I just also wanted to lay out what I see with my skin patterns just in case it lines up at all with other experiences. 1) Stress is a big trigger (think others have mentioned that). It almost feels...
A. Carter, Let me/us know if you and your Dermatologist land on something that works. Background: I've also been on rinvoq as part of the study since 2018 (Hey Barnsbury, been a while, hope you are...
Yes I think I’ll be able to swap to the 30mg. But going to give the diet / stress management a month or two more before I go that route. I’m somewhat hesitant in case the skin issues are directly...
Barnsbury, Excellent to hear that you are doing well (aside from the recent acne). I've never totally solved the skin issues. I did recently move to a very low fiber diet (kinda Carnivore diet...
Barnsbury, Did the sore throat clear up? I haven’t had that by itself but I do feel like colds are hitting me harder then they used to. Just coming off a pretty rough one. My UC symptoms are still...
Barnsbury, still doing well? I don’t hit the forums much anymore as I’m hanging in there quite well. Hoping it’s the same for you. Colonoscopy a few months back had my GI doc call me in...
Just read a USA Today article about issues with oral b glide floss and skimmed some of the related studies. The exact floss I use is linked to build up of toxic PFAS chemicals. A type of PFAS...
Barnsbury, Your last post was super awesome to read! Glad it’s been going well and hope it still is. Things are pretty decent on my end. Off prednisone for about 3 months now and skin has been really...
Barnsbury, I tapered all the way off the prednisone for my skin about two weeks ago. So far I’m pretty optimistic my skin isn’t going to go nuts again. Or if it will it’s not happened yet. I have a...
Barnsbury, Really sorry you are going downhill. I hope the bump of dosage gets you back on track. After trying a few things including a short course of antibiotics my dermatologist strongly...
Ahh steroids, fun stuff. I've just been put back on 20mg prednisone at the dermatologists suggestion. Within almost just hours of starting it on Saturday I started to feel some skin relief. Effect...
Barnsbury, The short answer is my UC is decently under control now! About 3 trips a day with very little blood and not much urgency. But my skin is going nuts with acne and other blemishes. Seriously...
Barnsbury, Glad you are improving again, but sorry you had to go through the placebo weeks. I've seen a bit of an up-tick it BMs since I was re randomized (which was roughly 10 days ago), one or two...
Oh and just starting Pred taper (7.5mg this week, 5 next, then 2.5). So that’s another fun variable to add to the mix. But looking forward to being off pred (been on it since August 2016!). My skin...
Barnsbury, How are you doing? Looks like I’m following a similar route as you. Deemed a responder, re-randomized. Crossing my fingers I’m getting the real drug (just started yesterday so too early to...
Barnsbury, Great to hear you are doing well enough to continue on the trial. Keep us posted! For me this it’s now been a week. Still impressed by how fast this med has kicked in. Down a few more BMs...
Barnsbury, how are things going? After a ton of hoops and delays I just started a Upadacitinib trial 4 days ago here in the US. I’d guess it’s the same trial. I’m 99% sure I’m on real drug. Not...