My disease was mild when I was first diagnosed with 26 cm of inflammation but my last flare up in the end of 2018 was really hard to shake. I was constantly simmering with mucus and small amounts of...
I could not reach a stable remission without the addition of Imuran. I tried 4.8 g of 5ASA's plus enemas and they helped, but never lasted if I lowered my dosage. Once I added Imuran and switched...
I’m so sorry you and your daughter are going through this. Sending hugs, this is something I worry about with my kids, too. They are both getting to the age when IBD typically pops up for the first...
Oh that just stinks! However, since Rinvoq has not been the best med for you, maybe one of these others will finally get you well again for a long time. I am so sorry you have to go back to an...
I would reach out to your doctor and see what they say. I wonder if you need to try something else to see if that helps. Hope you find some answers soon, the longer things simmer the harder they are...
I hope this new surgery helps and you finally get some relief. Please keep us updated as to how it goes next week....
Song, So glad you had a good consult and I hope these more targeted therapies help you out!...
I have found that vegan/GF ones are easier for my gut to handle, but start with small quantities. During my first flare up I did very well with orgain vanilla but during my last flare up I couldn't...
Oh no! I hope they find a good solution for you. So sorry to hear you are going through this....
I bought a single packet of it a while ago but I haven't tried it yet. Also curious...
That's great news!...
Those steroid enemas have been a life-saver for me over the last 10 years. When nothing else works they usually make things bearable. Hope everything goes well for you prep wise and you get some...
Wow, so glad all is well now, but what a crazy situation....
If you can manage, switch to a liquid diet 24 hours before your prep, that helps with the cleanse if you have slow transit. I did the miralax prep with my last scope and it was fine, no complaints...
If you are coming out of a flare up that sounds pretty normal to me. Do get your iron, potassium and your b-12 levels checked, if any of them are low that could be causing your fatigue. I can't run...
I have a friend who received around $250K from that fund because she worked near the WTC and developed cancer 7 years ago. Those funds were super helpful, they paid for a large part of her treatment...
FYI, Ranitadine was pulled from the market in the US in 2020. Here is a link from the FDA about it:...
I think you had a virus based on your symptoms. I had a patch in my cecum on my first scope and my doctor said while it isn't the "norm" he has seen it many times before with UC but biopsies would be...
My first scope came back with a patch in the cecum too. My doctor said it is not an unusual occurrence even though it doesn't align with UC being continuous. He said if the biopsies say UC, that's...
Did you ever have a TPMT blood test done? My GI mandated I get it before starting Aza, it measure how well your liver in particular will tolerate Aza, 6MP, and some other thiopurine I can't recall. I...
Oh that's the worst and I think it happens to a lot of us. My first doctor used to say that you had to wait to taper pred until you had a week of improvement, that anything before then was too soon....
Hope all went well in surgery yesterday....
I'm sorry you had these results from your scope. How was the rest of your colon? Did it all look ok? Enemas plus a suppository to hit the lowest end would be my first choice but if you have been...
I take a nature made multi vitamin with no issues....
No experience with antibody levels but I am happy you are feeling better!...
My situation is slightly different since my inflammation is only to 27 cm but I stayed on the enemas every other day until I was on Aza for 6 months. Then I tapered to twice a week and haven't used...
I agree with Quincy, that sounds like gas to me. If it doesn't go away or it gets worse call your GI, but I wouldn't worry too much about it right now....
This popped up in my news feed this morning and thought I would share here. https://www.nature.com/articles/s41586-024-07501-1 A lot of what is in here are things I have read posted over the years,...
BG- good idea to ask about! I will ask the derm when I go back in August about a resurfacing laser treatment. CC- So far all research I have done points to Entyvio as well. I see my GI in July and...
Thanks OH! The issue I am having is a precursor to squamous cell carcinoma which Imuran is known to cause. I was surprised that my dermatologist was so alarmed by this, but he was. Thankfully I have...
I was talking to my dermatologist today after having to go in and have another actinic keratosis spot zapped off my face and he asked me if I would consider a different med for my UC. He is concerned...
Glad it is gone, hope you feel better quickly!...
What about a steroid suppository? Perhaps that mixed with the Salofalk enema would do the trick. Those days when my boys were younger and I was flaring were so hard. I ended up having to add Imuran...
I hope everything went well and you start feeling better ASAP!...
I also failed generic lialda but was doing fine on brand name. There is a difference in the coating on the generic and it didn't work with my body at all. I am now on Colazal and Imuran which has...
Definitely make sure your gyn checks you out. I took a low dose progesterone only pill after trying the cream and having no luck with it. It made a huge difference for me and after two years I was...
I'm sorry to hear the increase to 30 didn't improve things for you. Do you think that Zeposia is worth trying or do you not want to rock the boat at this point?...
That’s fantastic!...
Out of curiosity, do they give you Benadryl as a premed? Benadryl gives me horrible dreams....
Glad the scope went well. I agree with Quincy that it could have been the artificial sweeteners that caused issues. Hope the biopsies are all ok....
I hope the X-Rays give you a sense of what is happening with your arms/hands. My nails are always brittle when I am flaring. I find taking collagen helps with them but really healing the gut is what...
BG- I am so sorry for your losses and to hear about everything else going on. Stress has always caused me to flare up, no wonder you are feeling so crummy. I hope your partner's surgery went well and...
Congratulations, this is fantastic news! I hope the meds continue to work and you keep getting better!...
Yup, Aza is Imuran! I get bloodwork every 3 months to make sure liver function is good....
I have been taking Aza since January of 2019. Before starting it I had a blood test, TPMT, to see if my body would metabolize thiopurines well or not as not everyone does. It is very slow to work, it...
I would get a second opinion if you can find other doctors in your area....
Thanks all. The orange goop is gone, haven't seen it since Thursday and everything feels back to normal now. OldHat, I was able to watch my first scope, but I started talking too much and they upped...
Thanks all! I am super happy and relieved. The first 6 years were rough trying to find something that worked for me. Quincy- I am a firm believer in the rectal meds. I even tried switching to just...
Wanted to stop by and thank everyone for 10 years of amazing support and advice. I just had my 10 year scope (6 months late) on Monday with a new GI My last doctor had to retire early due to health...