IM on entyvio over the summer I was going through a flare changed my diet to a carnivore diet meat fish and eggs im much better I dont think entyvio is working for me at all Im still on it the diet...
I achieved remission in about 8 weeks or so was doing good for about 3 years then in June this year started getting a flare which was getting worse. In July I received my infusion which I thought was...
Im failing entyvio almost 4 years on the medication started flaring and then I did a low carb diet basically eat meat fish and eggs and a hand full of nuts a day and some chocolate not much though...
just saw a commercial with the Entyvio pen medicare wont cover the Pen...
Thats horriible news Im on entyvio which its starting to fail me Dr wants me to go on remicade Im on medicare hopefully we can go to a hospital these drugs are to expensive...
Thank you for all the info thats what Im going to do opt out of aetna and get a supplement plan with medicare its going to cost me more living in ny but its worth it. Im looking at plan G looks they...
nyc is saving money forcing nyc retirees who worked for the city off medicare to medicare advantage we were promised one thing and in one week they change a law to do this from what i understand...
i m on regular medicare as of now but in september I will be forced on medicare advantage in september all nyc employes who worked for nyc will be forced into medicare advantage atnea i know part b...
thanks i did look at the thread kind of confusing...
I m getting forced into medicare advantage aetna from senior care (regular medicare) does anybody have medicare advantage aetna who gets entyvio infusions knows the coverage...
I held out for 7 years finally went on Entyvio life changer 1 year on it thankgod for medicare would of went on it earlier way to expensive all these meds are expensive gained 40 pounds back look...
I agree with Vanjordan im on entyvio havnt been this good in 7 years why take a chance with the vaccine shot I had covid natural immunity unfortunaly Im in a blue state...
having a bad upper respiratory cold just wondering if anybody had same issues with entyvio and wondering if it will be an on going issue had my my 3rd dose seeing big improvements finally able to...
I been on it for about a year...
im still on ldn got me out of a flare but could never put me over the top still had urgency and about 5 trips to the bathhroom each day right now Im on entyvio with some improvement only had 2 doses...
Thankyou for the info Had my first dose of entyvio hoping for the best I been on rectal meds steroids uceris foam and pill Lialda LDL bupropion all of these meds only worked for a short time At this...
colonoscopy mild to moderate having second thoughts about the entyvio Im not as bad as I was still having urgency issues will entyvio help the rectum heal 7 years of having UC and could never get the...
thankyou for the info Flowersgal...
Well I been trying almost 7 years not to do biologics lost so much weight tried everything I want to go back to myself the way I was before UC waiting on my Dr to set me up for and infusion entyivo...
My UC started 6 years ago I took 2 sets of antibiotics for a bad sinus infection was never right after that do to my crummy insurance Im always looking for outside the box cures tried all differnt...
I give the Prime Minster alot of credit a man in his position running a country and battling UC.People dont understand what your going through with a autoimmune disease I know for me its been a...
not yet just the homemade yogurt...
I want to thank everybody on this post for letting people know about LDN I been on it for 7 weeks Im taking 4 ml worked my way up Starting at 2ml I was in a bad flare for months taking all my meds...
Thankyou for the info everybody I just called the Dr. to get that sample kit and give it a couple of more days if there is no improvement I will start the Wellbutrin and see if I can speak to the Dr....
I m on mesalamine supp and lialda 4.8 grams and uceris foam Everytime I eat something my stomach gurgles and when I lay down my stomach gurgles I always had urgency I just couldn't get rid of that...
I cant believe how bad I got from going 2 to 3 times a day with some urgency to now just diarrhea no blood or mucus and no pain I m hoping its a stomach bug but my left side of my stomach gurgles...
Lately I been using the 2 uceris foam tubes putting them together and cutting the rim off 1 of them to help push the mesalamine suppository further up the rectum seems to be working for me before I...
Sara did you take 3 100mg a day immediate release Wellbutrin...
Last year I started taking Bupropion 300 mg every day I was in a bad flare I was also doing Briggs protocol I think the bupropion got me out of the flare wasnt in remission but I was doing much...
Hope it works for you I was on 300 mg a day IR for about 5 months first 2 weeks I had anger problems but once the medication kicked in I was fine before I started bupropion I was going 7 to 8 times a...
I asked my doctor about the uceris foam I ask him how long can I take it on the box it says to take it for six weeks he mentioned I can take it longer last year I was on it for about 3 months worked...
Who knows what happen to Briggs, the way I look at it is my next step was entivo which I couldn't afford anyway and entivo has its share of side effects Buproipion has been around for about 30 years...
The only suppository I use is the canasa I don't do that part of the protocol...
I did the Briggs protocol started about 5 months ago at the time it was the worst I ever been, I follow the program but I don't do the gluten free diet, about 1 week on the program I improved to my...
I m using a old medication that is not for Colitis I found out about it reading a post on this site its bupropion and I also take lialda I been on it for about 2 months and I weaned myself off...
I just read all the post on this page I really don't know much about the science or or how people get Colitis I been taking bupropion for almost three weeks after a terrible flare I was on 40 mg...
About 2 months ago I had flare going about 10 to 12 times a day had no blood or mucus went to the doctor did a stool test nothing showed up he prescribed me prednisone 40 mg I was taking them for...
My Doctor never prescribed the enemas I'll talk to him about when I see him Thanks for the reply...
Hi everyone I had ulceris colitis about 4 years now currently on lialda and canasa and taking vsl #3 and I was on uceris foam for about 3 months or so I stopped taking the foam about 3 weeks ago been...
I was 46 when I took 2 sets of antibiotics and I was diagnosed with ulceris colitis a month after that I never had any symptons before that it was about 4 years ago I remember telling the doctor...
its a liquid in a tube its used for nebulizers...
I don't know I'm sure ill figure out a way ill talk to dr first he gonna probably think I'm nuts...
I get it under the world trade center bill for my sinuses. I have about 4 boxes of it. I was just wondering if I could use it like a enema . I guess ill ask the doc in a couple of weeks. to bad...
i just have so much of it...
I take saccharomyces boulardil once or twice a day I mentioned the enemas last time to the DR he said to take uceris foam twice a day for 2 weeks and then once a day but ill ask him again I'm going...
I been on uceris foam for about 3 months I see my dr next month he says I could take it for a while I had no side effects but I'm not fully in remission still have an urgency problem and I go 3 to 4...
I was a Fireman in a big city my UC started about 3 years ago. I was taking antibiotics for a sinus infection took one set didn't work DR recommended a second set of antibiotics took that and my life...
Thank you I'm going to look into it...
This is my second time using uceris foam I have another 4 weeks left but my doctor says I can use as much as I need I'm hoping to use only the mesalmine only it is expensive. Before this flare I was...
Hi everyone tried the scd diet even tried a liquid diet. Meds are expensive thank god I get uceris foam for 25$ and mesalmine which is about 250$ still not in full remission but I can leave the house...