I too may get an AUS in Spring if I qualify. RALP and Radiation. Never been continent. I sought out an expert who deals with prior radiation patients and has done many of them. I went to a Major...
I would consult with a medical oncologist from a Center of Excellence center for Cancer. They are usually associated with a major university. It would help if you got a PSMA Scan to find where the...
Thanks Duck2 !!!...
Thank you Vince. Very helpful....
Sorry for the confusion Mumbo. Yeah, I am in no hurry after all these years so I have time to research. Thanks for the reply....
Hello brothers. After 13 years after my surgery and radiation, the time has come to address my worsening incontinence, and have decided to seek advice about an artificial urinary sphincter procedure....
That's what I expected for you. SBRT and a short run of ADT. Glad you are getting something done! In the long run it's worth it. Good luck....
I finished the radiation in July of this year. I started ADT, in April. All is proceeding as planned. I get hot flashes but that's it. I walk daily around 3 miles to keep the weight down and a few...
I take the shot and I don't care how long it will take to recover my testosterone because that won't kill me or you. My main objective is to get rid of the cancer, which will kill. For me, like Mumbo...
Yes, you want it as low as possible, undetectable. This way the radiation is directed at your lymph area of cancer which will be starved and weakened for lack of what prostate cancer feeds upon-...
Yes, I would attack this as soon as I could. I had three pelvic lymph areas. SBRT and ADT could work. Find a Radiological Oncologist for advice along with a Medical Onco. This is your chance for a...
Thanks for that story and info. Wonderful...
Hello fellow traveler. I had my prostate removed via robotic surgery and then had radiation. 12 years later psa went up to .75 to 1.4. PSMA scan showed prostate cancer in 3 areas involving my pelvic...
I think it's called Actinium. Try to Google this term: alpha emitter for prostate cancer therapy news...
Yeah, they want to get it out there before the Alpha emitters leaves it in the dust....
1Guyster, for what it's worth my journey is similar to you. Prostatectomy, radiation, then 12 years later a PSA rise. PSMA scan showing 3 nodes involved. I have an MO and glad too. Anyway, I had...
Vcasa, welcome to a great forum. As the others have said, just chill, the worst is over for now. As to pathology, if you want, you may want to get the pathology slides sent out for a second opinion...
Trust? No never....
Cyclone, thank you for the information on Zoladex. You inspire me with your own personal war on this beast. I will consult with my Med/Onc about trying Zoladex. Many years my friend....
Thanks Jack. My MO tried to help but although I probably qualified financially (per month income), they (the Drug company) wanted my complete financials including banking, house worth, and many...
Thanks Mumbo. My medicare D was quoting nothing but out of range numbers. 2025 is a godsend in terms of cost....
Thanks everyone for your replies. Insurance will cover this but this year's deductible is $6,800! I will have to hold out until Jan. 2025 when the new medicare drug rules kick in. Then I can swing...
I have been using Firmagon (with abiraterone) for the last three months while undergoing Proton radiation to my lymph nodes. My first double dose went well, only minor discomfort and swelling at...
Has anyone using an AUS had prior radiation?...
Agent, you and I have a very similar history. 12 years without much of a problem. However, My post RP PSA persisted. Then HT and radiation. Fast forward, I aited a few years ago for my psa to rise...
Urologist in general have been using that scare tactic for years. With modern radiation, you can have salvage surgery. The statement that you cannot have surgery or that surgeons will decline to do...
This is great news. I have always held out hope with radiopharmaceutical approaches. Let's hope this leads to possible durable responses....
I am not an expert nor a doctor but the last sentence right now is the most important, "no metastasis"....
Hi JAPS! At just .2 psa level a PSMA may not show anything. So what does your MD base his radiate the prostate bed opinion on? Seems to me that he should let the PSA level rise before taking a stab...
So glad to hear you've been approved. It just didn't make sense that with your stats they would not. Good luck, hang in there....
I followed his posts for many years. We had a lot in common. RIP brother. You'll will be missed by many people....
Wow, what a loss. Growing up with his music was a blessing. So many good times with his music playing. RIP...
Thank you Todd for great inspiration and information. I forwarded your email post to someone who really needed to read this since he is very young with a very aggressive prognosis. What would we do...
Sorry to hear about your loss. Losing a pet is very hard, they are family. I remember your story well Todd. I would read your updates all the time starting in 2011 when my battle started. I remember...
Stephen S. I completely agree with focusing on obtaining a PSMA scan. However, most insurance will not cover it if this is your first time with prostate cancer. It is approved for recurrence. I think...
Just wanted to say that it took me a long time to realize that urologists are surgeons. That is why most want you to do surgery right away. But I have learned that the best approach to prostate...
Wow, I am truly humbled by your journey. Your posts are very informative and inspiring. Keep the faith, my fellow traveler....
OK, I think I understand. I have medicare plan G from Mutual of Omaha which was the best I could get when I enrolled 4 years ago. Glad I did cause now I need it....
Thanks JNF!...
Thank you Mumbo. Yes, after Northwestern, may try Mayo....
Hello fellow fighters. I got 2 questions. I've recently had a PSMA scan which showed mets in my pelvic region. 2 clusters of 4 and 1 in the middle. I had complete RALP failure with PSA 2 months after...
Thank you Sir. Stay in touch please....
Best wishes to you sir. I am back with mets and a new journey begins. Thank God I have a great caring wife by my side....
This happened to me too. Nothing to worry about as long as blood is not mixed in the urine. You will get spotting in the future if you are like me. After sex or next day for me....
Been away for awhile and think I am on the same path as you and appreciate the insight to this long journey that for me is starting all over again. Thought I had this under control. Kinda freaking...
Yep, takes a long while but you must keep working at it. Slowly but surely, It took me a couple of years to get to 90% of what I was. But it's worth the effort if you know what I mean....
Terrible Doctors and insurance plans = no plan at all. Glad for you....
Hang in there. I was worried too but things did get better....
I did ADT just one three month shot before SRT. That was when only a Canadian study supported but no one else. I begged my doctor for it and never looked back. It wasn't that bad. Plus you can always...
Thanks all for your input. Yeah, RT continues to give it blessing years after....