I am so sorry to hear of Denny’s passing. You both gave it a tremendous fight and I am sure he was very happy you were by his side through it all. You also were a great advocate for him on...
I am not sure when he had the TURP, but a TURP procedure can cause frequent urination which is normal. A TURP can irritate the urinary tract. After my TURP I spent the night for several weeks going...
Glen, you are somewhat correct. There have been studies that show that lower T can actually cause PC to grow even more so than high T. However, studies have also shown that PC can actually adapt over...
Go bucks, I don’t know your situation, but you can ask your Uro for a Valium for the nerves. I do know that more extensive exams usually require twilight or general anesthesia. I made the mistake of...
I know some of you have had this experience and I have heard some bad experiences. Having had RA as a primary treatment my Uro thought a cystoscopy just to see what was happening was warranted. After...
Congrats mattam, To all, celebrate this Christmas and New Year with all my best wishes. Jack...
Isit, I asked my Uro a month ago if I could go on testosterone. He said testosterone could fuel any PC cells that could be hanging around. Basically he denied my request. He did say that I could go...
I have several thoughts. One, Orgovyx is better for heart patients and easy to stop. Two, my Uro recommended eighteen months of ADT, which at the time was just as good as twenty four months. Finally,...
Lyme, call me cautious, but blood in the semen is not normal. Isitserious and I both had Uros tell us that it was normal. I waited a whole year with blood in my semen before changing Uros. My new Uro...
JC, your ADT treatment is to knock your testosterone down to nothing. Testosterone has shown to fuel PC. Hair loss, shrinking testicles, mood changes, lack of libido and decreased energy are all side...
Hal, what great news. 10 years cancer free is what we all dream about. Congratulations and continued best wishes for you going forward. Jack...
Mattam, I believe that once the GL score reaches 8 or higher, ADT is added with RA. When both my Uro and RO was looking at my GL 7 they both said ADT would not be needed. After the BX revealed GL 8...
The answer online, states that his heart doctor needs to be involved. Radiation regardless of where it is located can have an effect on some pacemakers. The heart doctor needs to tell the RO what...
Janice, so sorry to hear of Steve passing away. He certainly raised our hopes for beating PC. Hopefully his case will help the research on combating PC to move forward. You describe Your husband as a...
My recent PSA came back and was at 0.61. That is down from a continuous rise to 0.89 after stopping Orgovyx. My testosterone was also climbing back up to a high of 349. For this latest test it has...
Stay safe all and get to safe ground. We can fight PC, but nobody can win against what is coming to Florida. My thoughts and prayers are with all of you today and through the night that reside...
81, I am so glad you made it through that horrible ordeal. In Tucson, we love it when a hurricane or tropical storm comes up the Gulf of California. We get the needed rain for our dry desert....
I was on AS for four years. Started at GL-6 and finished at GL-8 before treatment. I know the time on ADT has come down over the years. Originally my Uro said 24 months, but the research changed...
Yes, thank you. I have no idea how to post a link like that. Best wishes, Jack...
Maybe I missed it in other posts, but I saw a Pluvicto commercial for the first time tonight. I hadn’t heard that it was out of trials here. My best wishes Jack...
Jack, Your sequencing is spot on. Thanks for your thoughts of what could be going on. When I see my Uro again, I will press him harder on what is happening and if there is any treatment needed. It...
JNF, To be more clear on this topic, I had a TURP back in 2017 for BPH. Since that procedure I have had no ejaculate. I have had nothing but dry orgasms since then. I also had some minor bleeding...
I guess this question is for both RP and RA treatments. Over the last half year, after orgasm, the first time urinating I have a small blood clot come out every time. I do not have a clot in any...
Djin, I have held back from responding due to lack of knowledge of what you are facing. It would seem that no decision as far as PC treatments are concerned are easy. It would be really helpful if...
Congrats Ron, nothing like seeing that the treatments are working. How is your shoulder doing after the reverse surgery? I know you wanted to get back on the golf course by June. My reverse was done...
I read he was diagnosed with metastatic PC back in January. After 8 months of treatment he says his scans show no sign of cancer. There was a picture of him ringing a bell. I have no idea what...
I switched from Firmagon to Orgovyx after the first month and a bad reaction. The SEs came on fairly fast. They were typical of having low to no T level. I know some here have described having brain...
Lyme, an enlarged prostate can cause blood in the urine by putting too much pressure on the urethra and possibly damaging it. Undetected kidney stones can also cause blood to occur. However BPH...
Touchdown, welcome. I am late to the game on this thread. You have been given a lot of information and it may all sound confusing. That is because all of us here collectively have been treated for...
Pax, when I switched to Orgovyx, my Uro looked around and got my price reduced to under $50.00/month. That price remained the same for 1 year. It then went up to $80.00/month. Maybe working through...
I did not tolerate Firmagon after the initial doses. I switched to Orgovyx which turned out much better. I do not know about Orgovyx and Abiraterone combined. My best wishes Jack...
halbert, I barely tolerated the 8 mile drive after my treatments and I only had 28. 40 treatments and 200 miles daily? You made a wise choice. Thanks for all the replies. Jack...
Lapilot, I am not looking for the option. I was just curious if that is a deciding factor for choosing surgery for some. I had pretty much made up my mind for surgery. I had it scheduled for two...
I have two questions concerning treatments for PC. I know Urologists say that prostate removal after radiation is tricky if not impossible. One question: Has anyone here on our forum or know of...
Steve, like the first astronauts going into space, you are truly blazing the way for all of us with PC here on earth. Please know how much we are all behind you and wish you only the best outcome....
Jim, sorry you had such a bad reaction to the shingles vaccination. You were smart to get it considering how painful the symptoms from shingles can be. How were you to know in advance that you were...
Largebill, some people have great immune systems. You seem to be a prime example. Covid can present itself as life and death and nothing more than a sore throat, sniffles or something in between. If...
I don’t know if this was posted a while ago. I ran across an article where he says he was diagnosed with PC a couple of years ago. He said when diagnosed that he thought he was going to die. He had...
Prato, sorry you got the bug. Something to be aware of with Paxlovid. My wife and I were fully vaxed when we went to Las Vegas. We both came back home with symptoms starting the next day. Temperature...
Prato, congratulations on the <.05 for 5 years. I would say that the salvage RA and ADT did their job. I would suggest going to yearly tests, unless you like giving blood twice a year. You can have...
JAPS, thanks for the expanded history. I thought you were newly diagnosed. Your history explains the 6 months of ADT and RA. There are several here that have had the surgery and follow up RA and ADT....
JAPS, I believe that the hot flashes came on within a few weeks. The rest took several months to be fully developed. Your six months should come and go quickly. You haven’t given your diagnosis with...
JAPS, Relugolix or Orgovyx, dropped my testosterone and PSA to zero after RA. It was easy to take the one pill a day for 18 months. SEs included; loss of body hair, growth of breast, hot flashes,...
Being late with my treatment, I hadn’t heard of David’s ordeal. Having read through it now, I am very sorry for what he and his family endured. Any passing of a family member is very saddening. I...
Zeke, welcome. I started on Firmagon and had a bad reaction not cardiac related. My Uro put me on 18 months of once a day Orgovyx which is supposed to have less cardiac SEs as well. My PSA dropped to...
My favorite reply to the story.” Looks like the glove fits now.”...
Todd, losing a longtime friend and pet is very hard. We lost our two cockers last year and it was hard to let go. We decided to not have any more after having nonstop dogs for forty years. After...
Todd, I am so happy you posted this. We were finally able to convince our son-in-law to go get a check-up from a primary care doctor. He very rarely gets sick and was afraid to go due to his obesity....
Steve, if you wouldn’t mind sharing. I was wondering what SEs you had during treatment, but more importantly how are you feeling now you have completed the treatments. My best wishes, Jack...
JC9, I also went through several Uros who had me watch and wait until I was diagnosed with a GL-8 4+4. There are many here who have a GL-9 diagnosis. They have been here for many years and I am sure...