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ddyss

HealingWell Forum
>
Member Profile
Display Name
ddyss
Profile Created
4/25/2017 4:41 PM
Last Seen
12/22/2021 10:03 AM
Total Posts
500

Last 50 Posts

New diagnosis

Hello My Dear Friends, You guys helped me through very dark times indeed and I really am thankful to all. I am sorry I have been gone a while. I have good news to share that my latest PSA came in...

12/21/2021 6:25 PM

Prostate Cancer
Inter-operation Frozen Sections (IFS)

I would support the idea of IFS. My surgeon did one on me. It came negative and margins were negative. Based on my reading jury is still out on how accurate it is but most large institutions do it -...

11/22/2019 11:29 PM

Prostate Cancer
PSA 39 ng/ml..scared to death but what should I do?

my initial PSA dropped after taking a 3 week crypro. My biopsy showed I had prostities. You should try some strong dosage of antibiotics to see if it brings the PSA down. One thing is for almost sure...

11/18/2019 12:00 PM

Prostate Cancer
Post Op Path - looking for information for next appointment

I would not wait for it to show up on PSA reading, I would go for Radiation now. Yeah, there is lot of discussion,you just don’t want to be on the wrong side of the statistic. At least you will be...

11/18/2019 11:43 AM

Prostate Cancer
11,000

It’s great to have a such a nice and active sounding board for advice as yours. Keep it going. Thanks for being here and making HW a better place....

11/16/2019 5:44 PM

Prostate Cancer
SRT Done!

Congratulations. hope your Pca story ends here....

11/13/2019 10:20 PM

Prostate Cancer
Report from First Urologist Visit

Congrats on a negative DRE. That’s a big sign of relief for sure. Looks like you are in good hands - literally :)...

11/10/2019 11:01 PM

Prostate Cancer
HolidayHill first post from another thread

Holiday hill thanks for posting, a year back when there was another tall gentleman here , getting free PSA Test was a popular advise given to many who came by for advise before a Biopsy , but for...

11/8/2019 1:55 PM

Prostate Cancer
Who I am!..

Welcome back !!!...

11/5/2019 10:49 AM

Prostate Cancer
OT: results of dietary changes

Way to go!!! Amazing , this gives me much motivation to keep working the diet....

11/5/2019 10:45 AM

Prostate Cancer
More Experienced Doctor or Earlier Appointment?

From my experience , it’s uncomfortable (not the correct word) to switch between doctors within the same office/partnership. So if you go with the younger one now you may find switching to the older...

10/31/2019 11:36 AM

Prostate Cancer
More Experienced Doctor or Earlier Appointment?

I would wait but get the PHI/free psa test done between now and then....

10/31/2019 10:41 AM

Prostate Cancer
47 Years Old - PSA Test Result of 3.3

Your mild ED symptoms are a concern - Esp with above than normal PSA for your age. I had mild ED symptoms as well. Many urologist somehow either don’t know or don’t prescribe the PHi test - it may be...

10/30/2019 2:21 PM

Prostate Cancer
47 Years Old - PSA Test Result of 3.3

I wouldn’t put too much weight into the “PSA of 4 and under as normal”. At 48 my pSA of 3.2 resulted in a biopsy that showed intermediate risk prostrate cancer. Your generally trending higher so...

10/30/2019 12:56 PM

Prostate Cancer
Salvage Radiation Advice

I would get Radiation started sooner than later ... this is not a disease to gamble with. Waiting is a dangerous game Esp with a clear trend unfortunately....

10/21/2019 1:33 PM

Prostate Cancer
surgeon's qualifications

Thanks to finding this board - I switched my surgeon (who did my biopsy ) who had only 250 under his belt to another doc who had about 2000. So far I’m happy with that decision. You only get one...

10/14/2019 7:34 PM

Prostate Cancer
CBD oil trial-- have any of you used it?

Nice Bob. Let us know. I have been using the cbd oil roll on with me - Its working for me for mild joint pain that I have in my elbow. From what I have researched- the sub lingual may work better....

9/20/2019 10:43 AM

Prostate Cancer
Getting off anti-depressants

Prato Good for you ! I am hesitant to wean off as I really like the way my days go - although I am on zyban. Not sure what long term effects are for using zyban....

9/20/2019 8:01 AM

Prostate Cancer
Purdue Pharma, at center of opioid epidemic, files for bankruptcy (OT)

For what it’s worth ... Absorption of CBD When Ingested or Taken Sublingually Without doubt, the most common method of administering CBD is orally, or via the mouth. It is quick, easy to dose, and...

9/19/2019 8:12 PM

Prostate Cancer
POST RALP DEPRESSION

Peter , I was responding to fran’s Original post as I didn’t see him having an implant. Fran, you don’t even have to see a psychiatrist to get a zyban , your PCP should be able to get you a script if...

9/19/2019 1:05 PM

Prostate Cancer
Purdue Pharma, at center of opioid epidemic, files for bankruptcy (OT)

Billy bob I’m glad you are back and I love your posts. Yeah you are right , weed overdose deaths are rare but , weed leads to other death , it’s a very slippery slope. You go from weed to more potent...

9/19/2019 1:00 PM

Prostate Cancer
POST RALP DEPRESSION

I’m in the same boat as you. I take bupropion ( zyban ) and that keeps me out of trouble. If nothing works some folks have tried penile implants which will always work at your command ... and many...

9/18/2019 1:23 PM

Prostate Cancer
Purdue Pharma, at center of opioid epidemic, files for bankruptcy (OT)

Marijuana is a pain killer and addictive as well and I am sure it kills even more - it’s legal in many states - wonder if that will ever have a similar story....

9/16/2019 11:33 AM

Prostate Cancer
Second biopsy report in

It would also help to put Dow in your signature - your Current PSA - PSA trend - DRE results - any MRI results - any PC symptoms you may be having - like ED or having to go Pee in the night Some of...

9/16/2019 7:42 AM

Prostate Cancer
new PSA...concern?

I would retest and if it confirms a 0.05 then you should consider salvage radiation. You are only 65, you have a long life ahead , why let PC take the upper hand when you can try for cure....

9/12/2019 1:54 PM

Prostate Cancer
4 1/2 yr PSA

I hope lab corp starts releasing earlier. I gave my blood draw on Friday, I saw message that they released to doc on Saturday , had to call the doc on Monday to get my results . Lab corp released...

9/12/2019 11:59 AM

Prostate Cancer
question regarding psa in young people

I would start getting a more sophisticated PSA test done (phi) - and get a free PSA reading as well and watch that trend....

9/12/2019 12:30 AM

Prostate Cancer
psa after surgery

As others have said the new threshold to begin radiation therapy is now less than 0.1. Some research has indicated that as soon you hit 0.03 , it may be time to pull the trigger to still have a...

9/12/2019 12:26 AM

Prostate Cancer
Radiation or Lupron?

In many studies, Debulking the Prostrate (either by radiation or surgery) has been shown benefits even if it is not curative....

9/4/2019 10:40 PM

Prostate Cancer
Still bleeding

I only had one biopsy but had on and off bleeding for almost a week....

9/3/2019 2:05 PM

Prostate Cancer
maybe, just maybe--

Thanks for sharing!...

8/28/2019 11:08 PM

Prostate Cancer
Preaching to the choir

My three month waits are typically - 3 F’s Sense of Freedom - 1st month I Forget I have had PCa- 2nd month Fearful (very)- 3rd month Typing this from a lab corp waiting area. It’s sucks but necessary....

8/28/2019 3:26 PM

Prostate Cancer
SRT expectations

Was wondering why you didn’t opt for ADT before SRT. I would go aggressive now and have a better chance at success....

8/26/2019 6:42 PM

Prostate Cancer
9 1/2 year PSA test

Sorry , not to be very rude but what are you waiting for. You should be getting RT done now. The slow psa rise meant it would have been localized, I would still jump on it and get ADT to stall and...

8/24/2019 7:51 PM

Prostate Cancer
PSA continues to rise

4.8 is not high by any stretch. As Prato said, hope they find it and zap it for good. I have seen many folks on this forum on ADT going for a long long time. And , Based on my readings ADT works...

8/16/2019 9:40 AM

Prostate Cancer
PSA continues to rise

Howard, What was your pre surgery PSA. Your journey has been pretty unfortunate so far Esp after you got a great path report. Hope the PSA rise is very very slow....

8/14/2019 10:22 PM

Prostate Cancer
MRI Results

I like your idea of waiting till next Biopsy. Did they say how large your prostrate was and if you had BPH, both of which may result into high PSA numbers. The third possibility is Prostatitis. My...

8/14/2019 10:18 PM

Prostate Cancer
What is surgical failure?

This is a relatively new article and study. https://onlinelibrary.wiley.com/doi/full/10.1111/bju.14790 Their definition is “Radical prostatectomy (RP) is a surgical treatment used for localized...

8/9/2019 7:44 PM

Prostate Cancer
What is surgical failure?

Here is my definition of a failed surgery for what it’s worth. If there is persistent PSA ( PSA 3 months after surgery) for a localized disease ( stage 2 or less ) it’s a failed surgery. Meaning the...

8/9/2019 12:03 AM

Prostate Cancer
Questions regarding husbands surgical pathology report

My RALP was 3.5 hrs with only 3 lymph nodes removed and no other complications. Point being that 1.5 hrs estimate for RALP is on the low side and lymph nodes removal does add to recovery time but if...

8/8/2019 1:28 AM

Prostate Cancer
Questions regarding husbands surgical pathology report

Not the pathology report you would hope for but as others have said cure may still be possible. Surgeon did the best he could - he went as close to taking as much out as he could without damaging...

8/7/2019 5:46 PM

Prostate Cancer
Let's compile a list of trifecta surgeons....

I would answer it this way ... If I were to do it again - I would chose the same surgeon... But , I am not Trifecta and I didn’t expect to be one either....

7/25/2019 2:25 PM

Prostate Cancer
Updated information from Northwestern Cancer Research Center

It makes sense for PC cells as well. The reason most RALP pathology report have PNI positive is because there is a FAT layer surrounding the nerve bundles and PC cells are attracted to those fat...

7/24/2019 2:46 AM

Prostate Cancer
Fasting and Cancer

Tuesday is when I do 16hr fasting , definitely not my favorite day of the week - it’s tomorrow....

7/22/2019 4:01 PM

Prostate Cancer
Peter McNamara, who won three tennis Grand Slam doubles titles, dies at 64

Sad day for tennis fans. He died battling Prostrate Cancer....

7/22/2019 1:03 AM

Prostate Cancer
Just Info for anyone interested

Happy 70 in advance !!! I hope to get there with some Luck, although just two years back at DX , I was only thinking of making it to 60 :)...

6/28/2019 8:01 AM

Prostate Cancer
Gut Health and Prostate Cancer Treatmenr

Interesting timing of this article from Harvard https://news.harvard.edu/gazette/story/2019/06/performance-enhancing-bacteria-found-in-the-human-microbiome/ ...

6/27/2019 11:07 PM

Prostate Cancer
Just Info for anyone interested

You did how it’s supposed to be done! I hope you have killed those nasty cells for good. Just curious, how young are you....

6/27/2019 7:37 AM

Prostate Cancer
Oh Crap!

JayMot You are young. Go with all the firepower - earlier than later. I would not wait any more. uPSA at 0.03 is what the new recommended Threshold for taking the next step....

6/26/2019 3:54 PM

Prostate Cancer
Gut Health and Prostate Cancer Treatmenr

I’m starting to take BPC. The gut produces BPC, body protective compound - a peptide that apparently has healing properties. No one has reported on its effect on cancer - but I feel it has benefits...

6/25/2019 6:15 AM

Prostate Cancer
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