Yay! Good luck! I hope entyvio works as well for you as it does for me!...
I was terrified of going on a biologic. But I was so sick I felt I really had no choice. I’m sure it must be harder when you don’t feel like your disease is at an extreme level. I remember wishing so...
I think I saw a report on moto virus that said the virus could live for weeks on surfaces. And that hand sanitizer was not effective against it — only hand washing. Scary! Glad you’re better!...
I am so sorry for your loss! Depression is so hard to break out from. You don’t feel like doing anything but sit and the longer you sit the worse you feel. The best way to break out of inaction is by...
Just an FYI regarding supplemental insurance to primary Medicare. When you have a Medicare supplemental (not employer or private supplemental) — I was told that Medicare supplement plans are not...
Congrats on your baby! What good news and how special! 9 years!!!! That’s awesome! I’ll be 8 years in a couple months. Still doing well although I’ve been having some cramps and nausea for over a...
I’ve been in remission on entyvio for 7 years now. No side effects. I do sometimes get super tired the day of my infusion but if it happens (like yesterday) I just rest up and keep activities low....
The premiums go up every year. I’m now up to almost $250/month. And then there’s the original Medicare premium which I’m not even sure how much it is as it’s automatically deducted from social...
So sorry to hear BG! Also no advice— just sending the virtual hugs. These disease does suck!!!! So…. Are skyrizi and tremfya both infusions? Or injections? Combo?...
. CC—you are correct (in my experience anyway). I never have any kind of hassle with Medicare or my supplement (knock on wood!!!!). I’m one of the lucky one who has Plan F. I chose blue cross/blue...
I’ve had it happen every once in a while but not consistent enough I imagine any antihistamine would be ok wouldn’t it? There are lots of non drowsy ones available now. I take an Allegra when it...
Well that’s good news!!!! 🤣🤣...
I always use suprep so have no experience of mixing. But I do like the pineapple flavored coconut water. Seems to help me with dehydration/enzyme depletion....
Re: prep types and cleaning out. A time or two when I’m waiting for my procedure — which is running way late and leaving me feeling even sicker from dehydration— I’ve heard comments/apologies from Dr...
I’ve been wondering about tremfya as I’ve also seen a lot of commercials advertising it for UC. Not that I need it, just curious as always when a new med pops up. If you give it a try please post and...
I would take a Benadryl or allergy med before your infusion then. Did you mention this to the nurses? If you hadn’t you should!...
That’s interesting about the dosing level for entyvio, so thanks for that Beave. I’ve always wondered why entyvio isn’t weight based like remicade. I seem to always have a more “sensitive” reaction...
Wishing you luck and much better health!!!...
Good luck Song. And please keep us updated. Have a great, hopefully rash-free Holiday season!...
I meant to get the vaccine last year but didn’t. I keep putting it off Did you have a reaction CC? They say it’s a one time only vaccine so that’s good. I think I will go get it....
Yay!!! 👏👏👏...
lol! I agree with that last bit especially CC!! Yeah the Advantage plans work well I guess as long as you don’t get sick and need a specialist. Then you need pre authorizations and finding a provider...
I ended up in the hospital. My enzymes were so out of whack they diagnosed me with pancreatitis at first — which I knew I didn’t have although at that point I didn’t know what it was other than my...
Just to chime in I bought my Canasa from cost plus drugs last year at about 1/10 of the price my insurance was going to charge. Very smooth process!...
Awesome! Plan D is a pain for brand name medication pricing and probably will get worse in 2025 so shop carefully. My advisor says the price cap that Biden put in place is complicating things because...
If he’s out of network now does that mean you need to get a new dr? Maybe you should start shopping around? It is a definite problem getting a good GI though. Like we have time to shop around when...
The fun never stops, eh? 🤣 Glad you’re taking it in stride. Glad you’re feeling good!...
Ive had high eosinophils only. Triple what the norm is, one time only. Since then they went down although the still run a bit high. I’ve seen an oncologist just as a precaution and she mentioned once...
I agree. UC weakens my whole system and trying to push through it only makes it worse. My first flare came right after I tried a new intense exercise class that kicked my butt....
My story is close to CC. But previously I’d had issues for many years with severe diverticulitis episodes which led to having 8 inches of colon removed and reattached. So I already had a GI for those...
I just saw a commercial for a UC med I’ve never heard of. Can’t for the life of me remember the name now though. Might have started with a “T”?...
Like everything else there’s going to be loopholes. Only certain meds are negotiated I think. I am hoping it will mean Medicare users can qualify for the copay cards most drugs have? I was told by a...
The only Gatorade flavor I like it the light blue one — might have “ice” in its name. Also I like the pineapple flavored coconut water. It’s no added sodium but seems to really help me not get...
Cc — they do offer an “extra” now — maybe with all the plans? It includes some vision coverage. And maybe something else? Hearing? Not dental though. My F extra plan was actually cheaper than what...
Medicare does not require prior approval. I remember I was so worried before my first infusion because the dr office told me they didn’t need prior approval but I was scared Medicare wouldn’t pay for...
I agree CC! Dont wanna know at this point!...
Hang in there sassy! If it’s not one thing it’s another right? Just take it easy and rest all you can! Wishing you good health soon!...
Entyvio, entyvio, entyvio!!! 🤣 Actually makes me cringe when I hear it, and then it becomes an earworm....
I think cc just posted about her formulary being changed mid year even tho we can only sign up once a year? That and this instance is the main reason our entire pharmacy industry needs a vast...
So far, (knock on wood) Medicare and my secondary have not raised any issues with my infusions. I did have to hassle with my dr though to get a new order for my last infusion. The infusion center...
Amazon has poo-pourri. Also target. Costco sometimes. They even have a lipstick-size one that you can carry in your purse. Just realized that my first entry got spell-checked. It’s Poo-Pourri....
Can you get a hold of poo-pouring spray? It’s an oil based spray you spray into the toilet before a BM. The oil stays on top of the toilet water and hides the odor. It comes in different scents from...
Just checking in for an update, clo. Did you get your infusion?...
Ditto what mom said. I had that test early on when my dr was deciding if he should start me on imuran I think and the test showed I wouldn’t metabolize it well enough for it to be effective. I didn’t...
I was pretty much symptom free at four months on entyvio. I had a colonoscopy after 6 months or so (it was 7 years ago now so relying on spotty memory) of infusions and while visually my colon looked...
Insurance hassles are even more stressful than any other kind because you are caught in the middle of the doctors and insurance and at the mercy of each. Not that the drs don’t care but their staffs...
I’m seeing an oncologist for precautionary purposes and while initially upsetting I now find it very reassuring. (I had a highly elevated blood reading that my GI wanted consultation on initially,...
Please keep us updated! Thinking of you!...
I’ve gotten several medications for free by applying to the medication manufacturer’s program. The problem is it’s a process to do the application, then get the dr to fill out their section and...
This makes me so worried! I would assume a hospital has to go ahead no matter the coverage??? My infusions are done at a hospital owned outpatient clinic....