Ps 30-40 mg is a more usual dose for starting prednisone. However it is not a long term solution due to the many side effects and it could be that you need to try something different that is both...
I have UC, and my CRP etc has always been normal. Blood tests are not diagnostic for UC (especially as the inflammation markers can be caused by multiple factors). I find calprotectin levels...
Biologics are no worse than azathioprine in terms of safety, and possibly even a bit safer. Azathioprine tends to get prescribed first because it is cheaper and has been around longer so there is...
You're welcome. Rinvoq was only licensed for crohns last year and for UC in 2022, although clinical trials were running for a few years prior to that. However since it is relatively new the full...
Calprotectin is most sensitive to rectal inflammation. It is less sensitive to inflammation higher up because it breaks down the further it travels. Rectal calprotectin has a shorter path to the...
I sometimes have mucus during flares and can get sore from pooping many times per day so not sure those symptoms are diagnostic of any one thing. Likewise, I've only had one flare (my first) where I...
Stelara has a good safety profile. Rinvoq is associated with a (small) increased risk of thrombosis in certain groups of patients....
Sorry to hear this 😢 Maybe the aza was helping more than your doctor assumed? If it were me I'd go full-on with 4g mesalazine enemas, especially since you have a history of pancolitis Have you...
Brown rice does it for me.... and corn... and rye bread....and chickpeas if they're whole (but hummus is ok...) but i get the pain on the lower left side mostly. Broccoli is fine for me as long as...
"reasonably good remission" is a bit of an oxymoron, no? There are different definitions of remission but endoscopic remission means no visible inflammation...if it were me I would want to up...
I am still on mesavant 5 years after I was told I can stop it.... because the last time a doctor told me i could stop it "because it wasn't doing anything" and i listened to them, I had a massive...
Hi JML to answer your question, entyvio doesn't work for everyone.. it's also very expensive.... that's why. Remember also stories and reviews on the internet will be biased by the worst cases...most...
Antibiotics story here. When my sister with crohns was living in Austria and she had a flare up, the hospital gave her a course of antibiotics and it fixed her 🤷🏾♀️ Btw entyvio is probably the...
In parts of Asia they still use squat toilets (have come across them in Japan and Taiwan), as well as standard western toilets. These are Very advanced nations (in some ways more advanced than the US...
I can understand wanting to stay on entyvio, just wanted to say I was diagnosed with pancolitis and xeljanz is the only drug that put me in a full remission. It's actually known for particularly...
I've been on low dose prozac a few months, which we started to try to help my fatigue issues. It hasn't had any effect on my fatigue or energy levels (probably because i don't sleep enough) but it...
I don't think it helps inflammation per se, but it's good for IBS symptoms. I have a lot less abdominal pain since I started it (I am in remission endoscopically and was still getting pain without...
Thinking of you 🤗🙏 Hope all goes smoothly...
Half joking here.. but if you want to lose your appetite I can recommend prozac.... ye gods the nausea 😵 It was terrible for the first 3 months, now it's tolerable, but I refuse to take anything...
I agree, get a doctor who is informed about UC, and probably you need a new colonoscopy as things might have changed since your last one two years ago. I am not sure a CT scan is diagnostic for UC...
I think I've been on that one when I was triple immunocompromised (prednisone + infliximab + imuran) as a preventative measure against respiratory infections (at least it was trimethoprim combined...
Hi All thanks for the advice. Wish it was a vacation but I'm here for work, however it has been a fun trip. I have not located a Walmart or Costco sadly....now I'm curious. Old hat, yes it was KLM...
Thank you both! It is beautiful here and the weather has been much better than back home. Indeed I saw florastor was recommended when using antibiotics. It also mentioned on the package that it...
Thanks! I'm in Princeton. I picked up some florastor from the local cvs, maybe I'll just try that while I'm here as it's only a short visit....
Hi All I am currently visiting the US from Europe and realised I've forgotten to bring my vivomixx with me (equivalent to visbiome/vsl#3). Can i purchase visbiome or vsl#3 from a regular pharmacy or...
I had low vitamin D the year before I was diagnosed, I wish i had known the significance of this at the time...
I've been on birth control for years, doing 3 weeks on and 1 week off. However in the last few years I was getting terrible headaches during the 7 day day break and when i casually mentioned this to...
Yep I've never had an accident from the prep. It feels more like when you need to pee, so it's uncomfortable but you can at least hold it until you get to the bathroom. Scary to think that this can...
Awesome news 👏...
My arthritic dog is on type II collagen. Do you find it makes a big difference?...
There have been shortages of methotrexate recently, for that reason I would personally avoid it (I just had to go through the stress of one of my medications - luckily not related to UC - going out...
If I understand correctly, the OP was offered a choice of infusions or pills and they opted for pills, hence the decision to try rinvoq. OP personally I applaud your team for not wanting to use...
How high is high? For example my hospital doesn't start to worry until it goes above ~200. When flaring I had values in the thousands....
Do calprotectin measurements work for you? They aren't helpful for everyone but for me they are really sensitive to rectal inflammation and whenever I'm in doubt about my symptoms I send off a fecal...
Hi I'm from the UK but not currently living there, yes we have incontinence pads, they should be in any drug store. Most railway stations and airports will have a Boots store where you can buy these...
Thank you so much for the update and great to hear you are improving. I hope the improvements will continue in the coming months! Did your doc also see an improvement in the severity of the remaining...
Prepping may also affect the absorption of antibiotics?...
It seems to be because the disease is different in different people. Research is being done to predict what drugs will work for someone on the basis of analysing a biopsy....
You should/could check if you have developed antibodies to humira which is a blood test. Depending on the outcome of that, it may be an option to double the frequency of the injections (i.e. weekly...
Just get it checked... and please let us know.... if it is infected you don't want to wait...
You might have cellulitis in which case you will need antibiotics. Do not mess with cellulitis as it can escalate to intravenous antibiotics and sepsis if left untreated. My mum had this last year...
PS Serenity - because I have relocated many times (internationally) I needed to dig up my childhood vaccine record, so I contacted my childhood GP and they had all my vaccines from birth on record...
I had my titres checked a couple of years ago. They were good. I think I had at least three vaccines though because MMR was new when I was a teenager so I had one then, but I definitely also had my...
Lol...
Here you go. Feel free to critique... https://www.sciencedirect.com/science/article/abs/pii/S0016508518346857 ...
Yes I do. Will have to dig it up...("I went to an IBD lecture from my gastroenterologist 2 weeks ago and he showed the stats" is not going to cut it) I am talking only about UC here, and not crohns...
Yet, UC is actually more common in men than women...
Iron pills can make a flare worse, I agree with the above that an iron infusion might be both more effective and better for your bowel....
Hi sorry to hear about your continuing problems. I had the same question as above. Are you at a "good" hospital? My sister in the UK found she got vastly superior treatment for her autoimmune...
It's not that new.... it was approved for RA in 2019, and it is related to xeljanz for which there is > 10 years of data. And the biologics are not without risks either. I'm not sure how old you are...