Guys, Thank you very much for all your responses and support. I do not want to appear ungrateful to anyone here offering advice and support. All of the responses here make rational sense and as you...
Gold horse good to see you. Has your PSA always been .04 without the < from your lab? If so what lab do you use? Congrats. Thanks...
Actually, I just updated the last article which was from Epstein at Johns Hopkins. Read what he says it has zero chance of metastasizing or causing death if it’s OC G6 at prostatectomy. Maybe he was...
Like many others before me this does look like recurrence...How can it be anything else when you don't have a prostate. However.......since my Labcorp test showed PSA and given my diagnosis of OC G6...
Thanks for posting Djin. I figured the difference was within tolerance of the test. So if I settle in the middle it is still 0.02 which is unsettling. I would think it should have been undetectable....
Nano, I see you had a liquid blood biopsy....what did it show. I have read about them....
pasayten, Glad to see you are doing well. Do you doctors have any interest in doing a more recent PSMA-PET scan since it has been 8 years since your last scan? I am not trying to freak you out, but...
Nano....no problem....obviously we all have high emotions sometimes...After getting caught up in all the hype "let's not call it cancer" about G6 and being where I was for so long, I was pretty...
Hi Nano, I don't see where you have ever shared your post-op stats. Can you tell us what your post-op pathology showed? Also, what imaging did you have in Europe that you can't get here that showed...
Nano.....as I was at dinner tonight thinking about your comment that you don't believe the "decades" statement for the Dr. at OSU.....it dawned on me that I have had this cancer for a minimum of 25...
NanoMRI, I starting looking for issues describing benign tissue...can't really find any....I don't know...maybe I was given a bunch of lip service at OSU....I assumed they have seen a lot..... I...
Hi All, I just got back from my appt. with a new oncologist at Ohio State University. Here is what I was told. They did not feel I was having BCR. Thy ran a PSA test before my appt. and I had the...
I keep hoping, but as far as I’m concerned, I don’t have a prostate, and it doesn’t matter what lab I go to none of them should be able to read anything. They all should be undetectable at no matter...
All my PSA test up to 15 years were <0.03 That was the lower limit of my lab. This year was when I switched to LabCorp and got the .019 and then retest .021 Who knows if it has always been at this...
Dalota, Thanks for the words of encouragement....I am starting feel a little better. I emailed Dr. Walsh at Johns Hopkins and he said not to worry about it....I think he has seen a few things in his...
I'm in extreme panic mode....all the old feelings of initial diagnosis are rushing back in.....I know a lot of people would trade places with me and I fully appreciate that....but I am doom and gloom...
Sr Sailor.....I know.....but I think that is a far out possibility.....I have made an appointment with an oncologist at Ohio State here.....I don't know what else to do.....Organ confined G6 is not...
Yes I am. I mean there should no detectable PSA in my blood. Granted the only PSA test I ever did not go below .03 so all my tests came back <0.03 for 15 years until this year when OhioHealth...
After 15 years of <0.03 at OhioHealth I had to switch to LapCorp because OhioHealth started using Quest, which gave me a result of .04 on my last PSA 12/10/2024.....So I went to LapCorp I just got...
This was in an email my pathologist sent me from Johns Hopkins. It might explain why those of you with a low but steady PSA comes back after RP. "The prostate is not a perfectly shaped organ and...
Thanks for the help Robert. I went online and found a place to order it from LabCorp and went at lunch.....now the waiting begins...I have never had a PSA done at LabCorp so we will see what happens....
Do you if it is test number 140731 that you ordered. It says the range for that test is 0-4.00...
I did...thanks....they don't offer the ultra sensitive test........
John's Hopkin's reviewed my slides from my surgery in 2008. They concurred with the original diagnosis. No change. Still a Gleason 6......it is interesting with all the changes to Gleason grading...
Hi Djin, Hope I did not come off too strong.....I agree with what you are saying....I am surprised that these are missed so much as well. I know in the 2014 ISUP they decided to upgrade all...
This paper does not make much sense to me. "intermediate risk (Gleason sum score <7 [3+4, 4+3]" (4+3) is not intermediate risk.....and <7 is not intermediate risk. 3+4 is intermediate risk Cribiform...
Mattam, Congratulations. I am elated for you. Thank you for dropping me a note and for the encouragement. I am concerned but thinking it is another reporting error like I had 8 years ago when I got...
What lab did your PSA test? Was it Quest?...
2016 .04 (Quest) Immediate retest at Ohioheath was <0.03 2016-2023 <0.03 Ohio Health 12/2024 .04 (Quest) OhioHealth outsourced labs to Quest I have found numerous other people who had this happened...
I had my surgery 16 years ago in 2008. I was a G6 with no adverse pathological features. All PSA's have been <0.03, except for 2 from QUEST 8 years apart that both showed .04 which were the wrong PSA...
Seebee. Was the <0.02 using the quest post prostatectomy test and not the PSA Total test from Quest....
Genright. Yes this has happened twice. This is the test I had from Quest PSA, Total Not the: PSA, Post Prostatectomy Starting in 2008 <0.03 for 8 years Ohio Health 2016 Quest .04 Was for life...
I just had my 16 year PSA and it was from Quest. It came back at .04.....no less than symbol.....For 16 years I always used Ohio Health and it was <0.03 Just by chance in 2016 an insurance company...
OK...I'm an idiot.... I had a life insurance physical back in 2016 and they used Quest Labs for my PSA....quess what? Same result back then. .04 no < sign. Here is the thread.........
I found out that quest has two different PSA tests last night and this one’s called a total PSA. They also have a post prostatectomy PSA and I found other people online who came back with the exact...
Great news Goldhorse. I just got my 16 year PSA and it is .04 It used to be <.03 just switched labs to quest from old ohio health. Looks like I am having recurrence....
Jmadrid. Where in the world have you ever read “many if not most” G6 are upgraded. That is absolutely factually untrue. The upgrade rate for all grades is approximately 35%. Not “many” and not even...
ASAdvocate......... How do you know it was a personal favoritism matter? Maybe his wife was right.....you have no idea, none of us do, and are making assumptions. It also appears that the...
I figured my comment would draw these responses. So, here is how I see it....J.H. pathology department is how would I put it, extremely compromised now. It is obvious that when a pathologist at J.H....
No sense in sending slides to John’s Hopkins. Epstein is not there anymore....
duke48 Posts : 208 Posted 2/24/2024 8:35 AM (GMT -8) From what I've read on this forum Epstein brought this on himself. Don't blame the university. What an ignorant post. You know nothing of what...
Latest PSA <0.03....just like to post to offer the new guys hope..... I still check in to see how everyone is doing.... Hope the best for all....
Just got my 13 year PSA and <0.03...... Still feel for and understand those who struggle with this but also want to encourage others that good results can be had....
12 years.......
Just wanted to encourage the newly diagnosed....I was diagnosed at 43 years old and had RP. I fully appreciate our brothers who are dealing with advanced disease, but as I said....it would have been...
Sounds too good to be true 15 out of 16 men cancer free after a year...but if it really works through targeting like they claim...you could be treated with no side effects and then proceed to AS...
This is not "focal" therapy....the nano-particles are given intra-venously (sp) and then using a receptor target circulate through the blood stream and attach to the cancer cells when found. It is...
If I were diagnosed today with low or medium risk PCA I would seek a trial out from these guys... https://nanospectra.com/technology/ I don't know how the news missed this....I am a very skeptical...
How do you know your not <0.01....you are <0.05....if 0.05 is your labs limit then you could also be <0.01. I have always been <0.03....that is as low as my lab goes.....
Sent you an email last week...let me know if you did not get it....