In my case it took about 18 months to get a reading of 0.01 and then at 0.11 (14 months from the 0.01 reading) I started hormone therapy with radiation. PSA continued to rise and eventually I needed...
Sailor you will likely end up with Levaquin -I am on that now. works great...
Thanks Fred....
Thanks Fred - but he is a radiologist. Not my need....
Halbert, no I am in Philly area. Teddy...
I am looking for a medical oncologist at Fox Chase Cancer Center in Philadelphia who specializes in genitourinary cancers. Anyone have some experience with someone there? thanks Teddy...
Tde, do some reading on installation of a suprapubic catheter. I had retention, etc and has restored my quality of life. I also considered interstim, but my Dr said it is not 100 percent effective in...
I had 20 HBOT sessions summer 2022 to help resolve my radiation cystitis with heavy bleeding and clots. It worked for a few months but then it came back with a vengence, sending me to the hospital 4...
AZ - I have not yet started doing any biking - in the gym or otherwise. Waiting until after some planned vacations and will start around end of October on the recumbant and in stages as you suggest....
AZ Guy Wondering if you bike at the gym is a recumbant bike or more of a regular one where you sit more upright. Have you ever ridden in a road since you radiation cystitis and if so, does it trigger...
Ravineman, Although your doctor's said biking would not cause any bleeding, can you correlate a higher degree, or frequency of bleeding after riding vs when you don't ride? I am sure you realize the...
F8 - May I ask how you injured yourself permanently and what those injuries were? Do they relate to your past prostate cancer? teddy...
It is been 18 months since my last Hyperbaric Oygen Treatment for radiation cystitis. I had bleeding with clots multiple times which sent me to the ER. I have not had any bleeding since then, except...
Fiddlecanoe - I am going to try decaf tea for a few days and see if there is any difference. thanks for the idea. Teddy...
Fiddlecanoe Can you drink decaf coffee or did that bother you also?...
Looking for guidance from others who have had to regain bladder function. I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for...
Looking for guidance from others who have experienced this. Briefly, I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked...
Likely radiation cystitis. Suggest you get a bunch of intermittent catheters that you can use . Probably a size 16 French diameter. If you run into blockage you can alleviate the clots with these....
Wren Let me ask if the foley is really a supra pubic tube that extends thru the skin. It would be a foley but not thru the urethra. I was advised to get this because of difficulty catheterizing and...
Wren Don't worry. HBO2 treatment is fine, and I assume he has radiation cystitis. My cancer is still present, as you say in micro-cells, but that does not matter. I let my PSA rise from around 0.01...
Wren My Medical Oncologist said I can have the HBOT even with prostate cancer, and in my case, I have a couple of prostate cancer nodules in my lungs, which is why I asked the question....
Tomson, Yes I have had 20 hyperbaric oxygen treatments in August and will have 20 more in January....
I had a recent bout of hemorrhagic cystitis that landed me in the hospital. The ER doctor had difficulty inserting a 20 French Foley catheter and called for a urologist consult. The doctor was very...
JR, I will have another cystoscopy early next year. Previous ones show inflamed blood vessels near bladder neck. I will advise outcome. Did you do all 40 HBOT treatments all at once, or did you do...
Cigfred, thanks for your comment. I am wondering if you had any episodes of hematuria while on firmagon? Also were your hematuria events short lasting, meaning a day , perhaps in the hospital with...
I have experienced 3 bouts of Hematuria with clots this year that sent me to the hospital ER because of blockage. After the first, I was advised I had radiation cystitis, which was 6 years out from...
A few weeks ago I was in the emergency room at my local hospital because I could not urinate anything but a few blood clots. The pain was unbearable until they could catheterize me with the out being...
I just had a pylarify PSMA scan at Mount Sinai Hospital in NYC -and they advise Medicare will pay for it. Also I am aware it is available near Washington DC - see this: www.woodburnmed.com...
My recurrent prostate cancer is tracked by PSA level and over the past 6 months my PSA level has leveled off to around 2.3. March and June quarterly numbers were identical, and the increase from last...
Djin, I recall that the hospital where I had the surgery keeps the tissue for 20 years, however I do not know if the tissue is viable for the genomic testing. I will investigate. However, given none...
Yes. But I have not found any lesions....
Thanks for all these comments. Yes my medical oncologist as well as the radiologist who read the recent Ga Scan said micrometastatic tumors is likely what I have and too small to pickup even with the...
I had prostatectomy in 2013 with Gleason 4+3, followed by salvage radiation concurrent with 6 months ADT. PSA has continued to rise while doubling time is getting slower, around 12 months as of March...
Thanks for posting that link....
Does anyone know when the Gallium based PSMA PET/CT scan results from various clinical trials would be submitted to FDA for approval? Or has it be submitted and we are waiting for approval? Thanks...
Howard, Yes I had axumin and that is Medicare approved. Teddy...
I recently enrolled in a clinical study evaluating a Gallium tracer in a PET/CT scan. I knew in advance that Medicare would not cover the cost of the scan nor the cost of the Gallium compound, both...
DjinTonic - thanks for the reference. Teddy...
DjinTonic - Did you mean to say my PSA is high enough so either tracer would work? I did not have PSMA assay to my knowledge. Teddy...
I need some guidance on next steps to deal with my recurrent prostate cancer. [Surgery for Gleason 4+3 March 2013, IGRT radiation concluding May 2016 with concurrent 6 months ADT) In April 2018 I had...
I am in a similar situation and my MO has advised waiting until PSA is around 5-10 unless DT goes lower. I plan to get an Axumin scan when psa hits around 2 since I believe that there is a higher...
I had this issue for a very short time and found that I could eliminate it by watching my diet carefully. Minimizing dietary intake of certain vegetables, grains and beans seemed to help. I could eat...
My biggest regret was not changing urologists sooner. After a psa rise of 1 to 2 in one year and a negative biopsy, my urologist said ' you have no cancer, come back in a year." I was relieved. What...
Suggest you check your weight with a different scale. And weigh yourself first thing in the morning after urination. You should not be losing 1 lb per day ! If you stop eating carbs most people tend...
AK In my case I want to delay ADT for as long as possible, since the amount of time it remains effective is limited. But one cannot know in advance how long that will be. At the extreme end, there is...
Thanks ak. I was expecting 0.8, so slightly disappointed and surprised, however no change in continued active surveillance Teddy...
Your psa is too low for a PET scan, even the newest kinds using Gallium or other tracers with PSMA, such as they are testing at NIH in Bethesda or in other major university hospitals. Generally need...
I just got the first shingrix shot last Thursday morning and was fine all day. Next day my arm hurt- painful to touch / press but manageable without any painkillers. But I felt tired, worn out, and...
I think your hormone therapy has shrunken the node or reduced the level of cancer which then makes it harder to spot. Axumin generally requires PSA greater than 1 or maybe even greater than 2, so it...