I can’t claim to know much about the science or theories behind any of it to be honest but the girl I went to is very highly regarded in her field and is a Crohns sufferer herself. I have been using...
Oh I fully appreciate that iPoop and I value everybodies opinion on it. I am receiving the same responses of people at home and deep down I am just as sceptical. But as most of us know when you are...
To be fair she wasn’t trying to sell my that this is going to be the solution to my problems. I am well aware of the pitfalls of natural therapies and understand that there is no scientific evidence...
Yeah there is quite a bit to it. There is a fairly detailed protocol that nobody here really wants to hear but they are not all taken together. The first 3 weeks is focusing on breaking down and...
So last month I did a comprehensive stool test with a nutritionist that specializes in dealing with autoimmune diseases and in particular IBD. In the results it showed high levels of certain bacteria...
Well I didn’t crap myself. My UC symptoms were again non existent while playing. My energy levels are gone though and I injured my knee. I feel that all the meds have taken their toll on my body so...
Could definitely be the mental aspect as a major factor. I don’t even think about my Uc when training but if I am at home I find myself thinking about nothing else. I had a calprotectin test done a...
Does anybody else find relief from symptoms when exercising? I am having 5/6 BM's a day with blood, mucus & D. They majority are in the evening, I believe this is when the effect of the Pred wears...
I ended up at the doc twice in one week when I was tapering off Pred convinces I had contracted chicken pox. The anxiety and worry was overbearing. I did not have chicken pox, on either occasion. If...
Yes I definitely have. I was only onto my go nurse today and meant to ask for a prescription. I will call again to organise one. The guessing is the hardest part iPoop. I think I have the ability to...
I had been Pred free for about a month mid summer, 2/3 BM a day. No blood, no mucus, no urgency, no cramping. I was taken off imuran and within about 3 weeks I was put on 30mg of Pred as I became...
I’ve been there iPoop, nothing worse. Tenesmus is very frustrating, annoying, even heart breaking. I was at that stage in April/May this year and with a mix of 2 hospital visits and introducing all...
I always get most worried about Blood I suppose as its the most alarming. Currently I have ~5 BM daily, some D, some soft formed stools, some mucus, some blood, some urgency. I am on; - 50mg of...
What way would everybody rank symptoms in terms of severity. In other words what symptom would indicate that you are in bad shape; •Frequency •Blood •Mucus •Urgency •Cramps •Fatigue I seem to be...
I was dx about 4 years ago but never had any medication. Only treated minor flares with salofalk enemas maybe 2/3 times. to be honest I never treated it with the seriousness it deserved as it never...
Hi countess18 Thanks for that. I am currently getting infusions every 5 weeks but I think I am only getting 5mg/kg bw so maybe there is scope to increase that. I agree, I feel I am a bit away from...
Thanks notsosicklygirl I should have elaborated. I am on 3.2grm of asacolon daily. I use Salofalk enemas on and off when I feel it is mainly in my rectum. I had a scope in April that showed mild...
Thanks iPoop. I was worried that Remicade was the final straw with regards Biologics. I thought I had read that if that fails it is more than likely most others will. I overheard the nurses at my...
This has probably come up a 1000 times on this forum but I am just looking for anybody who has been in a similar situation. I am currently in limbo with my UC - I am not very sick but I am definitely...
Thanks Fletch10, my GI did say they reckon my levels were high simply due to the fact I wa so sick. Rang for results today but no reply so it will be next week. The yellowing seems to have calmed so...
I don’t think I have much Beta Carotene in my diet. I might just be paranoid. The Pred has my mind all over the place...
Anybody have much experience with autoimmune hepatitis? I had bloods done twice before me last Remicade infusion and on both occasions my liver function was slightly elevated. They gave me the...
Doc has me tapering 5mg every seven days so i’ll see how that goes. Due to go on a stag which I am best man for and have organised in Portugal next week. Still undecided about whether I will be up...
IPoop thanks so much for the reply. Yeah I have done a lot of reading online and particularly on this forum about Pred and it’s pretty disheartening. You work so hard to build muscle etc and then...
Hey. New to this forum but have been reading and found in very helpful. I was diagnosed with UC 4/5 years ago but have never had any major flares. Some minor bleeding which I have sorted with enemas....