Home yesterday. No new info. Just my life of medical mysteries!😁...
Nothing again. No growth in cultures etc... Still "fevers of unknown origin" I'm thinking this time might be my stricture got all mad and got some bacteria where it don't belong. Don't have my MRI...
Well another round of fevers. Mostly in the 103 range but in the er last nite I almost hit 😷105 . ct, xrays, blood cultures. Nothing yet. The cultures won't be back till end of week. Sooo, vanco,...
Hey minnie. Well for what its worth, I had my gallbladder out at 22. Make kidney stones like a quarry😋 had at least 20 removed with surgeries passed a few too😬 . only bone stuff is osteopenia. That...
Ooh someone replied!🤗. Yes clo happy new year too!...
Hope everyone has a great day!...
Stricture😤 had my scope today. Got me a new stricture. Probably get ballooned soon. Will find out more Thursday after my next appointment. Isn't Christmas great!😝....
Hey lab. Sorry to hear that. I had a different reaction the third time I started remicade way back when. Mine was an immediate spike of fever to 103 and violent shakes. Dr said no more and that's...
Hope everyone has a thankfull day😁 eat what ya can tolerate 😋...
Thanks for the update!😁...
There used to be a number of us here but I don't know now. A bunch have dropped off....
Yeah susie, I know. I just was looking for someone with one. I have yet to hear of someone who knows someone or nurses that have known someone. I don't do big social media . I wonder if there is a FB...
Looked back through a dozen years of posts and didn't see any mention of one. I got one a month ago and was just curious😁 randy...
Randy noguts . been here since the beginning January 2003! And even before that on the old version😋...
Had my check up yesterday. After checking with the computer, dr determined that it is firing 76% of the time. A lot apparently. She turned it off for a minute and my pulse went down to 40 very...
Small company or large? Wait till your probationary period is up. Drs letter explaining you have a condition that may require you to be absent from your work area on short notice. Larger companies...
Hey clo, it took about 2 hrs after 1/2 HR of prepping. Still going into afib. But not as often or as long or fast. Going for a adjustment on the 21st. The thing it seems to have solved so far is the...
Leslie, hi . all the iron infusions are very dark so that doesn't help😁. Just as a for instance reason 30+ years ago I used to get 1 liter of iron dextran every month . I don't remember how many...
What type of iron did you get? How much? How long between? Being a frequent iron getter😁 all things being involved, you need to know at least 2 things. Serum iron level and stored iron level. You...
Good luck minnie...
Fine. No problems so far😁...
I knew he had some type of chronic disease but just found out he had CD. It said he died of stroke complications from 2022 but that he also suffered from CD. I always thought he looked kinda moon...
All went well with the insertion.😋. More people were all up in my groin than I expected!😁 gotta lay here for six hours without moving flat on my back. Thanks for all the support!...
Getting it on the 26 th😁 will take all good wishes!...
Fine. Dr told me last Tuesday that she was accelerating the time table but still haven't heard from scheduling. Will have to call them tomorrow I guess.😋...
Hey magik. Sorry I missed your post.😋 I have had a hernia at the same spot as you for 25 years. Its right at the top of my scar that has been used so many times it wouldn't stay together. Its about...
Probably late october😋...
🤗thanks guys!...
Got told yesterday that I need a pacemaker❤ Have had afib for years . but its progressive and gets worse over time. I also have tachy-brady syndrome. After all the tests, studies etc.. And after...
Its done routinely. And if the can reach it, they can stretch it😋 sometimes it lasts , sometimes t needs to be redone....
Ok minnie😁. I had a fever spike and shakes within a few minutes of restarting remicade for the 3rd time. Then went to humira without a problem. 😁...
Minnie, I noticed the lack of mention of humira on your tried and failed list. Ever taken it? Just wondering....
Paul, I usually skip my humira when I have a fever and resume when I'm recovered. Hasn't seemed to hurt my levels....
Hey poppy, sorry to hear that. I had a bed structure in the same place 8 or so years ago. I went in for a stretch every 2 weeks for about 9 months. Dr would stretch 3 mm each time knowing it would...
Well hope you find answers mary! If you ever have any Tpn questions, just ask😁...
Good. Be well...
And my second guess would be unseen diverticulitis😁...
The reason I asked about your Tpn and lipids is the fats in the lipids can f with your liver , but that's on the opposite side as your pain. They can also mess with your pancreas and spleen which are...
Where is the pain? Any specific spot. You can definitely have a structure without being seen with CT or mri. What type of tpn regimens are you on? Getting lipids? Do you hurt while infusing, but less...
I'm ok clo. Although today I was working on my old car and then had high pulse but low pressure and a little dizzy. Just rested and felt better.😁...
Yep, feeling good. 😁 trying to get into cardiology sooner. They want to do ablation on my heart too control the afib. But I've heard horror stories about it....
Started getting statements from my stay. Just under 100k so far. My payer cut it down to about 15k. I think the system just throws out huge numbers to see what they get negotiated down to....
No suggestions. I have found if I tighten my tiny cut up abs, it doesn't push in as far. But since I have a 1 pack it won't work everywhere!😂...
Update... So I took one of my hadlima injection pens to my GI appointment yesterday and had the pharmacist inject me. They were all surprised how hard she had to push into my abdomen to get it to...
I'm ok. Still a bit weak. Seeing my GI tomorrow in seattle....
Thanks all!...
Hey clo, All good. I'm not a religious person But I would never turn down or be offended by someone who thinks enough of me to pray for me. I've been on so many church prayer chains over the years it...
All is good! Going home today. Off all antibiotics. Audible still acting up, but way better. Thanks everybody. the nurses colored me a picture and wrote " patient of the week" 😁 for putting up with...
Not covid. Done two nasal and a blood test. All negative. They did move me up a level in a more intensive area for all of the 4 antibiotics and my tpn and because my BP has been under 80/50 all day...
For those that remember, I have bouts of high fevers that very rarely have a dicernable cause. They always think its my line. As normal I waited 2 days to see if it would resolve but it did not. I'm...