All, Glad I found this thread. I have had an UTI off and on for 8 weeks, and two 14 day doses of amoxicillin have not cured it. Think I need a cystoscopy. Hope a Urologist agrees. Trying to get that...
Agent, agree with all thsoe that say see a Medical Oncologist.Also who recomended the PET scan? At such a low PSA it wont show or help much to detrmine treawtment yet, if any you you probably only...
NolaVette, After your 13 years DX with PC, and the past 8 as undetectable, you should not worry about a 0.014 reading. I would go so far as to contradict your Doc and say the lab probably did forget...
Yes indeed, AwsomeTodd1963, H.U.B. (hit us back) with a post Todd!! Amazing story of Mr. Drew Bouton. I have met Todd and have been blessed by that and all his posts. I hope to one day meet or at...
Bringing this one up to the top, especially for Touchdown Wings PS shout out to Cyclone ISU!...
Touchdown, Will you be kicking an extra point or going for two?? In any case I predict you have many many more years to score! All of the replies above have given you great advice, Mine is to read my...
Hello STW, As an ol time veteran( 12 years)of this PC journey, I suggest you find a good Oncologist, today. No need to delay. You need someone with experience in PC managemnet. Keep the Faith! Wings...
81 Gy Guy, Thanks for that detailed Investigation. Very Interesting. However, after 91/2 years of remission for Stage 4 I do not recall ever having any of those afflictions, and hoping I never ever...
Todd and Amanda, Here's your clickable link, http://toddseals63.blogspot.com/ Sorry for your loss Brother, I know the feeling, just like one of your family Peace Wings aka Dan-o...
Todd my Brother, Thanks for your letter to that newbie. It is also a reminder of things that often go unsaid for us all. You have always been my hero in this journey, and I am so very grateful in...
Basic kind of uninformed question. What is basic retirement age defined as these days??? I am still working and probably beyond that at 68 yr young, Wings, aka Ol Dan in So Cal,keep the Faith!...
Ryne Sandberg was one of my favorite Players. I might be able to find his contact info, I sure would love him to join our Forum! Prayers up for him and his family. As Harry Carey used to say "Go...
Brother Todd, That is fantastic, and also that you give credit to whom it is due! I have been negligent about checking in here at HW (just been really busy with a new job at NASA at Edwards AFB, Ca.)...
Thanks PratoMan...
Cyclone ISU So true so true my friend. It still echoes in my mind the words of my initial Urologist (who did not have a clue) who said to me "There is nothing much we can do, go home and make plans...
Like the John Mayer song, "Just say what you need to say"...I dont think I'll ever leave, my wife will make an announcement in due time, many many years for now! I like all Ya'll to much to leave you...
F8 and Boomer and et all I celebratre with zero candy bars, so I shall buy two or three more one for F8 and one for myself, and one for later.I really like em! Congrats my brotha Ed, 14 years that is...
This part is especially for Cyclone, 108 bottles of Zytiga on the shelf. Got my latest PSA and blood test results. Once again, offically 8 years 9 months since November 2014 results, PSA still...
Dijin, You are one of the most knowing and constantly supportive posters here. I know that "you got this" and will continue to beat the heck out of and stand up to the beast until it is beaten down...
DougS Indeed, you have had quite a journey. Thanks for sharing and keep in touch. You can inspire others here! May you now stay forever "undetectable' Wings...
Ourtime, So very sorry to hear of your loss. From what you wrote, Jim was a very strong individual and very blessed to have you by his side. I am positive you meant the world to him. Thanks you and...
MODS This is an older thread from 2017 so...??? . very sad that thye did not switch from that Urlogist sooner....
Motown Paul CONGRATULATIONS!!!!! I put 5 exclamations, one for every year. They should have let you ring that bell! Maybe that would have relieved some anxiety. You are blessed and I know it is gonna...
azroadrunner Sounds like a winner for Jack and hopefully for you too. I found this on google search. "Orgovyx may affect the heart’s electrical properties or cause electrolyte abnormalities,...
Reachout, Or possibly any of the great RO Doctors at City of Hope, Duarte. (rated by US News and World Report as the 3rd best Cancer Program in Califonia.) Or they also have a ROs at the City of Hope...
steve0, You really really are a zero hero! Great results, man. Love your proclamation, declaration, and praise also! Keep the Faith brother! Wings aka Dan in So Cal...
Successful posts?...YOURS!!!, you da man ...da best poster....and a math nut too!! lol I very much like Cyclone ISU's reply(as always) and TimG comment also Winging it...
Bohemond my brother, Congrats on that vacation and the possiblity of being in that trial. Good news. Simalarly for me,my Oncologi stalso stated what yours said about the Lupron and Zytiga combo. He...
Todd, I remembered sooner than you did!!!. On 6-6-23,( maybe i got the date wrong ) I posted here on HW: "We need an upate from Todd1963, our Zero Hero" I said : Hey Brother Todd!! I believe Happy...
GoBucks' Saying some words repeatedly...go go go go go go! and. love, love ,love,love that song. Many more zeros to follow!! And more congrats for being one of MY zero heroes. Keep up the greatness...
Hey Brother Todd!! I believe Happy Anniversary is in order. If I remeber correctly June 6th was your Diagnosis date so many, many years ago! Give us an update because you encourage so many of us...
Thanks for all the replies and encouragement. Cyclone, I have 102 bottles all lined up.Go Bucks, you are correct, Dr did not say with low fat breakfast. I jus threw that in to see what others say so...
Zzarth, Nice re-test..nice graphs. My advice, be happy, don't worry. Wings...
Just Be You I asked a well-respected Advanced PC Healing Well poster and friend of mine for advice on asking my Oncologist for a “Zytiga Vacation”. Ya’ll must also know Todd Seals and about his...
ReeseforWill, Reese, you appear to be a priceless advocate for Will, so great job so far! Welcome to the forum that you really did not want to join..as some have said . No poster beeter here to...
DYank, That is awesome news, keep it up, keep going, and indeed keep the Faith! 8 &1/2 year undetectable and counting! Could you post your Dx and trestment history? Wings akaDan in So Cal...
BillinChicago,Congrats on that 9 year mark! I am trying to get there myself, and many years beyond that.! You have been through a LOT! Keep taking those neds for your stroke, I know from my Brother's...
NewspaperLover, Nice post and I agree with all the replies. The "Horse" in our race is running very strongly with each stride. Just wish we did not have so much $$$$ and side effects on our shoulders...
Crusher 10833, Calm down, you are most likely still undetectable. They probably forgot to print the < sign. I am 99.99%sure but see what the DR. and a retest says. Also 99.99% of us would love to be...
GoBucks Go! Keep up your Zytiga vacation if it's working for you! Since June 3, 2022? thats 10 months already, Good going. Even Mr. Tood1963 took a Zytiga vacation for a while , PSA rose slightly ,...
How about City of Hope, in Goodyear. They will take care of all your needs Wings 102 empty bottles of Zytiga on the shelf (8 1/2 years)...
Jack I think the Mods may jump in. I think the policy here states that none of the posters here are to be Doctors, not allowed. At the top blue line, under Forum Rules #8. Doctors are where they...
Ricky D Way to goooooooo. Go longtime. You are 4 years ahead of me being undetectable, and may you always stay that distance!!!! Many more years, like 30 or more!! Wings...
mbock, I am claiming ahead of time that the powerful Zytiga will plummet the PSA way down. Aint no easy ride though, Get ready for fatigue. hang in their , Keep up the good fight, keep the faith Wings...
Newspaper Lover, No new mets ...that is great news! keep up the good fight brother. Wishing and praying healing well for you Wings...
81GYGUY, Thanks for all those links brother, I shall check into those Happy trails (not trials) to you Wings...
Great news, stay vigilant ! Wings...
Re-post from my I need another Zero Candy Bar post: (yes they still make them) I got my blood lab test last Friday, all values looked good, especially the <0.008 PSA, Undetectable. That is actually 8...
Just saw this on you tube. Joel Nowak is one of my PC Heros, and has a lot of experience and knowledge about PC. He is very inspirational Hope this is Ok with the Mods...
I got my blood lab test last Friday, all values looked good, especially the <0.008 PSA, Undetectable. That is actually 8 years and 3 months now, or 99 months undetectable! That’s pretty good for an...