Do you still deal with food triggers or can you eat what you want? I had a bout of D today which I think might have been from having a few slices of salami with cream cheese yesterday. Maybe? When...
Momtoboys, How bad was your inflammation? At this point I would not be willing to add something like Imuran in my current state (if it was suggested due to my microscopic inflammation) because...
By small colonoscopy do you mean a sigmoidoscopy? I’ve had a couple of these in the past and if you’ve had two colonoscopies within the past year, I personally wouldn’t do more than that. Would...
I just checked my patient portal and my biopsy report was in there. Not sure when it came through, but as I suspected there is some mild inflammation there: “Sections of the left colon show fragments...
Yeah, I know. I’ve been talking about needing to keep a food diary for years now, lol! And the thing I learned about FODMAPs, too, is that they can “build up” apparently so a food may not bother you...
I’m so glad to hear that overall the infusion went well! My BP always runs high for my infusions. I have white coat syndrome for one thing. I always recheck a little while after the nurse leaves and...
Oh, also yes, hormones do affect my disease. In the past, I always had more symptoms several days before my period until a day or two into it. Now I am getting toward menopause which I think is...
Hi, Joan! What do you mean about your scope being not that bad? If inflammation was seen at any level, that explains your symptoms and means you need to be addressing it with meds consistently. If...
I’ve been meaning to post but with a new puppy added to the house, among other things, time got away from me. My scope was on the 15th and honestly it was probably the least offensive prep I have had...
I’m sorry it’s taken me so long to respond. I had my scope on the 15th, we got a new puppy just 2 days later, and things have been a little goofy around here. Bacon Girl, I have read about Crohn’s...
Hello, I am a newer member of these boards and since I have UC, that is where I normally post. My 18 year old daughter had told me a few months back that she was having some blood in her stool. No...
I have mentioned in other posts that my 18 year old daughter had told me a few months back that she was having some blood in her stool. No other symptoms. Of course I asked all the logical...
I feel like your doctor hasn’t been thorough in explaining your condition to you or his opinion on appropriate treatment for your specific situation. You may also need a colonoscopy since it’s been a...
Beave, I can’t be sure where the inflammation might be. At a certain point I know enemas won’t be helpful because they can only reach so far. I know I have to wait for the scope to know that. Just...
Well, I prefer not to use them because they aren’t exactly fun, but I am certainly willing to use them if it means avoiding riskier things. They did help me when I used them before, but it’s been...
Beave, thank you for that information. What is your opinion on the use of rectal meds with biologics?...
Most people are low on vitamin D and I am making sure to at least take it during winter. D3 is the best form especially for us IBDers. Absorption issues are common in IBD so methylated versions of...
I really haven’t noticed that it’s ever made me more tired. I remember being told by one of my nurses once to take it easy the rest of the day after my infusion so the medicine could get where it...
Sassy, please keep us posted on how you’re doing on Rinvoq. I’m intrigued by a pill but wary of the potential side effects should it be recommended for me. I don’t know if there’s kind of a standard...
Joanna, one thing I do know is that people who do not suffer with this disease have no clue what it’s like. Some people can still show sympathy because of the idea of it or their own experience with...
I had my first at 23. If you wanted further investigation, I would recommend looking for a NaPro doctor because they look for the actual causes of problems rather than just throwing birth control...
Wow, you have been through a lot with this and I’m so sorry. I had just assumed by infusion you had meant one of the other infusion medications. (My only experience with IVIG was with one of my sons...
Since I am already on drugs that lower my immune system and have to monitor liver function, etc., adding another that requires even more monitoring and more risks is not on my to do list. My guess...
I am stuck wondering how it’s decided to flat-out switch a med when it seems to be so helpful overall. If nothing else in the “lower level” arsenal has been tried in conjunction with it to get rid of...
I don’t know about Tremfya but Skyrizi is 3 loading infusions and then you go to shots according to my mom. I don’t remember how often the shots are....
Oh, also, if you go to an infusion medication, have you inquired if your insurance covers home infusion? I actually was required to get home infusions with Cigna and now I get them with United...
BG, my doc who I had loved left the state last year and I was quite literally heartbroken. On my last scope in July of 2023, she saw a small area of mild disease and talked about adding Azathioprine....
I can empathize with your situation so much. I have been on Entyvio since 2018 and am doing very well on it symptom-wise. I have spent most of this time in clinical remission but not endoscopic...
Old Hat, I’m sure stress plays some role this time of year for me. It’s just such a tiring game to play, as I’m sure everyone here gets, like whack a mole trying to figure out if symptoms mean...
No, there was nothing in my diet I could attribute it to I don’t think. I have been taking it at bedtime. I have not taken it for 3 days now and today was back to an almost normal BM. I do not have...
I’ve only dabbled in probiotics in the past a few times (it’s been years) and recently decided to try one again in hopes that if I do still have a small amount of inflammation that it could help with...
I understand the aversion to doctors and drugs, but this is one area where I do what I gotta do to live normally. Part of the issue for you is going to be getting help without more diagnostics done...
I wonder if the next pregnancy might be different for you and you’ll have better success with your treatment. I hope so! My only pregnancy after UC diagnosis was actually really good after an initial...
CCinPA, yes, that’s the same prep I had before plus the mag citrate. This one is twice the Miralax/Gatorade but no mag citrate. I’ve never done this volume before. I’ll get down what I can....
Right. It’s not my first rodeo so I know from having 4 of these before that I was cleaned out on half of what this prep is. I have never had to repeat a scope (not that I’m sure I would!). I will...
Quincy, thanks! I can (physically) but it’s not what this doctor prescribes. My daughter also has to get one done with the same doc the week before mine (first time) and she is so upset about the...
Beave, that makes sense and is something I will certainly ask my doctor about if it comes to that. Not that I’m a particular fan of going to every 4 weeks, but maybe better than alternatives. Maybe...
I assume you have had your scope by now and perhaps a plan, but you sound similar to me with your UC. Although I am certain that at this point if I left it alone I would be a mess, I have felt that...
Thank you for that information about Entyvio and Azathioprine. I wasn’t aware of that. When I mentioned to my new doctor that my former doctor had floated this idea, she didn’t seem like a fan. I...
Hello, I am new to posting but not new to UC and have been reading here for quite awhile. I was diagnosed in 2010 and have been on Entyvio since 2018. I live a pretty normal life but always seem to...