New PSA result since quitting ADT and restarting TRT -- from undetectable <0.02 to 0.04 to 0.07 and this month 0.08 So, not so much of an increase as the previous 30 days. Testosterone was only about...
Prior to dealing with PCa I regularly took Cialis for ED. I had an Rx for daily 20mg. Seems like many are prescribed Cialis after treatment so I continued to take it daily. A few months ago my PCP...
I was a bit surprised today. After being back on TRT for 90 days and finally achieving "normal" Test levels, plus injections of both PT-141 and TriMix, I/we were able to have complete penetrative...
Recent test results: DATE.... TTL..... FREE Oct 12... 189 ....... 32 Nov 18... 382 ...No Test Doubled Test dosage Dec 18... 603 ...No Test Dec 20... 297 ....... 44 And, how/why are the test results...
Can someone explain the difference between Total Test & Free Test? My doc who gave the Rx for TRT is more concerned with Free Test level. Recent test results: DATE TTL FREE Oct 12 189 32 Nov 18 382...
All PSA tests since my dx have been at Siteman Cancer Center/Wash U....
I posted this on the string re: TRT but probably should have done so here. Sorry if you have a deja' vu moment from reading it twice. LAB RESULTS UPDATE (12/20/2024): Total Testosterone: 603 (Using 2...
LAB RESULTS UPDATE (12/20/2024): Total Testosterone: 603 (Using 2 pumps/day of Androgel 1.62%) PSA: 0.07 So, that is the 2nd increase since quitting ADT and restarting TRT (from undetectable <0.02 to...
As I posted on another string, I recently (Sept) resumed TRT (gel). My dx was 12/29/2021, Proton RT (44x) Mar-May 2022. Eligard Mar 2022-Sept 2023 (I think, memory fading) and Zytiga June 2022-Feb...
Admittedly, this result is disappointing. At least I do not think it has been as alarming to me as the original dx. I'm actually considering retiring (again, it was a HORRIBLE decision at 55 yo) as...
Sailor, you are correct. I still have a prostate. I assume it's kinda burned up (I'm thinking charcoal, but prob not) from 44 radiation treatments. But, I never had any kind of surgery to remove it....
Mattan, my MO was not “supportive”. The better term would be “begrudgingly agreeable”. She ascertained that I felt CRAPPY! I had lost all interest in life. Yes I was alive but I had put “living life”...
I can only assure you that you are not the only one with those feelings. Since my dx and radiation & ADT I have had zero interest in sex. Yes my PSA was undetectable for over 2 years (just this week...
Androgel (without insurance) is $110 on Amazon Rx....
Glen: Check out the cost on Amazon Rx. Generic Androgel (which I use, but so far mine is covered by insurance) is $110 (30-days) and Testosterone Cypionate 1000mg is $81 (also 30-days)...
I've been back on TRT since early Sept. and just had blood work done yesterday. You can read my signature and earlier posts to see my history (3 years since Dx), but quick summary is my PSA has been...
I've been back on TRT since early Sept. and just had blood work done yesterday. You can read my signature and earlier posts on this string to see my history, but quick summary is my PSA has been...
The waiting is the worst part of it. I'm not surprised if the doc wants to have the results of the cystoscopy in hand. Of course, if this is all "negative" that's a good thing other than it still...
Just had my first bloodwork since starting the TRT about 2 weeks ago. Doc only prescribed 1-pump daily (Test Gel) vs the 3-pumps I was getting prior to PCa dx. Test: 303 PSA: Undetectable Of course I...
Lyme, blood in my urine and semen were the symptoms that my Uro told me to ignore. Ignoring pink urine is one thing, but if you are sexually active ignoring it in semen is a "hard sell". I wish now I...
Jack, that is my story as well. Uro said blood in semen means nothing. Just something that happens from time to time in old men. BS! After waiting too long to change Uro's I was G8 (or G9 according...
> I guess we've all heard/read this. My endocrinologist (specializing in hypogonadism) says it has been debunked. He would have no problem supporting TRT if my PCa had been low grade. Being it was G8...
As it was time for my 3-month blood work, I sent a message to my oncologist regarding TRT (which she referred to as an "epic note"). Yeah it was a bit lengthy but I wanted her to understand that I...
I discussed TRT with my endocrinologist last week. He is associated with St Louis University Medical School and specializes in hypogonadism. Without me introducing the subject, he had observed that...
Swan, TriMix (the erection injection) is an injectable drug that you administer with a small syringe (doesn’t seem so small when you’re doing it) directly into the side of your penis shaft (ouch) to...
Follow up: I was planning on putting the squeeze on my oncologist about my Test. level and how it affects QOL, but I only got to see the NP on this visit. She was NFW on Test injections and her...
Very glad I found this thread! I was on TRT since my 30's as I just did not produce enough test on my own and was on it for 30+ years (always tested around 800), until dx of PCa in Dec 2021. Did 44...
Halbert, I do recall you mentioning him in the past and looked him up at the Wash U website. When I viewed his profile it appeared his primary area of treatment was surgery. Are you aware if his...
All I'd like to add is: Go to the BEST cancer treatment center near you (or travel if that is required), but it sounds like that is MSK and sounds like that is your plan. My dx was also G9 (upgraded...
I received proton radiation treatments at Siteman (Mar -May 2022) and discontinued ADT in Sept 2023. So far, blood tests are good -- PSA is undetectable, Test is almost undectable at 5, but so far...
TJ, I get what you’re saying. My wife is only a few years younger and I suppose I could say I’ve always been “lucky” (your term) that we’ve both always had a very active relationship in that...
Thanks for your input. I have been on daily Cialis 20mg consistently until just this month when my PCP reduced it to 5mg. IDK if that makes any significant difference. Docs have said nothing about...
Glen, it looks like you are still participating on this MB. You said: "I cannot explain how gosh awful I feel when my testosterone was as low as 25 except to use the word depression, anxiety,...
Thanks for the replies. NowCal, I have a hard time (is there a pun there somehow?) imagining getting an implant. I thought I was brave even considering the injections. At 68yo with Test at17 I hate...
I cannot express how encouraging it is to read your post!!...
Dx 12/29/21 GS8 or 9, depending on whose opinion you go by. Opted for Proton RT at Siteman St Louis Mar-Mayy 2022. 44 tx. Also started Eligard- 3mo injections. Zytiga added June 2022. ADT was...
as the growing concerns about ADT and the increase in various health risks it can cause (cardiovascular, psychological, etc).~ Djin Tonic I took special note to the mention of "psychological" risks....
Thank you Google (for what it's worth): https://www.pcf.org/news/18-month-adt-optimal-for-locally-advanced-prostate-cancer/...
Thank you both. Michael, considering similar diagnoses, it's encouraging to see you posting 10 years since treatment. I'm anxious to see what my MO thinks about stopping the Eligard after 18 months....
12/29/2021 diagnosis (G8 but upgraded to G9 on 2nd opinion from J Hopkin;, PSA ~ 9.5) PMSA indicated spread to one LN and to seminal vessels 03/14/2022 started 44 PRT (ended 05/14/2022) at...
I did 9 weeks of daily proton radiation therapy from March 14-May 16, 2022 at WashU/Siteman CC in St Louis and started on Eligard at the time of the first PR tx. Pretty fatigued through all that....
Thanks, Cyclone! No I’m not exercising enough other than I try to keep busy with projects. Been planning to get back to the “Y” and need to get off my *** and do it. Curious— what do you pay for the...
Thanks, Michael. Then unless there are some SE to my liver or heart (someone said their BP soared), I can’t see any reason to “fix it” if it’s not broken. You’re signature is very encouraging if I’m...
Mattam, my bad — you are correct about the start date of ADT. MARCH 14. Same date as 1st RT. So, only 7 months so far. (Seems so much longer.) The original plan was 2 years of ADT. MO did not really...
Just some background first. Dx Dec 2022 -- GS8 or 9 (depending on which pathology you choose). Spread to LN and SV shown in PSMA PET. Started 44 Proton RT on March 14, completed on May 14, at...
Glad to hear you're sailing through Covid. I'm afraid it sounds like it's here to stay, but hopefully with minimal mortality rates from here on out....
18 YEARS! YES! We need those kind of reports! Thanks for continuing to checking in here. I'm just 9 months since dx and 4 months since completing PBRT and scheduled for my next PSA later this week....
My wife and I both came down with Covid this past January. She is Type I diabetic and has immunity issues and ended up hospitalized for 6 days with very low oxygen levels and had to be on oxygen for...
I've been a Type 2 diabetic for over 10 years and have been treating it with insulin for about that same time as I did not like the SE of the oral meds. (Swan, Lucky you! Victoza didn't do a damn...
My 1st dx was GS8 but a 2nd opinion from J Hopkins upgraded it to GS9. PSMA PET indicated involvement in one lymph node. My urologist still tried to "sell me" on RP but knowing I'd still require RT I...