I know that my sequence of events was that I asked my GP to start PSA testing and annual DRE starting when I was about 45--in large part because my father was dealing with PCa at about that time (he...
I was diagnosed in 2015, but the recommendations--especially the later revisions and backtracking--led to a grumpy consensus in this group that what they are reporting was, in fact, coming. Sadly,...
All we have in science is consensus of experts. In science there are exactly zero sure things. That's just how it is. Chris, the consensus of the best students of Prostate cancer, worldwide, is that...
The key point still seems to be to have "same as possible" tests done repetitively over a period of time--the sweet spot seems to be at 3 month intervals--and then make a judgement about what is...
As I noted, to actually find something is going to require a deep dive into the dark arts of high end scans. And, if something IS proven to be there, you'll be so far out on the edge of the bell...
Chris, that's certainly not what you were hoping for, and it may be that it's been like that for a long time. Particularly with an organ confined G6, you'd be a very interesting research case. AFIAK,...
I'm almost exactly 10 years since surgery (mid February), and I've been <0.006 the whole time. My observation in this forum for that long is the key worry point is how much G4 or G5 was found in the...
You might check on the labcorp website. You might be able to request it without a dr order?...
Interesting. I'm tempted to stop the cialis (daily, 2.5 mg) for a few days or a week and see what happens....
Fl: I hadn't heard of the cialis/GERD connection before. Interesting. I've had GERD for years, and I do have a diagnosed hiatal hernia--but still, interesting....
I don't have a dog in this fight, but I think Paxton makes a great point. For men with a diagnosis that suggests ADT is required for treatment, then TRT supplementation is, by definition,...
I've never heard anything either way about your question. A key point for you going forward, is to do your best to have this--and all future tests--under as near as possible the same conditions. Time...
Some important questions: How old is he? What was his initial treatment? Where is he being treated? I'm assuming you're in the US--if not please share where you are. He needs to be at a center of...
I've been on 2.5 mg daily since surgery....
I got a facebook memory this morning--that it was 10 years ago last Friday that my wife and I drove down to St. Louis from our small town 100 miles away to visit the team at Barnes-Jewish. The thing...
N, I hear you. I lost my dad to this disease when he was 78, 20 years ago. In his case, it came back with a vengeance 10 years after his primary treatment, and got into his spine. At that point, 20...
nmckinley, None of us are oncologists, so it's hard to give a specific answer. So much depends on what his history has been, and his responses to the therapies and, importantly, the side effects. I'm...
tg: yep. I was G6 at diagnosis and G7 3+4 on post surgery pathology. I wonder how long I would have been on AS if I had gone that route?...
I'll note that the art of PC treatment has advanced considerably just in the last 10 years. 10 years ago the "new" things that were only available at select locations included: 3T MRI (that's been...
At his age, he probably does. Most men of a certain age do, as we know. Also, most men are loath to publish their medical situation to even their closest friends, never mind the rest of the world, as...
In the end, there is no 'right way' for a politician to have a medical issue. If he makes the effort to be fully transparent, then people will nit-pick his decision to have whatever treatment he is...
Did anyone else see the comment that he had an infection that was treated with antibiotics and he went home?...
1. He's an old man 2. He has BPH that led to an infection 3. At his age, he probably does have low grade PCa, just like the majority of men his age Duh. Political office press releases and "official...
Devastated, how old is he? That is still a key question--but he should consult with a Urologist to see if he has other things happening. If he's having early BPH symptoms that can also have an...
Some men report ejaculate after radiation, some do not. It's one of those variable things. Those of us who had surgery absolutely do not ejaculate any more, but have orgasms....
Teddy, sorry no I do not. Are you in the Philly area?...
Halbert, I’m about 5-6 hours south of Cleveland. Everything that we might be considering might involve flying, as I don’t find long driving trips as doable as I once did. I can say that Cleveland...
Jason, why can't you have radiation? You can, and you may need it depending on what your PSA does over the next months. That being said, when I first came into this forum 10 years ago, AS was talked...
Where are you located (where are you travelling from)? SBRT is definitely within the standard of care for cases like yours. Did they recommend a course of ADT concurrent with the radiation? Or doing...
You'll find answers all over the map. Learning how to do Kegals is one thing. Hint: Figure out how to do them, then practice doing it as you stand up from a sitting position. After a while, it...
Every year there are people who fall from ladders and roofs while putting up lights who end up permanently disabled or die from their injuries....
This was discussed in here in the past. As late as 2020, Epstein was saying that "true" G6 never goes metastatic--it could grow and cause issues, but it never let cells loose into the bloodstream....
Ultimately, it is really important to do your tests as consistently as possible. Same time of day, similar diet, similar hydration levels, same test site, etc. The goal is to eliminate as many...
At those levels, changes in the 3rd decimal place are only of interest if they repeat or move upward over time. It's a statistical thing. Just understand that you probably need to be up as high as...
For you, I think it's time to move past the Urologist. Seriously. A dedicated oncologist (not a radiation expert) is the door you need to break down. Where are you being treated?...
It goes almost without saying that prostatectomy results in loss of ejaculatory function. However, loss of ejaculation is not the same as ED or loss of ability to get and sustain an erection, nor is...
I'd agree. Find an experienced Medical Oncologist who specializes in PC. Not only do they know how to play the insurance game, they also know how to find the source and deal with it....
Small world indeed. My maternal grandparents lived in Downer's Grove for years, my mother grew up there, and my grandparents are buried at Clarendon Hills Cemetery....
Yoop, LTNS! Glad you're doing well! This is sad to hear. He had a long a productive life, and it is good to celebrate that....
Julius, I was very close to your age when I was diagnosed, 10 year ago. I chose surgery, and have had a full recovery. That being said, some percentage of men who opt for surgery end up with lifetime...
Asking why they are doing things a certain way is always important. Asking our medical people if they can work around our plans is always important as well. Now, that doesn't mean the 'why' is always...
In 2015, I had the foley in for 7 days after RALP. I seem to recall being told then that 7-10 days was typical, longer was rarely done....
So today, December 5, marks 10 years since I got "the phone call", and life changed forever. It was a day like many others. I had had the biopsy a few days before. I knew I would be getting the...
Patrick, I'm also wondering why you never used the ultrasensitive PSA. I'm in the same treatment cohort as you--surgery about 10 years ago--and I've always been on the ultrasensitive test, and I...
ED is incredibly variable. I'd call the PA and push for a 30 or 90 day supply of the 5 mg cialis. GoodRX can help with the cost, check it out. The purpose of the daily cialis is to generally increase...
TD, Welcome back, I hope you're getting there. It's good to hear your PSA is gone. That's a hooray! It's also great to hear that it was organ confined! You should have received a post-surgery...
Long delayed BCR is sort of new ground in PCa world. This is, to me, one of the side effects of the benefit of high sensitivity PSA, as well as the improvements in scans such as PSMA. It wasn't that...
Pratoman wrote: Anyway, we can try to guide men to make educated decisions, but once that individual makes the decision, support is the best thing we could offer. JMHO[/quote] This is one of the...
Thanks! We're about the same age, you were diagnosed younger. I'd definitely be getting some focus on relatively frequent testing to really verify a trend. It's probably really important to have your...
Dalota, You're right, we've seen several recent posts from long timers who are seeing a PSA rise years after treatment. I'm not nervous--yet--I'm coming up on 10 years since my RALP. So far so good....