Sorry to read that you're confronting bereavement plus financial issues, too. My advice is: try not to beat up on yourself by binge-eating and definitely chuck the TV dinners. I know we can harm...
Thanks for updating us, Andreita-- if you're fighting off anxiety it's no wonder, considering all you've had to overcome. You wrote us so calmly about the fistula, which must have been dreadful-- so...
Thanks for checking her posts, Straydog. Hopefully she'll return to the forum ASAP. / Old Hat...
This morning I realized that we haven't heard from her-- for more than a month, it seems. Here's hoping she has just been busier than usual, and feels well. / Old Hat (40+ years with left-sided UC;...
Descending colon is tricky to treat. I never got to long-term remission because of that-- 'til I participated in an oral 5-ASA trial for Colazal. (Designed to cleave to mesalamine in the transverse...
Happy New Year, Andreita! Hoping you'll feel fully recovered from surgery ASAP-- you are a brave trooper! How is your appetite? / Old Hat...
Definitely get checked out by your own doctor, Mike, because of the blood in bag. Better not to assume anything as we turn older, also Clindy is a bad drug for UCers. Maybe you need a probiotic in...
Likewise! Just FYI, we had thunderstorms in NYC 10 PM+ with temp around 46o F, but the Times Square ball was able to drop on schedule. / Old Hat in 2025, yay!...
The Qs you're raising in this thread made me realize that Poopydoop hasn't posted in a while-- 'cause she's very good at sorting out dilemmas like yours. Let me just add that you may be somewhat...
Hi, BC-- I've been thinking of you 'cause you turned absent for a while. That's bumming news about your biopsy reports. Was that a 1st time for cryptitis? Hopefully a change in med will get rid of it...
All the hassles they hit us with are 99% unnecessary, and probably 2025 will bring on still more of them. The insurers want us to back down and pay up-- out-of-pocket. BTW, I read that many news...
You are right to question the purging regimen recommended for your upcoming c-scope! It really galls me that some gastros want to keep their patients up all night coming/going to the throne instead...
Rats! I wish you could have Keith's gastroenterologist, but you're out west-- right? (His MD is in NYC.) Hoping your upcoming procedure brings quick relief and that you can enjoy some of the...
Thankfully I got a shot of Abrysvo last Wednesday without any problem but my laptop crashing due to a new software update! (Boohoo!) For the 1st time post-vaccination into upper arm, I decided to dab...
So glad your consult at D. Farber went well. Fingers crossed that you can connect to a more helpful, targeted form of chemo via clinical trial ASAP. After my 1st 20 yrs of suffering repeat flares of...
I'm wondering whether any forum members have taken the RSV shot. What's available so far in U.S. : Arexvy, made by GSK, and Abrysvo by Pfizer. (Supposedly, Moderna is working on an mRNA version.) The...
So sorry that you have skin complications, Songlady, etc. Hoping that your D. Farber consult proves helpful-- I'll look for your update. > / Old Hat (40+ yrs with left-sided UC; in remission taking...
When you post that you "just stick on the meds every month" do you mean that you keep quitting them when your symptoms stop and then resume taking them when flare symptoms return? If so, that's the...
Thanks, Straydog, and likewise. I can resist most everything at reasonable quantities, but a savory stuffing still entices me to second helpings. I just encountered a version with whole cranberry,...
Hiatal hernia used to be a big DX deal 30 or more years ago, but is no longer considered to be majorly abnormal as people get into midlife and older. Read up about it on reliable Websites like Mayo...
Gads, sorry you have those complications. Recently I read that IBD researchers in Los Angeles are working on a promising new monoclonal antibody called Tulisokibart that's going to subject trials...
If you have constant pain on your lower left side, it seems that your gastroenterologist should do a flex-sig exam. Something is definitely wearying you and that makes it harder to care for oneself,...
Sorry that this complication has hit you, Andreita. You surely deserve good health after all you've gone through before this latest. Was your DX still UC when you had the 2021 pouch re-do? I ask...
Good that the oncologist is showing empathy toward your concerns, including insurance hassles. That's definitely a reason to feel thankful these days. Best wishes for you to have a more enjoyable...
Try not to panic! Did you have an endocrinologist consultation to discuss osteopenia? I think that the results of 1 DEXA-scan are a warning, not automatically a condemnation of one's bone health. It...
Hurray for good news! Did you need to have contrast with this scan? / Old Hat...
Good news, Rascle-- it sounds like the doctor is taking appropriate care of you. That's really what all UCers need, a gastroenterologist who understands our blasted ailment and keeps up with ongoing...
Clo, the office multi-contacts can definitely add to aggravation for us. Just recently I sent a patient portal e-message to my gyn asking about a specific lab lest. An RN at her (busy) office then...
Bravo! Dept. of "They can't keep a good man down!" / Old Hat...
Sorry to read that you got hit with H.pylori, Susie-- but good to hear from you again otherwise. Maybe you can look into Florastor probiotic to help you avoid the antibiotic nasties. Please keep us...
Well, Medicare Advantage plans should NOT become the default senior insurance program because that puts private insurance companies in charge of our health care so they can impose all kinds of...
Quincy knows a lot about dealing with anal fissures-- so hopefully she'll advise you soon. Pramoxine foam helped me to treat an internal hemmie in the past; it can stop the pain. Maybe you can use...
Thanks, Straydog! The methyl salicylate in Icy Hot lotion did help me to overcome in 4 days. I was able to visit PCP's office last week, then went to local pharma for COVID updated booster shot...
That's wonderful news about your wife getting her hearing back!!!!! Wow!!!!! Seems like you both have true grit. / Old Hat...
Mike, it's nearly time to fire up your smoker for the football game chow-downs, no? I remember that you posted about doing it fairly soon after the colectomy. So Serenity got it right: you're...
Many thanks to all for your empathy. Straydog, I've been meaning to check on pain patches so will look for your recommended brand. Luckily the 30% methyl salicylate helped me again with this sacrum...
Considering all you've had to pursue lately, Clo, it was relieving to get your update. It sounds like you got a proper hearing at the consult your CR-surgeon arranged. RE fibroid determination: I...
So good to hear that you're flunking retirement, Songlady. We do miss you here on the forum. It sounds like the chemo isn't friendly to your pouch (?) ; hoping your CT MD will have helpful advice to...
What a saga, Old Mike!!!!! So they put you thru all that because the 8/14 EKG failed to show abnormality? Good thing you're an ornery spirit ... Take good care and keep us updated. / Old Hat...
Well, I wasn't expecting this just now, but it's a nuisance that started Sunday evening with soreness in outer-edge of an upper thigh. Then the next evening it affected lumbar area + butt central....
Can't comment on Entyvio use, but antibiotics could have caused your setback. The only one that I've ever tolerated without gut revenge is Azithromycin (Z-pack). Taking Florastor probiotic a couple...
Good to get your input on this, Beave. Also your comment on Avsola a few weeks back for new forum member Rascle. Apparently the doctor also gave him Azathioprine at some point then itching became a...
In recent months Microsoft News has been displaying articles from Medical Xpress that summarize current research projects on UC treatment. I've seen interesting reports from Vienna & Aalborg...
Vitamin D3 is anti-inflammatory so a valid supplement for many of us UCers besides aiding bone health. Taking 1,000 iu daily shouldn't cause itching or other annoying side effects. For me the...
Glad to hear you fared well with the scoping and will get liver tests done soon. Probably you'll make better progress on Avsola alone. It does seem that your itching issue started after Imuran...
Haha, Rascle-- keep that sense of humor going! After those double encounters on Friday, you'll deserve a good rest over the weekend. Take it easy. Let us know how you're feeling ASAP. Good luck with...
I just looked at Baylor-Dallas, takes several screens under Women's Health, past Imaging, then Find an Obgyn Near You. That's where I see a mention of gynecological-oncologists, and the text there...
Way cool, Quincy!!!!! Reading your posts, back when Dakota Girl + Kit Kat Baker were also advising, motivated me to join the UC Forum. Always look forward to your helpful assessment and...
I got an intestinal amebiasis back when an iodine-based treatment (Diodoquin) was being retired and Flagyl had just entered the marketplace-- so the internist who got my lab test results put me on...
The inconsistencies you find in the scan reports would likely be due to the radiologist(s) and/or transcribers. However, I don't think that gyns in general get hysterical over uterine fibroid sizes,...