Thanks so much Mumbo. You are always there whenever I posted my questions, I am appreciated your help. So if i understand it correctly, the survival is increased with lymph nodes treatments but the...
Thanks Halbert. Yes, we were told to stay away from the Advantages plan, its really a disadvantages one. I have looked at your signature and my husband the same stages as you but you are the luckiest...
Thanks Halbert and Mumbo. At first, my husband had the same NP for almost a year. She then was on leave so he saw different ones each time, and he feels that they were not productive meetings. The...
@Mumbo, Thanks. That is the frustration we’re having. We have no problems with our insurance as far as getting the second opinions. At this center, most of the time we could only talking to NPs and...
Thanks all. I just entered the signatures for references. @Djin, thanks, we haven’t looked at Proton but i thought i would asking it here. My husband is 65 now, other than the PC, he is very healthy....
Hi Everyone, It looked like my husband would need to have the Salvage treatments done soon, and we have had consultations with top ROs in both IMRT and SBRT. IMRT has been around for a long time with...
Thanks so much for your help @Mumbo and @JNF. I will request more information from Scholz' office and continue my search for the top doc to help my husband....
Thanks JNF. We would love to find one that practices independently like yours. In California, or at least where we are, it’s very hard to find these independent doctors. Most, if not almost all,...
Thanks Mumbo. Someone has mentioned the same thing to me yesterday that we need to get a MO and they will directing us to treatments when needed. I have so much to learn from everyone in this forum...
@Mumbo, Thanks so much for your detailed information, you are a wealth of information with PC. Thanks Mumbo. @JNF, Thanks for your response. My husband had his surgery 2 years ago and his PSAs are...
Thanks so much Mumbo. Do you know any doctor at UCLA? I thought I saw on YouTube a video that Dr. Kishan talked about SBRT and it’s for 5 sessions. From what I understand IMRT will be a lot longer,...
Hi, We are looking for top MOs and ROs for Salvage treatments but it’s really hard to find ones. Eugene Kwong at Mayo is out as he is only taking certain patients. TIA....
Thanks Mumbo and Sr Sailor. Unfortunately i don’t know any PC survivors or spouses and its very hard without any supports. I'm keeping alI to myself as I don’t wanted my husband to see my sadness as...
I would like to ask how you all are doing emotionally with the PC before, during and after treatments? It’s been really tough for me since my husband’s PSA is moving up from undetectable so I can’t...
Thanks so much for your responses Pratoman and Mumbo, I really appreciated you both. We will start looking for second opinions and go from there. Thanks again....
Sr Sailor, Mumbo, I have JH info, thanks. Mumbo, I have read this attached article’s and that’s why I would like to get second opinions just in case. As long as my husband’s PSAs stay the same as the...
@Mumbo, My worries/anxieties about my husband’s health are up the roof and your prompt reply are very much appreciated....
Hi everyone, I have been on this forum for a few years and posted the update on my husband’s situation back in August 2022 after his surgery in May 2022....
My husband talked to the NP this morning and at this point he just needs to do his PSA tests every 3 months and as long as the results are remaining undetectable, nothing else is needed. He asked...
Thanks so much Djin. You may not realized it but your comments, suggestions have helped me a lot and I have learned new information today. Thank you so much for your help. @Mumbo, thank you. I have...
@Bobbiesan, thank you. Just like you, I believe we should be our own advocate for our health as doctors don’t care. We are just nails and they are hammers. I have tried to convince my husband since...
@Fiddlecanoe, thank you. I have been reading about early salvage versus adjuvant radiation today and I am more confused. It seems that there is no definite advantage for starting radiation within the...
@Pratoman, thank you so much for your help and support, especially at this dark time of our lives. I am tearing up as I am reading the responses from everyone, thank you....
@DjinTonic, Thank you for mentioned about the Bone scan as he has not had it done. The Decipher results have worried me and I am wondering if we need to do something else beside the bone scan. I...
Hello, I saw your post and I think you may have heat hives like I do. About 8,9 years ago, after about 30 minutes exercised at the gym, I would have hives all over my legs and arms. They’ll be...
@Duck2, thank you. My husband asked for a PET scan a month ago but he was told that it wouldn’t be necessary until his PSA is increasing later on....
Back in May I joined this forum and after my first post, I have received an outpouring of supports from everyone here at Healingwell. Thank you everyone from the bottom of my heart as I was so lost,...
Update re Padres manager. https://www.cbssports.com/mlb/news/bob-melvin-status-no-cancer-found-after-padres-manager-undergoes-prostate-surgery/ This is terrible for enduring the surgery....
Thank you for sharing your knowledges and experiences with me about this terrible disease as I didn’t know much before joining this forum. This community is so wonderful. The outpouring supports I...
@JNF, we do eat Mediterranean diets and with a lot of garlic for years. Growing up my family ate a lot of veggies, fruits but his family didn’t and I have changed his eating habits since we have...
This PCa is really depressing especially when I browse through the forum from cancer.org. It appears that more people selected surgery than radiations from that forum. Someone said one’s life will...
JNF, thanks so much for a very detailed information. I must have misunderstood the above statement because I thought HDT meant hormone deprivation therapy as some individuals have to take them prior...
@Sr Sailor, Thanks and I have read the above link. I understand about SpaceOAR, but from what I read @Urologyhealth.org, nothing mentioned about its side effects, only its benefits. This is...
@JNF, I am reviewing my husband’s phone conference notes and one of the treatments mentioned was CyberKnife. My husband feels that HDR Brachytherapy is better than CyberKnife and I saw a post on HW...
@Terry’s Cellar, Can we request the slides from our lab? I didn’t know anything about this. The biopsy was done earlier of February, is it too late now?...
Hi all, I have read, re read all of the comments and trying to absorb everything you all said as these info are so news to me. “With HDT the catheter placement is critical and is done with ultrasound...
Hi Michael_T, Thanks so much for your input Michael. Everyone opinions are helping me so much as I am overwhelmed with this Pca. It’s comforting to see the outpouring supports that I have received...
@JNF, thanks so much for your uplifting message, this HW community is so welcoming and wonderful. Your successful treatment has given me hope and your explanation on Brachy is very helpful. However...
Thanks so much for everyone advices. Everyone advices and past experiences are so helpful and I appreciate it very much. I wish I had joined this forum earlier and it would have calmed my nerves. No...
“ The ONLY (minor) downside to HDR is really two parts: You won't have a whole gland pathology report, to make a clear statement about what was, and was not there, and it can take a while--up to a...
Yes, it would be better if your husband confirmed his diagnosis with a second opinion on the biopsy slides done by Dr. Espstein at JHU. You still have time to do that and leave the appointment for...
@JNF, I am concerned that we didn’t get the second opinion of the pathology report as I have read on this forum about Dr. J. Epstein at John Hopkins and thought perhaps we should do so. I would have...
Thanks so much for your reply JNF. You have given me some hopes as I am so down for what my husband has to go through. We have no support with PC as noone we know has it and our local support group...
Thanks for your reply Mumbo. I am really appreciated it. The urologist told my husband the test results and he has scheduled an appointment with the urology oncologist. The pathology for core biopsy,...
My husband’s PSA reading was 7 so he had Biopsy and MRI done 2 months later. On Feb 21, he was told that his Gleason score 3+4 six days before his 62 birthday. He has 2 teleconferences with an...