She has taken the oral Pentasa for about 18 months. Pentasa Suppository 1g at bedtime every night for almost 3 months. Thanks for responding!...
Dear all, My child 11 yr old is using the Pentasa Suppository 1g and oral Pentasa daily to treat her UC pancolitis. Her symptoms have cleared. Yay! For those of you who use this drug, how long to...
Hi Bruce J. I've read your post. Yes in my experience antibiotics calmed down her guts. Now the issue is how to rebuild her gut lining and repopulate with good gut bacteria. She has been taking...
Hmmm. The hospital has done a stool test to check for Cdiff and other bugs...but can't find anything. IBD-AiD is a special diet for UC and Crohn's. Diet developed by a medical school, UMass. One of...
Yes she has been on oral Pentasa 500mg twice a day. We have tried rectal salofalk foam 1g as well. It made her symptoms worse which resulted in our last hospital stay....
Hi all. Hope someone can help here or share their experience with me. My 10 yr old daughter was diagnosed with UC pancolitis Dec 2018. she always showed improvement in symptoms when put on a course...
Her body weight is 23.5 kg. Do u think her medicine dosages are still too low? I will discuss further with the doctor....
Thank you John to your response. When u said a steroid would heal that area faster, are u talking about rectal steroids or oral or combination of both? I also think her symptoms are not controlled at...
Yes I do keep a food journal. Her food list has been tried, tested and just kept to the safe ones. I don't make any changes to food list as I am afraid of making her symptoms worse. Thank u for your...
Hello everyone. I am new here. My daughter, 10 yrs old was diagnosed with UC in Dec 18 and was put on 500mg Pentasa, twice a day. She has pancolitis UC. Her calprotectin is still high at this point,...