Most guys using this site are searching for information. An AI site I’ve been using is an app called Perplexity. It’s a free app and I find it easy to use for general information. Best wishes…Terry...
I too had a little burning during urination and ejaculation that started following the third treatment and lasted about two weeks. The radiation team said I should expect this. It was minor and over...
Treated at age 69 with SBRT. Currently age 77 and sex is still great. Ejaculate significantly reduced; but, orgasm still strong and pleasant. I was not treated with ADT meds and I was encouraged to...
I was treated at Cleveland Clinic (SBRT) with an excellent experience and results. We had a total of eight visits. The first was to be evaluated. The second was to have the gold markers placed. The...
Drifter…Always nice hearing good results from another successfully treated radiation guy. Wishing you continued good results. Terry...
Julius…Mumbo and Halbert have provided some excellent advice. I’m a low risk guy who chose SBRT for treatment. Although all the treatments offered very high cure rates for my situation this form of...
Love hearing good news. I’m also one who credits this forum for helping me make an informed treatment decision. Best wishes…Terry...
I’m one of the guys who chose SBRT after my urologist told me the same thing. I found SBRT to be easy, convenient, and very effective. Glad to see you doing your homework. The best decision is an...
A friend with a very large prostate and significant urinary issues recently had a PAE (prostate artery embolism) and he says he no longer needs medication and his urinary issues are gone. It’s a...
Denver…Sorry your recovery isn’t going faster. Don’t give up and keep doing the exercises. When they remove your prostate they also remove one of your urinary sphincters and that causes some men more...
Sailor…Medical students all must take the Hippocratic Oath and one of the promises is to “first, do no harm”. Maybe that’s one of the reasons that medical care sometimes seems to move more slowly...
I just spoke with a friend who had an evaluation at Cleveland Clinic for PCa using SBRT. This latest information is second hand and I don’t know all the details of my friend’s diagnosis; however, I...
Congratulations Hal; and, “Thanks” for all you do on this forum. I’ll toast you with a nice glass of wine. Terry...
hrp…Even as a low risk uncomplicated case (Gleason 6) I had a team experience at CCI. My RO and a fifth year intern both did thorough work ups and interviews. Even though I had ruled out surgery;...
Leo, Sorry to have you back here. You’ve been given some excellent information and I’m sure if you share your location one or more members might offer additional information regarding their...
Larry…My first two SBRT treatments were non events that had me questioning if they even had the ‘beam’ turned on. Following the third treatment I experienced burning when urinating and my wife (an...
EJC, It’s my understanding that radiation messes with the PCa’s DNA making it unable to reproduce rather than killing it immediately. As the cells die off they can still express various amounts of...
Djin, We often give new members the advice to “be your own advocate”. I can’t think of anyone more informed than you as an advocate. Best wishes….Terry...
Dave, It’s been eight years since my SBRT treatment and my ‘toasted’ prostate continues to decline in it’s ability to express PSA. I continue to follow the advice of avoiding cycling and sex prior to...
Rigger…Welcome to the forum and glad you found us. One of the biggest challenges of this disease is wading through all the treatment options to find the best one for your particular situation. When...
If RO’s were the physicians diagnosing PCa…I wonder what % of men would choose surgery for treatment?...
TD, As you weigh the different treatment options you may wish to look at the nomogram data on the Memorial Sloan Kettering site for PCa. It was developed from thousands of data points of guys who had...
Touchdown…I can’t add to the great advice above other than to say welcome. This forum was extremely helpful to me when I was diagnosed even pointing out treatment options that my urologist was not...
Jim, Just points out that every medication, treatment, vaccine etc. comes with some risk of undesirable side effects. In February ‘21 when Covid Vaccines were just becoming available I had a similar...
Jason, Sorry to hear your choice of treatment is limited; however, you’ve done a great job of exploring your options. As others have pointed out, find a skilled surgeon and one you have confidence...
Jason, A PSA test is like a “check engine light”; it can be the result of several things and signals addition checks are necessary. A biopsy is much more definitive and your’s was positive with some...
Jason, We each have unique circumstances that need to be applied to our treatment choice. One size fits no one regarding treatment choice in PCa. It pays to do your research and select the best...
Jason, My stats would suggest I was an ideal candidate for active surveillance; however, recent joint replacements due to arthritis had me very concerned about additional biopsy infection risks. I...
Jason, Every treatment option has treatment risks. It’s important to understand those risks and select the best treatment option for each personal situation. Most urologists down play the risks...
Vince… I wonder how much of the ‘new normal’ is discussed prior to surgery by the urologist. BTW, the information I posted earlier is mostly from discussion with one of the guys I cycle with. We were...
The medical term for leaking urine during orgasm is climacturia and unfortunately it’s rarely discussed. It’s very common for more than 50% of men when their prostate is removed. It can also occur in...
Seven years post SBRT with mostly a dry orgasm and that’s the only side effect. A lot to be grateful for. The dry orgasm is no big deal for myself or my spouse of fifty-five years tomorrow. In fact...
Great results!! I wish more guys would consider that treatment option. Any negative side effects to report?…Terry...
Larry, Although I’m following this thread; I was in an entirely different risk group when diagnosed. I did find the prostatecancerfree.org site helpful in evaluating the various treatment options....
Idog…Always good to be vigilant; but, probably way too early to be concerned. I’d retest in six months. A PSA of .2 for guys still having their prostate is still a very low number. Best wishes…Terry...
Sela, Glad you found this forum and it’s wealth of sound information. The best medical decisions are always informed ones. Best wishes…Terry...
hrpufnstuf…You may wish to contact Dr. Rahul Tendulkar at Cleveland Clinic. I’m sure he would know what work has been done regarding SBRT as a salvage option. I found him to be easy to talk to and...
DBozz, Best wishes for continued low numbers. Don’t panic if you see a bounce down the road as it can be quite normal. As you can see from my numbers below the road has been bouncy. I’m currently on...
JR…The best treatment decision is the one you select after thoroughly evaluating all the options. Unfortunately far too many men make that decision without understanding their options. Glad to see...
Can’t speak of the effects of ADT; however, I have four total joint replacements (both shoulders and knees) due to osteoarthritis. The surgeons have you on a stationary bike within hours of knee...
JR… I believe every treatment decision includes some risk of unwanted side effects. I chose SBRT since the data I looked at suggested it would cure my cancer with the lowest risk of unwanted side...
GG…I don’t know the accuracy of PSA testing but PSA is expressed in nanograms per milliliter. This is the same as parts per billion…indeed a very small number. I can’t even imagine how many parts are...
Made my morning. Thanks....
Hi Tom…A recent veteran’s Administration study of the risks of secondary cancers from radiation treatment for prostate cancer was shown to be very low. Prostate radiation only slightly increases the...
I rarely have to get up unless I drink a lot of liquid prior to bed time....
hrpufnstuf…I’ll be following you on this new journey. The fact you were a fellow low volume Gleason 6 when originally diagnosed is certainly in your favor and something I can relate to. Duke is a...
No DRE here since radiation treatment. I currently only do a yearly PSA check. Life is good....
JR…A day or two following my biopsy I got a call from urologist saying my biopsy was positive for cancer and to schedule an appointment with his office to discuss treatment. The earliest available...
JPS…Very tough diagnosis for sure. For high risk guys a single monotherapy treatment may not be the choice that offers the best odds for a cure. I hope you’re considering MSK. It’s a center for...
JAW…I had SBRT in June of 2017. Back then SpaceOAR (gel) was just getting started and I had an endorectal balloon at each of my five fractions (treatments). I did not have rectal or bowel issues at...