Does anyone on here use mushroom coffee? before I go out and buy some, any positive feedback? it claims to improve digestion, reduce inflammation, no jitters, no crash... and just watch it put me...
Hello all, well the positive news continues from my side. I did my colonoscopy on 10/14 so a week or so ago, they also did endoscopy while I was knocked out. So long story short, I was doing well...
Help! My poop now is decently formed and continuous, but the problem is I see spots of blood every 3-5 inches along the poop from beginning to end - it's been going like this for a several weeks. So...
prepare questions beforehand and be demanding, and keep asking questions to not let these doctors walk out so quickly from appts. they need to spend at least 10 minutes with you. don't feel bad, they...
So hard to kill the bread habit, and when I start feeling better I immediately start experimenting. The dumb human instinct kicks in quick on me. But I will give this diet a try. By the way, what...
give us little more info, how often are you going, blood, mucus present? urgency? I suggest giving bland diet a try for a week or so, and take probiotics. mesalamine enemas are always a good option...
I think you should take some type of maintenance meds. Strange your cal protect is 4k and minimal inflamation You ever thought to put Visbiome inside your rectal meds? I’m recomending that to all now...
Visbiome has dairy and sadly bothers me ☹️ I noticed Mutaflor is in a gastric-resistant hard capsule. Why dont they use this same capsules for all probiotics?? Especially the multi-strain ones. It’s...
I want to curb my enthusiasm here, but I've had success with VSL4 into the mesalamine enema. in 2-3 days my mucus stopped and urgency subsided. I can now fart! yes I can fart :) - but the...
So I put the content of 1 VSL4 pill in the mesalamine enema last night and squeezed it in. No victory lap yet, but today was better than yesterday, and yesterday was better than the day before. today...
quincy, looks like you're spot on, I only get it when moving around, looking up or turning head too quickly. not when laying down. I think it's gotten worse because when I wipe I put my head down to...
Thank you for your concern. I measure my BP and it's in the 115/80 range so my BP is ok, I'm functional and I go to work, long days, I lowered my rinvoq dose to 15 mg today but the lightheadedness...
quick update: I got the mutaflor yesterday, surprisingly fast. was sent by an address in Washington state, ice-packs were still cold, they said it would take 2 weeks, it arrived in about 3-4 days....
I'm getting lots of lightheadedness recently, lasting all day, nearly fainting many times, and I believe it's from Rinvoq....
😅 that was dumb of me. Of course it’s a probiotic. I did find the other threads, but I figured I’ll start a new one since those were very old, to see if anybody’s actively using it. Once I start it...
anyone had any experience with Mutaflor? it's not sold in USA but I did some research and found this pharmacy online from Canada that sells it. I just placed an order for 80 pills with shipping and...
have you tried some psyllium husk powder? start with 1/2 teaspoon - take it 1 hour after medications because it may affect the way meds get absorbed....
I didn’t mention that the hydrocortisone enemas they work great for me to get me through the morning. But when the afternoon comes their effect has disappeared. Btw I think i may have just gotten...
The urgency is definitely there, I forgot to mention that. I have white rice, potatoes, as a staple. Salmon, ckn, some red meat, bananas, started blueberries and quick oats yesterday. I produce most...
Hi all, I've been on Rinvoq for 1.5 years, was on remission in April 2024, and got a flare-up in May which put me back on 45 mg Rinvoq. While poop is starting to form, the last part of the colon...
I've been on Rinvoq for almost a year as well, it's very weird the way it works with me, it takes a very long time to put me on remission, and while I was on maintenance dose I got another flare...
Why kefir? Have you tried to go dairy free?...
Mom2, I noticed you are on dairy and gluten free. Do you feel like that is helping you? I have been going back-and-forth with dairy. And I stopped gluten several weeks ago....
I’m in this situation now, my mesalamine enemas are 10 months past expiration. I wonder what your experience has been using expired mesalamine enemas. I used 3 enemas so far. Hard to tell if they are...
I had covid mid September and my GI advised me to stop Rinvoq. The interesting part is that i went through covid with little issues, and then soon as i restarted Rinvoq i got a respiratory infection....
there are many other threads on here, some bragging about the powers of VSL#3, the reason for my post is to remind members not to forget about Probiotics and give VSL a try but be careful who you buy...
are you on any probiotics? try VSL#3, I've been on and off of it and fingers crossed it seems to be helping me this time around. I'm also on Rinvoq 30 mg, but to me, it feels Rinvoq never really...
Resurrecting this thread. Anyone else tried Manuka Honey enemas?...
I have a stressful and hectic lifestyle so I’m no measuring stick for lots of meds, but i went from 45 rinvoq to 30 (45 shocked my colitis sort of speak and wowed me for first week.. that’s it, then...
I’m in a similar situation and did not want to open a new thread. I’m on Rinvoq 30mg and still having lots of mucus and urgency and frequency. Been taking Rinvoq for several months now. After first...
2013 was the year for me so i’m going into 10 years. Failing inflectra and waiting on Rinvoq approval. I’m at the tailend of a 3 month flare. Still not out of the woods yet, but my good lod friend...
Hi, i am doing a lot better, 2 times i prepared poop test i could not deliver it to the lab with 24 hrs 🤦🏻♂️ but good news pred 40 mg finally got it under control. I’ve lowered it 20. Stool has...
Not a cure, but good soothing teas. In the balkans they use Blackberry and Raspberry leaves for tea to calm upset stomach. I did a superficial lookup online and long and behold there are anti...
How long does it take for Pred 40 mg to make significant dent to a bad flare? From your experience...
Thanks, Susie! I'll do a test tomorrow, I have the kit here at home. last time they tested me was in October....
I looked at SIBO's signs and symptoms and I clearly don't have that, so I can rule that out. for now i'm just sticking to a low residue diet, low fiber until i get some control over the flare My...
Thanks "MedicalNerd" I'd love to check out that article. But for now I'm going to avoid Manuka. I am having so much gas and cramping and what looks like a wound on my hemies because it drips blood...
Thanks for asking. I just did my 3rd loading dose of inflectra which looks like i’m flunking. So i started 40mg pred last night. And already seeing results. prednison never fails thank God. And i’m...
Noodlesnoodles is right. Mesalamine enemas did this to me all the time, but only when i was able to retain them overnight and they traveled far. And yes very often the first part of the stool did not...
Thanks for starting this thread. I was just suggested Rinvoq by my GI as my next stop after we exhaust one more dose of inflectra. I have read the numbers on rinvoq and yes it is not for everyone....
Hey guys, i used to have manuka honey a lot, but in the past 6 months i’ve associated it with worsening my flares. So i’ve quietly avoided it. But i love manuka. Am i being crazy? have you ever heard...
I’m on inflectra (remicade’s sister) and seems i’m failing it too. Did it ever put you in remission during that 1 year? Did you ever see any significant improvement from Remicade?...
Bad day, feels like the day i went to ER, so i started pred like GI suggested. 20mg 2x a day. Will keep you posted. I hope inflectra decides to kick in...
What techniques do you guys use to avoid straining? At this stage i am right now feels impossible to avoid that final push. I have tried the squatting, deep breathing, the stepstool under the feet. I...
I figured Rusty didn't mind :D well I saw the GI yesterday and we both sort of agreed that I am flunking inflectra but we don’t want to give up yet. In four weeks I will get the 10 mg/kg and see how...
Today in the morning, my bowel movement didn’t look terrible, better than anything I’ve seen in the past week. However, after the main bowel movement, I go every other hour or every hour to get out...
We both sort of agreed that I am flunking inflectra but we don’t want to give up yet. In four weeks I will get the 10 mg/kg and see how I do on that. If I don’t get any improvement in a few days, he...
I have an appt with the dr today in about an hour. I would have never thought inflectra not working for me. But it surely looks that way. I’m having D for many days now. And that last part of the...
so I got my IFX blood work result today, my levels are at 20.6, well within therapeutic levels. but i'm still having watery diarheah, cloudy-looking liquids. some cramping and definitely urgency...
Nah I wish it was the enemas. Well i did infusion #3 yesterday (love it how they call it infusion 😅), had a super rough night last night waking up every 1-2 hours, gass and D and pain, but the...