CC--Thanks, I am also tapering down 1 pill a month. That's really scary! Did you notice any change in symptoms while doing this? Barnsbury, I am almost 64, am I wrong in thinking it's too late for...
I'm doing really good so far on Rinvoq. It's just over 3 weeks now and I've had no side effects. I was already feeling better the weeks before starting Rinvoq, after a month of Entocort enemas. I...
It's been 12 days on Rinvoq, and still no side effects. It's like I'm in remission, except I am eating way too much carbs and have gained 5 lbs in the last month. That doesn't feel good as my clothes...
Joanna, thanks for the info. I am still on Mezavant and day 3 of Rinvoq. The eye twitch only happened once. I was in colitis denial for over 15 years after original diagnosis. Because I never had...
Hi, I just started Rinvoq. I did qualify for Abbvie Assistance! It's day 2....crossing my 👉 fingers...
Hi Joanna, after reading these posts, my heart breaks for you. Incomparasin my UC is minor. And the way your father treated you is tragic. I started Rinvoq yesterday, after trying Entyvio for a year....
Thank you geezernow and Straydog. I will call again and talk with the OA. I'm supposed to get a call from an assistance program. But I don't answer unknown numbers. Hope they leave a message! Sassy...
I am now stopping Entyvio after almost a year. I have been flaring mild to moderately on and off for a couple years. The longest I go without symptoms is about 5-6 weeks. Entyvio is supposed to be...
Hi, I am a much older 63 yr old, so no more kids..however, I just today, stopped Entyvio. I was on it for nearly a year, but it never got me into remission. I was put on it because it has the least...
Hello, after almost a year on Entyvio, my GI has recommended that because it's not getting me into remission, that I should try Rinvoq starting in 3 weeks. However, after using Entocort retention...
Now I remember, I have used Pico Salax with success. Thanks for reminding me. Today I'm not as groggy and actually went to visit friends and family for a much needed support therapy session. They...
Serenity, are you taking all 4 Mezavant at once? Or do you split the dose? I only started this all at once about a year ago, but not sure if it's better. It's good because I don't have to remember to...
The prep was a huge fail. Even gravol made no difference. I managed maybe 2cups in 3 hrs all the while gagging and vomiting. So I expected reschedule. But the office said go anyhow...so I did. They...
Today's the day before...I am already a bit nauseous 🤢. I have gravol and ODT tablets ( mainly used for chemotherapy patients), from a previous food poisoning. They worked fantastic then. Does...
Q- will do. I have made apple juice ice cubes to suck on after each cup. I tried one today and it tasted really good. The Entocort retension enemas are very easy..I can hold them in no problem. They...
Yippy....I got a perscription for Entocort retention enemas, twice daily. I'm pleased with them, can hold them in and they don't sting. They are easy to use because you put a tablet in the bottle and...
After those 3-4 bad days, My Dr. Has moved my c-scope up to next week, and sent a perscription for rectal enemas that should be ready today. I have less urgency and blood. I'm down to about 3 ×daily,...
Update: I am still constipated and only pass bloody mucus for the last 2 days. My Dr. Has not returned my call. I will try again today---using a different number. I can eat a bit more, but the...
Yes I tried...no response yet...
I have never gone to the hospital for a flare, so don't know how bad you have to be. But I came pretty close the last 2 days. I have been constipated and passed mostly mucus with very visible blood....
Q...I have tried straws before....I don't think they helped much. And nowhere can I find white grape juice. I'm thinking there's a shortage of grapes this year because of forest fires and the...
Midge, I can relate to the constipation. The last 2 weeks I don't go for 3 days, then I pass smelly mucus and gas. I then have 2 days of X Large #6 bms. Cramps and bloating are very uncomfortable 😫...
It all started when I was in my mid thirties with bright blood in toilet. Barium and sigmoidoscopy Only revealed hemorrhoids. Constipation was on-going. Eventually it got so bad, only mucus and blood...
Q you have been helping me from the first time I joined as Sassy. Thanyou soooo much. Your input and support have helped so many of us. Congrats!...
I think the Gatorade blue is Best and white grape juice. I liked the Pico-salax too. My GI just informed me I cannot change preps! I must consume 4 litres of Colyte. Gag Gag!🤢🤢 And he resheduled my...
I am having a colonoscopy Nov 6. My GI wants me to use Colyte 4 litres. I can't remember how salty it's? But I gag and vomit with any prep I've tried. I am freaking out already. What flavor of...
CC...at this time, I will not start Rinvoq. After eating different foods on the cruise it feels like I am healing, but have rectal inflammation still. Hopefully this will reduce and the colonoscopy...
Thank you! I really enjoyed the cruise. I was only constipated a bit, but had 2-4 bms daily. I pretended I did not have colitis and ate every thing I wanted..almost. Never got sick, except a cold on...
Had a consult with my GI. He is suggesting Rinvoq, but it's not covered in Canada yet. I will try something else that is. However, I've had intermittent days of constipation and # 3s for 2 weeks now,...
Talked to my GI Doctor yesterday. After 10 months on Entyvio, it's not working enough to get me into remission. I'm to remain on the infusions until my next Colonoscopy in November. Then there should...
Killjoy123, how long did it take to achieve remission on Entyvio? Do I understand you were good until recently? And that diet may have much to do with failing this med? I am tired of fish, chicken,...
Hi Charlie, sorry to hear Entyvio did not work for you. Sounds like I maybe having to try Rinvoq in the near future too. I've been on Entyvio from December 2024, and I only had 4 weeks of no UC flare...
Midge, glad to hear I can still try something else instead of Rinvoq. But is Remicade an infusion? And can they go to 6-8 week intervals? I'll have to check it out. My ĜI started me on Entyvio...
No breast cancer! Just a change of xray technicians. These old saggy b~~bs are hard to place on the Mammogram machine! 😆 I've had 2 days of # 3/4. So maybe those antibiotics did make it all worse....
The antibiotics definitely did not help with the sinuses or gut. In fact the urgent, cramping, mucus # 6/7 was worse than ever. My ear is bad still..so I just started drops. After weeks and weeks,...
Hahaha----singing all the way to the toilet 🚻 lol...
My Dr. Is to inform me next week about the Mammogram and ultrasound...so I believe it's fine or they would have informed me right away. My hemoglobin is still at 112 so no change. Otherwise iron etc...
Hi, I just need to vent! All I do is complain and people must be getting tired of it. I'm tired of it. It's been a bad summer health wise & mental health also is declining. So here's why: -I went on...
They found very patchy active colitis all over including the cecum, on my first scope 25 years ago. Every follow up scope ( 7-8 of them ) only showed active disease from rectum up 42 cm. So this...
I've had this many times over the years. Especially in the last month. Sometimes I feel it fluttering down my sigmoid colon. Yes I'm flaring, and on Entyvio, that doesn't seem to help much yet. I do...
My sinuses got worse, so I went to a walk in clinic attached to a pharmacy. I talked to a GP & he gave my a script for an antibiotic and nasal spray. After speaking with my infusion pharmacist, I...
I'm into my 9th month on Entyvio. I only had 4 weeks of no symptoms then flared while vacationing. It's over 2 wks now, and I am extremely tired, my sinuses, ears, jaw, and throat have continually...
I feel so bad for all of you who may loose coverage because of Medicare. I'm in Canada and so far not effected. I couldn't continue with IV Entyvio if I was not covered. I prefer the IV as eventually...
Luna, I've had 5-6 Polyps removed after diagnosis. About 20 years ago. I have biopsies every time I am scoped that have never been cancerous. I am on entyvio now and Mezavant to try and get into...
Sorry to hear this Pam. I've been on Entyvio for almost 7 months. Still trying to figure out if it's really working for me. Until just over a week ago, I was having flare like symptoms and not normal...
After speaking with my GI, he's thinking of Rinvoq and Entocort as next steps. I did more fecal tests including c-diff so I'm waiting for those results, and how I do over the next few weeks. I...
My mom did try something similar to Boswella Serrata, it took years for us to convince her to try. She became so constipated, and in pain, that she stopped. She preferred the diarrhea! She wouldn't...
My mom has both types of microscopic colitis. She is 84 and developed it 10 years ago. Unfortunately it has never gotten better. Most days she sprints to the toilet within 15 minutes after eating....
Thank you FlowersGal and Midge 22, luckily my GI is calling me tomorrow. I will ask for a c-dif test. After my infusion, I continued to have issues. It seems to get worse every day now...sometimes I...
Thanks GH for responding. I did have the infusion and they said hope it helps. Today..I passed yellowish mucus semiformed again, a couple times. We're you flaring when you started Entyvio? And...