Drifter, thanks for the information on the acid reflux side effect. I was unaware of that. I have chronic acid reflux and take 40mg Esomeprazole daily. I had been taking 5mg Tadalafil daily for ED...
My experience is similar to Terry's except I could not have sex during treatment, although I wanted to. I had burning sensation during urination during my 8 weeks of treatment and just foreplay would...
Catheter out. Feeling much relief....
Tomorrow (12/20) is catheter removal day. Cant come soon enough. I have to say it's been a rather miserable experience. I had lots of bloody urine, clots and dead tissue mixed in. I have a small...
I remember when Pratoman had that false PSA from Quest. I too have never used Quest since then and never will....
The PA has changed his mind and will see me on Dec 20 to remove the catheter and test my voiding ability....
I'm leaving the hospital next Wednesday, December 11 with a catheter after focal cryoablation. My post-op and catheter removal had been scheduled for December 20, 9 days after the cryoablation....
OldSalty, Dr Armstrong at Duke is my MO. I dont see him regularly since I'm not on ADT. I'm scheduled for focal cryoablation on December 11 at the Duke Ambulatory Surgery Center in Durham. I had...
If he means you have primary radiation and it fails, as in my case, then yes, salvage surgery has higher risk of complications than if done as primary treatment. The changes to the prostate as a...
Fozzworth, A Gleason 4+3 is an unfavorable intermediate. If you decide to go the radiation route, your RO will likely recommend a short course of ADT before, during, and after treatment. Depending on...
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Mumbo, I agree with you about ADT combined with brachytherapy. From what I understand ADT does not enhance cryotherapy effectiveness as it does with radiation. This will be a difficult decision as to...
I met with Dr Polascik at Duke yesterday to discuss my recent biopsy results and to discuss possible salvage cryotherapy. As I already knew, I have Gleason 4+3 with PNI and a finding of ASAP in one...
Prat, the phone contact I have for Dr Zelefsky is answered by his Admin. I have asked to speak to someone in medical, e.g., NP, PA, nurse. She said she would forward the request but no one called. I...
Thanks Mumbo for the reply. I appreciate it. It disappointing that yours is the only one. I suppose my other recent posts on more less the same topic have most of the usual responders thinking...
My plan is to have salvage brachytherapy or cryotherapy. The thing is these treatments will take time to be scheduled, especially brachytherapy as this would be with Dr Zelefsky in New York and I...
Duck2, I dont think full RT is even an option for me after having had primary radiation via proton therapy 10 years ago....
The results of my recent transperineal targeted and systematic biopsy reported ASAP in one location in addition to the known lesion identified on PSMA and mpMRI. How might this finding affect my...
Biopsy results are Gleason 4+3 with PNI in the tumor identified in the PSMA and mpMRI scans. No other cancer found in prostate or seminal vesicles. I assume that means I will probably qualify for...
Mattam, I agree that the RO may recommend ADT in combination with salvage brachytherapy. I wouldn't like it but knowing it may be a year or so would make it more tolerable, especially since it might...
Not sure of your meaning. If I were to go to see my MO now he'd probably suggest ADT starting right away if I was not interested in salvage treatment. Are you saying that in opting for as cure...
I spoke with my RO today after I sent him all tests. He was reassuring somewhat in that he expressed agreement with Mumbo's comment about the PNI finding. I had jumped in with research about PNI this...
Recent pathology shows MRI targeted biopsy Gleason 4+3 with PNI identified. Gleason 4 is 70%. Carcinoma involves 3 of 4 core fragments. The systematic 12 cores and seminal vesicles were all negative....
PSA of 5.59 yesterday keeps me in the running for salvage treatment I think with doubling time > 12 months and an unlikely recommendation from MO to start ADT. I had transperineal biopsy today and...
My chances of being a candidate for salvage treatment may have fallen some after yesterday's PSMA report. Fortunately still no metastatic disease but the report did note that I had "similar...
Let me add another excerpt: There is no consensus on the best salvage treatment for failure after radiotherapy. Androgen deprivation therapy is currently the most common and most conservative...
Djin, my understanding is salvage treatments are with curative intent in mind. The treatments are aimed at eliminating local disease....
I wonder why so many men with recurrent cancer following primary radiation who would be candidates for a salvage treatment choose not to seek a curative solution but to begin ADT at some point...
Turboz, yes, my PSMA did show only local involvement and the mpMRI showed the same tumor location classified as PI-RADS 5 and local involvement. I'm not receiving any treatment at present, but my...
As JNF pointed out, the ASTRO definition of BCF after primary radiation is 2.0 over nadir. Many doctors dont support having PSMA until that level is reached. I know in my case my RO and Urologist did...
I had hoped that Duke would take a "team" approach with me for my recurrence. Not so. They may have many skilled doctors specializing in surgery, radiation, cryotherapy, HIFU but, in my experience,...
Jim, I have no patience. But what choice do I really have at this point? I really doubt I could get the biopsy date improved by making some noise. I do have a contact for patient relations, but I...
I thought about making a switch to another provider and I will ask my local urologist who is affiliated with this other provider what he thinks about switching. I think by the time I find a new...
I had a PSMA in February which identified cancer recurrence and I still haven’t had a biopsy. It took 3 months after the PSMA to have a mpMRI. Now, due to scheduling problems, my biopsy is not until...
PSA on Wednesday 8/28. Wondering if time of day and fasting matters. Some small studies suggest it does, but most say it doesn't. One says afternoon is lower than morning and food has no impact....
Let's be clear about my original Gleason. The initial biopsy was GL 3+4. I had 2nd done at JH. They said GL 3+3. Florida Proton wanted one of their own. They said GL 3+4. So, I was officially a GL...
JNF, when I get my PSA and biopsy results at the end of August I will call them. Thanks for the contact....
The RO and my local urologist were not concerned with the incremental increases over the years. The RO is a robot (thats what my wife and I called him in private) who is smart and experienced but...
I am in the Triad region in North Carolina, that includes Greensboro, Winston Salem, and High Point. Atrium-Wake Forest main hospital is in Winston Salem; Duke Medical and their cancer center is in...
I asked all of those questions. They don't do virtual consults, no phone calls to the doctor, no emails. The person I talked with yesterday, Clara, is the primary administrative person. My earlier...
This is the article from which I referenced the MR-LINAC treatment. It appears to be a new methodology which began in late 2023....
I talked with someone at Dr Zelefaky's office a couple of months ago and was told that when I completed my biopsy and current PSA I could call the office and they would send me forms to authorize...
I have PSA and prostate biopsy coming up soon and find myself speculating on the results of both. If the PSA doubles from the last reading in February, the MO wants another PSMA, the results of which...
Sorry to hear that your PSA Nadir didn't drop below 1.6. That's usually not a good sign of successful primary radiation treatment. I'm not familiar with the term "Gleason Peak". If your Gleason score...
I met with my local urologist today primarily as a post-surgical exam for an inguinal hernia he repaired 2 weeks ago. Healing has been excellent and I'm feeling good and walking 3 miles a day again....
My RO said UFPTI stats show 5% recurrence after 10 years for intermediate gleason 3+4 like me....
This was my MO's summary notes from our meeting in March: I did not recommend ADT nor enzalutamide (per EMBARK) at this time given his low risk disease, low PSADT, more advanced age, lack of N1/M1...
I've talked with my RO several times since BCF and the scans. He's never mentioned Proton as a salvage option. He supported my interest in brachytherapy and recommended Dr Zelefsky....
Zelefsky is waiting on my biopsy, after which his office will request my medical records, biopsy result, and biopsy sample to do their own pathology. His clinical staff will review everything and...
what about ADT first?[/quote] ADT was discussed with my MO in March and it was decided then to wait 6 months, have PSA again and see where I am. If the PSADT is less than 12 months he wants another...