyroid issues. It's a good question, since you would expect that exactly what you outlined is what would happen. But I've...
Hey RW. I wouldnt worry about Hashi unless youre having a weird thyroid readings. As other's have poined out, IVIG often raises your TPO antibody titers. Mine are positive on IVIG....
I agree with garzie, the difference in the last 2 tests is very small,within the normal standard deviation from day to day in these tests. I would also say that IVIG drops your WBC significantly. I...
What is going on with your right knee and ankle? what are your overall symptoms?...
Where exactly is the pain and what does it feel like? You’re having pain in other areas too like your testicles, no?...
Agree with Garzie's overall points, although one thing I would add, having been through both SIBO and gastirtis separately. The functional medicine school of thought does seem to implicate low...
It's likely interstitial cystitis. Do pelvic floor exercises (kegels) and buy some prelief...
Hey mark, I knew a lot about nerves back then and what causes them to degenerate, but in hindsight I did not know much about how to heal them. My nerve journey has not been fun. Mine is autoimmune...
Hey sdarrah, I did make some minor improvements initially, and felt I was on the road to healing myself, but unfortunately it didn’t last. I went deep down the rabbit hole on healthy eating, positive...
If you recall I was at the spero clinic in Arkansas for 3m They use the ARP and sanexas. You use them daily. Unfortunately will run you like $40k for 3m The ARP really is a cool machine. If I could...