I would bet my bottom dollar that all of the AI models used this site (and others) for training data. The intelligence is actually here, with real people asking real questions and getting real...
You are undetectable on an ultra sensitive psa test. That is what you run with. Congratulations. I hope you always have a less than sign on your report!...
Which lab? When I was getting the specific ultrasensitive from quest it took 2 DAYS not weeks. They did ship it to a lab in California....
There is a clinical trial for an investigational drug called amg509, also known as Xaluritamig. This drug shown some promise for guys further down the road so they started a new study for high risk...
Merry Christmas!...
you can go to the labcorp or quest site and buy the psa test you want on your own. Insurance may not cover but they are not that expensive and it can save you a trip to the urologist, and give you...
When was the last 0.04?...
Yeah, after a diagnosis, every ache and pain becomes…..suspicious. I am glad to hear you resolved the headaches!...
“In sickness and in health…..” You lived it....
My money is on you are nervous. Seriously, what was your pathology back in 2011? Age etc…. So you went from detectable (0.15) back to undetectable for more than 9 years, then detectable again in...
If it is a gout flare up you can ask for meds that will take the pain away. one such med is indomethacine 50mg, 1 capsule 3x a day.That and lots of water....
Yes some of us are, but you are currently in the "I am going for the cure" line. When you are done you will have to keep an eye on your psa on a regular basis, but with this treatment they really...
If you are 1) taking xtandi 2) using private insurance (Not medicare) 3) are already enrolled in the xtandi reimbursement program somehow I have news I just had to enroll from scratch because xtandi...
Yes a gym is a great idea. It gets you out of the house. You get those steps in, or you ride a bike, walk fake stairs, or do an elliptical, maybe even lift some weights. Its also nice to be in a...
Happy Thanksgiving!...
Cranky! I would test every three months. That minimizes the chance of missing a big jump. Your psa does not care how often you test. Knowledge is power....
JasonB, If only to rule out a big miss from surgery weeks earlier than if you wait the full 3 months, many of us who had surgery were psa tested at 6 weeks to see how things are going. (i was). The...
JasonB176, The one thing we all have going for us is that PCa is not an orphan disease that attracts little or no investment from those who invest in new technologies. 10 years from now who knows if...
Yes all of this energy around psma. There are immunotherapy trials going after another target called Steap1. Look up amg509 in the clinictrials.gov https://clinicaltrials.gov/search?intr=AMG%20509 ...
ANB, The second round was successful for him. His numbers were starting to creep up again after all 6 treatments and he was actually enrolled in another clinical trial for another radio...
I was always amazed at how he found himself at the right place at the right time with the right dr’s using the latest tech. I was always thankful he shared his experiences with us. Steve...
I had my prostate removed so I do not have any real experience with psa readings after radiation, BUT The 0.21 may have been the anomaly. Take that away and you are still decreasing....
JasonB176, 76% chance it did not, which rounds to 80. Focus on the positive. You are doing everything you can. It is out of your control. You just need to be a good patient. Heal from surgery (good...
0.014 is very very low. Try to use the same lab each time, so it is an apples to apples comparison from last time. After a while, assuming it is actually increasing, they will start calculating...
One more question….. “Am i going to have to self administer anticlotting shots for a week or so after surgery” I had to do that and it was unexpected, but i am overweight so i do not know if that...
So all of these machines are not exactly the same. Just by virtue of the fact they spun it through a different machine might explain it.If they had used that machine for the past however many years...
Did you always go to labcorp? Was this most recent test using the same “ROCHE ECLIA“methodology as the previous tests? I would not bet on a missing sign but there is not anything you can do about it...
I went to a physical therapist after my surgery and before radiation and these are the things they had me do. Good luck Denverx54...
I would do 10 each of the lying down ones just before bed. The sitting down one anytime you think about it, watching tv, at a traffic light etc… The standing up ones, you figure about 15 each....
So the trick to kegels after surgery is not to do them always in the same position. 1) Do some laying on your back 2) Do some laying on your right side 3) Do some laying on your left side 4) do some...
Every insurance is different. Many insurances require a preauthorization before they will do the scan. I went the surgery route and it seems I was getting access to psma pets once/year and cat scans...
So a popular claims processor in the healthcare space called Change healthcare was hacked a few months ago (ransomware attack). So today everyone in my household received a data breach notice and the...
Good luck JasonB176!! I hope they get every last bit of it and you never have to worry about it again. Don’t forget the advice about a recliner chair. If you dont have one you can rent one. It will...
That was a great story....
Cancer is non-linear, not well understood, and often unpredictable. The decipher test says you have a good chance of a monster lurking. Consider the fact that you have been warned off of radiation as...
A PSMA Pet is not a treatment. it is a new kind of imaging tool that was approved since your treatment 7 years ago. It shows any spread of your cancer sooner, but may not show all of the spread. The...
For primary radiation treatment, you are considered recurrent if your psa rises 2 points above its lowest point after original treatment. The 4.0 number/cutoff you are referring to is probably on the...
They may have initially warned me JNF, but I do not remember. I had a serious issue with a liposarcoma 15 years ago in my left buttock area so i check for bumps now and again around that area. Last...
A quick question. I get an eligard shot every three months in my buttocks area (they switch sides). My last shot was 7/11. Does it leave a palpable bump? How long does the bump last?...
Dalota, I just wanted to let you know that going from 0.06 to 0.07 after 6 months is literally nothing to worry about. They are, for all practical purposes the same number. You did not get...
There is a new psma scan that is in trials using a different radiotracer (CU64) The name of the trial is SOLAR-RECUR https://clinicaltrials.gov/study/NCT06235099?term=NCT06235099&rank=1 CU64 may be...
Hi nmckliney, That is one rough summer. Sorry about your sister. You have not mentioned chemo but that may be next. Some things to look into: Pluvicto Clinical trials that are showing decent results....
T-recovery is faster and Orgovyx has a better cardiovascular safety profile The big difference is cost. Ive heard it is way more expensive than a shot....
Who on actual earth is running our country right now!!! I know Austin cancelled it but the plea deal should have been “here are flippers, a swim suit, and a compass. The middle east is east. Good...
The sluggishness will get worse with time. Just keep moving. If you feel tired and haven’t done anything to deserve feeling tired, its time to move. Its that simple. For me personally a good brisk...
You are well underway. With hormones You will feel like taking a nap despite a good nights sleep and not doing things that would normally make you tired. Now, get into a good exercise routine to...
Sorry about the recurrence. :( Find a radiation oncologist. Absent an obvious target they will radiate the area where your prostate was and nearby lymph nodes. Given gleason 9 they should start you...
Indeed a good recliner after surgery like this will do wonders! If you dont have one, rent one for two weeks. :)...
I watched your video. It was interesting. The pictures of people walking around old growth forests looked really calming. Very “entish” for those that read Lord of the Rings. The medical part, at...
As long as you realize 1) mushrooms will not make your cancer go away 2) you have all the proof required to determine that you have cancer. There are guys that would relish the chance you have been...