Ohhh, that's a lot to mentally digest. Have you checked out the Ostomy forum ... you could ask further questions on there regarding their experiences and support. Do you have a time period of when...
Hi Joan...yes, hormones can have an influence on bms and flares. It can also depend on how much they fluctuate. You mentioned enemas (Im assuming liquid) ...what dosage, and were you using them...
I didnt realise stoma was in the plan...you're right that it's a serious decision! However, is the hysterectomy still in the plans? With that done, and you on HRT, at least those areas won't grow...
Anna...when will your appt be with the specialist? q...
That mental cycle is understandable...unless supplemented well, it can go south quickly. 😳 q...
straydog...unexpected shocking story...oh wow!!!! A relief he was a good surgeon and did further exploration and did what was needed to save your life. How long was recovery, and how long did you...
Anna and straydog...what part of the bowel is/was affected? Anna...with complete hysterectomy, HRT estrogen keeps whatever areas of endo controlled if there are any cells not removed during surgery....
CC...wow, that's brutal!! I can vividly remember the handful of times of having those symptoms in my life...always blamed it on "food poisoning". To this day corn chowder makes me cringe 😳 Hard to...
Hi...I had a total hysterectomy at age 39 ( 1993) because of fibroids and endo. I haven't regretted it a day...except the first night after surgery was painful and I was extremely nauseated. Demerol...
Hi UBT...I'm sad for your loss and that you're going through a horrible and life altering grieving process. It's numbing to the psyche. Regarding food insecurity, would you use a food bank to help...
Hi Andreita...you could ask your doc for an antianxiety med...even in low dosages, it can help. I also think that small meals of what cover good nutrition over the day and are easily digestible would...
Curious what dosage and tapering schedule you're on? Getting on mesalamine oral/rectal will have it start treating before you're going through the possible yo-yo tapering process at lower dosages....
Thanks for the info. q...
It initially sounds like CD...and as stated above, it's good it was caught now and not ignored. With availability of information, the array of medications, and you as her mom, there is much support...
My first GI mentioned there are Ucers whose symptoms don't match intensity of inflammation...seems you're one! So now I'm curious as to how your symptoms were when it was determined you needed a...
So, basically one bm a day, normal? q...
2x weekly or 14x month isn't going to treat the lower part effectively, considering the inflammation you have. Get on the enemas nightly for at least a month or more and see how your symptoms are....
Just into and beyond depending on how much stool is in the colon at the time (in my perspective). But descending colon will be treated with oral mesalamine. q...
👍🏻😊 q...
😒 q...
Yay!!! To be celebrated...🙌 q...
Good to hear surgery went well...hopefully your "forever little stoma" will be healing nicely and you can get home soon. I'm happy for you to have gotten this done! Hugs, q...
Hi Steve...welcome to the forum! You need both oral and rectal mesalamines...and I wouldn't wait till the pred is finished. I also suggest you set up a colonoscopy for a full colon assessment and go...
Clo...🤯 They mustn't know who they're dealing with! I hope all gets straightened out sooner than later. q...
OM...Im in shock as to how much you've been through. I agree to get checked out regardless...please keep us updated. q...
Nattyjk...I'll give you my perspective on mesalamines, which I've been on coming up 36 years. Over the past 5 C-scopes, pathology reports have been normal. Architectural changes in the past have...
Good to hear enzymes are improving...hope you feel much better in the New year! Hugs, q...
Same to you and all! I'm hopeful 😉 q...
Yeah, eating late can be uncomfortable. If it continues, then get checked out. You could try an otc acid reducer such as Zantac or Pepcid AC (not the Pepcid Complete). Hope you have a good New Year...
Let us know the results. Curious if you're having any constipation? q...
Hi...are you on any medications, and did you happen to be eating anything new as of late? I recently had a burping incident with a foamy type of spit. I can't remember what I ate that day, but it was...
Sucks about the UTI...I suggest you get on good probiotics and stay on them. Did you have an upper scope to diagnosenthe H. Pylori? Are you still on the omeprazole? q...
Awesome the docs are doing further testing and not just stating all is OK. Not that it isn't...just saying it because I sometimes don't trust first comments as fact😊 but it does take a while to heal...
Hi...what liver enzymes are high? I hope you get further testing. It's good the sufasalazine was considered and the dosage lowered...however, your liver enzymes would still be a concern. Definitely...
I have no suggestions, but where you are at this point sounds good symptom-wise (which is always good). So not a lump of coal, per se. 😉 I hope the new medication infusions changes things for the...
Beyond for sure! I don't remember how long she continued it, tho. q...
Yep...she was an extreme in her beliefs of helping herself. q...
Hi...I've never had issues with any of the probiotics I've taken...but I take them at bedtime. You could try that. Any new food or overindulgence as of late? You are flaring, however. Re...
You definitely should see a doctor for a work-up and blood tests to see if your thyroid or blood glucose or vitamins / minerals are not in range. Your doctor will make suggestions for an...
Interesting! People don't drink coffee because they feel crappy afterward...so right there is a benefit😁 Reports are always wavering in the good and bad of it. True story...a friend (who has since...
Have you had an upper scope to check if anything is going on in your stomach or esophagus? I also suggest you get tested for H. Pylori. A blood test can at least give an initial diagnosis. You could...
I would phone and say I can't do it, but I'd do the gallon prep. It's mean and unnecessary distress for a patient. Cry if you have to ... I've not heard of a doctor being that strict about it,...
Nattyjk...welcome to the forum! Are you able to do any of the gallon preps? It's the only one I'll do, and I'd never split it. I call that unnecessary punishment 🙄 What time is your scope? q...
Im excited for you to feel better. Awesome that its soon! Looking forward to your update! q...
Let us know when you'll be having your surgery...I can understand getting rid of it, and hopefully you'll have calm after healing. q...
Keep us updated on your future appointments. q...
IAC...yes, but not really lol. It's unfortunate not all are able to use mesalamines. I had an amazing doctor for 25 years who answered all my questions and explained the how, why and what etc., and...
Songlady...impressive find by the consult doctors and the plan for your treatment. I have a different kind of fight, but chemo would put me on a different level mentally and physically that I know I...
kk...great to see you! Thank you 😊 q...
I haven't considered it at this point. I get my vaccines spread out, so I'll should discuss it with my doctor when she gets back from maternity leave in January or February. q...